Public Cluster Headache Diaries

If you are a sufferer, then you know what these members are going through.

Intensity Scale (adapted from the 'Kip scale')

0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.


 

Blog / Diaries

Click a member's name to view their Cluster Diary.

Rogerlast updated: 27/10/2006
zara chappelllast updated: 08/06/2009
stustarlast updated: 09/08/2009
Frostylast updated: 11/04/2010
Costanzalast updated: 15/08/2007
roxylast updated: 18/12/2007
daniellelast updated: 30/12/2007
Kazzalast updated: 06/03/2008
my brain hurtslast updated: 30/09/2009
Hooliolast updated: 28/08/2008
allylast updated: 21/09/2008
Amylast updated: 09/10/2008
zinzanlast updated: 19/03/2009
johnofbhamlast updated: 15/03/2009
bennylast updated: 25/05/2009
karllast updated: 28/10/2009
Henrylast updated: 06/08/2009
Bazillast updated: 20/08/2009
Jarmlast updated: 27/08/2009
stefwilllast updated: 10/09/2009
silent planetlast updated: 19/10/2009
FIFIlast updated: 18/09/2009
Nicole78last updated: 18/09/2009
jjimbo68last updated: 13/01/2010
mr happylast updated: 07/02/2010
cerberuslast updated: 18/02/2010
Steve-Blast updated: 15/06/2010
Lukelast updated: 13/07/2010
Rustylast updated: 01/07/2010
janehlast updated: 14/07/2010
 

Bazil


14/07/2010 -- 1500 and 2030 - 1530 and 2100
3
Got rid of the flu yesterday so feeling better. Still a little heady but much better. Feeling happy about the ice pack last night. Not as scared of a CH onset knowing that it helped so much. Am still positive about Bowen Theropy as well. Have a follow up appointment on the 24.08.2009. Took ISOPTIN three times throughout the day. Niggling pain at 1000 and applied Migrastick. Mild attack at 1500. Took 2 x CAFERGOT and 1 x PRODEINE FORTE and pain subsided. Another mild attack at 2030 and repeated the 2 x CAFERGOT and 1 x PRODEINE FORTE and combined it with ice pack and pain again subsided without building. Feeling much better about the CH's and feel as though remission is just aroud the corner.
 
14/07/2010 -- 1930 - 2030
0
Same time of the evening. Massive migraine after 2 x beers. Took 2 x Anigraine no relief. Took 1 x Mersyndol. Intense pain for about one hour. Watering right eye, sore neck.
 
14/07/2010 -- 1915 - 2300
10
Not a stressful day at work. Wife away. Did a few errands on the way home. Started preparing dinner and had 1 x GNT. Dished up dinner and started 2nd GNT and half finished it. Massive migraine at 1915 and took 2 x Cafergot. Took 1 x Imagrin at 1945. Pain still there and took 1 x Mersyndol at 2015. No relief and getting worse took 1 x Cafergot and 1 x Forte at 2045. Right eye watering continousley. Cold and clemy. Felt nausous. Passed out and woke at 0130 hungry, fuzzy and exhausted but no pain
 
14/07/2010 -- 1930 - 2130
9
Woke up with a "normal" headache. Took 2 x panadol at 0630. Migraine started at 0755 and took 2 x Cafergot. Intenase pain. Watering right eye and runny nose. Went home and took 1 x Imagrin at 0830 and laid down with pain subsiding at around 0900 and fell asleep. Woke at 0930 with same pain. Took 2 x Anagriane and laid down again with pain subsiding around 1000 and fell asleep till 1030. Had Doctor's appointment with Dr I Brown to discuss and presented migraine log. She diagnosed the condition as CLUSTER HEADACHES and prescribed ISOPTIN 40mg as a preventitive and CAFERGOT 1mg and PRODEINE FORTE 30mg - 500mg. I had no alcohol during the day. Migraine onset at 1930 and took 2 x CAFERGOT and 2 x PADADOL and gave it 30min as suggested by Dr I Brown. Pain eased slightly and intensified after about 60min but was bearable. Took 1 x CAFERGOT and 1 x PRODEINE FORTE and 1 x ISOPTIN before bed.
 
14/07/2010 -- 0920 - 1005
9
CH at 0920. Took 2 x CAFERGOT and 1 x PRODEINE FORTE. Pain stayed for 45min. Took ISOPTIN twice during the day. Had 4 x beers in the evening.
 
14/07/2010 -- -