Public Cluster Headache Diaries
If you are a sufferer, then you know what these members are going through.
Intensity Scale (adapted from the 'Kip scale')
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Blog / Diaries
Click a member's name to view their Cluster Diary.
| Roger | last updated: 27/10/2006 |
| zara chappell | last updated: 08/06/2009 |
| stustar | last updated: 09/08/2009 |
| Frosty | last updated: 11/04/2010 |
| Costanza | last updated: 15/08/2007 |
| roxy | last updated: 18/12/2007 |
| danielle | last updated: 30/12/2007 |
| Kazza | last updated: 06/03/2008 |
| my brain hurts | last updated: 30/09/2009 |
| Hoolio | last updated: 28/08/2008 |
| ally | last updated: 21/09/2008 |
| Amy | last updated: 09/10/2008 |
| zinzan | last updated: 19/03/2009 |
| johnofbham | last updated: 15/03/2009 |
| benny | last updated: 25/05/2009 |
| karl | last updated: 28/10/2009 |
| Henry | last updated: 06/08/2009 |
| Bazil | last updated: 20/08/2009 |
| Jarm | last updated: 27/08/2009 |
| stefwill | last updated: 10/09/2009 |
| silent planet | last updated: 19/10/2009 |
| FIFI | last updated: 18/09/2009 |
| Nicole78 | last updated: 18/09/2009 |
| jjimbo68 | last updated: 13/01/2010 |
| mr happy | last updated: 07/02/2010 |
| cerberus | last updated: 18/02/2010 |
| Steve-B | last updated: 15/06/2010 |
| Luke | last updated: 13/07/2010 |
| Rusty | last updated: 01/07/2010 |
| janeh | last updated: 14/07/2010 |
Hoolio
| 14/07/2010 -- 3am - 8.30am |
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| Was sick, had some sort of flu. Went to bed early, woke up a few times through out the night needing O2. WOke up at 8am with a shocker, used an ice pack and O2 until it subsided, then almost passed out from relief. | ||||
| 14/07/2010 -- 4am - 1pm |
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| Terrible. I've been having shadows for a little while now, on this partiulcar day i woke up to a major CH that made me throw up. I used to do that when i was bit younger and it suprised me that i did it again now. Had no O2 so took nerofen and black coffee and lots of it. First proper attack in months, it was like seeing an old friend that you hate. | ||||
| 14/07/2010 -- 2am - 4am |
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| Woke up with CH, took O2, went back to sleep, woke agin a few hours later with CH, more 02, spent the rest of the night sleeping upright. | ||||
| 14/07/2010 -- - |
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