Public Cluster Headache Diaries
If you are a sufferer, then you know what these members are going through.
Intensity Scale (adapted from the 'Kip scale')
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Blog / Diaries
Click a member's name to view their Cluster Diary.
| Roger | last updated: 27/10/2006 |
| zara chappell | last updated: 08/06/2009 |
| stustar | last updated: 09/08/2009 |
| Frosty | last updated: 11/04/2010 |
| Costanza | last updated: 15/08/2007 |
| roxy | last updated: 18/12/2007 |
| danielle | last updated: 30/12/2007 |
| Kazza | last updated: 06/03/2008 |
| my brain hurts | last updated: 30/09/2009 |
| Hoolio | last updated: 28/08/2008 |
| ally | last updated: 21/09/2008 |
| Amy | last updated: 09/10/2008 |
| zinzan | last updated: 19/03/2009 |
| johnofbham | last updated: 15/03/2009 |
| benny | last updated: 25/05/2009 |
| karl | last updated: 28/10/2009 |
| Henry | last updated: 06/08/2009 |
| Bazil | last updated: 20/08/2009 |
| Jarm | last updated: 27/08/2009 |
| stefwill | last updated: 10/09/2009 |
| silent planet | last updated: 19/10/2009 |
| FIFI | last updated: 18/09/2009 |
| Nicole78 | last updated: 18/09/2009 |
| jjimbo68 | last updated: 13/01/2010 |
| mr happy | last updated: 07/02/2010 |
| cerberus | last updated: 18/02/2010 |
| Steve-B | last updated: 15/06/2010 |
| Luke | last updated: 13/07/2010 |
| Rusty | last updated: 01/07/2010 |
| janeh | last updated: 14/07/2010 |
my brain hurts
| 14/07/2010 -- 12.15 am - 12.45am |
| |||
| awoke at 12.15 from a nice sleep,reckon i was in about a 2?took cafergotand within 30 mins it was gone!yahoo!woke up feeling not too bad,but had heavy "shadow"all morning,started getting worsearound mid day..took cafergot and in no time even the shadow was gone! i took cafergot during my last cycle and wasnt impressed,but perhaps iwas taking them too late?? | ||||
| 14/07/2010 -- 6.00am - 6.30am |
| |||
| had nothing for 2 days..then yesterday morning it woke me and i was straight into a 5..took cafergot and an ice pack,rocked to and fro and did some pain breathing(remember the technique from the wifes ante natal class)and it just stopped,like turning a light off..really hope that was the cafergot working? nothing last night and nothing this morning????i can feel its still there,but no attack?dont know whats happening with this cycle? mine are usually so predictable,every evening without fail.cycle starts low,builds up to the 9 and 10's thenback down again over a period of about 6 weeks.the only time i will have a clear day is towards the very end of my cycle. this bout is also 6 months early!!perhaps this is just a rogue few days?time will tell. oh..and ive been taking magnesium daily for the last 3 weeks??? | ||||
| 14/07/2010 -- - |
| |||
2