Public Cluster Headache Diaries
If you are a sufferer, then you know what these members are going through.
Intensity Scale (adapted from the 'Kip scale')
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Blog / Diaries
Click a member's name to view their Cluster Diary.
zinzan
| 14/07/2010 -- 0630 - 0715 |
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 3
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| Puppy kept me awake most of night - kids woke at 6, cluster followed
Had a glass of wine last night
Still right side, still more diffuse |
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| 14/07/2010 -- 6.30 - 7.00 |
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| 4
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| 14/07/2010 -- 0600 - 0640 |
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| 2
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| Strong shadow - enough to keep me awake. No meds
3 day break since last one... |
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| 14/07/2010 -- 0515 - 0600 |
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| 3
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| Enough to wake me up, but didn't escalate. Handled with 30mg codeine and Tiger's balm to temple
CH appear to be coming less frequently and less intensively. Not sure if its because of eradication of triggers or just a short bout (2+ weeks so far)
Here's hoping, huh? |
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| 14/07/2010 -- 0545 - 0645 |
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| 6
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| Not aborted with Sumatriptan inhaler. First miss with the inhaler
Have eradicated alcohol (from experience) and chocolate (on spec) from diet for last four days
Getting fewer and less painful CHs
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| 14/07/2010 -- 0255 - 0320 |
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| 5
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| Aborted with Sumatriptan inhaler
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| 14/07/2010 -- 0355 - 0420 |
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| 7
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| Took new you-beaut Sumatriptan inhaler. After 15mins didn't think it had worked, got changed into my running gear - as I laced up my last shoe CH dissolved
Back to bed |
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| 14/07/2010 -- 1030 - 1400 |
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| 3
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| Really long shadow - felt stuffed.
Took more codeine, went to bed |
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| 14/07/2010 -- 2355 - 0145 |
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| 7
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| Immediate onset. Strong shadow woke me up, by the time I had walked to kitchen was full-blown (only a small house too!!)
Used new script of FDT. No relief after 20 minutes, went hill sprinting followed by walk. Came home took soluble codeine |
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| 14/07/2010 -- - |
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