Public Cluster Headache Diaries
If you are a sufferer, then you know what these members are going through.
Intensity Scale (adapted from the 'Kip scale')
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Blog / Diaries
Click a member's name to view their Cluster Diary.
FIFI
| 14/07/2010 -- 04.45 - 05.10 |
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 4
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| I feel like I got off easy tonight. |
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| 14/07/2010 -- 05.35 - 06.30 |
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| 7
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| another ch that was there when I woke and meant I could not go back to sleep.some Ice some breathing some focusing some swearing and it finally lifted |
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| 14/07/2010 -- 0.20 - 0.35 |
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| 4
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| Suprisingly mild one |
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| 14/07/2010 -- 05.40 - 06.20 |
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| 8
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| this one lasted a bit and had a few ice picks of 9 I started rocking and moaning but it did resolve. |
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| 14/07/2010 -- 00.40 - 01.10 |
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| 6
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| The ice seems to be a double edge sword, sometimes it hurts more to have an ice pack on. |
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| 14/07/2010 -- 03.50 - 04.15 |
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| 7
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| again it hurts but I am in no illusion that they are just going to leave me. |
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| 14/07/2010 -- 07.45 - 08.10 |
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| 5
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| I feel like this one was my fault for sleeping too late .I am so tired I want this to end it is impacting on all facets of my life.
Some common ground would be great.
Face wash ,ice pack and sometimes I gently put 1 finger on my head and use it as a sort of visualisation to "drain" the pain out of my head some people have called it bio feedback. |
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| 14/07/2010 -- 03.45 - 04.09 |
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| 3
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| I was suprised at the long sleep I had I usually only get 1 or 2 hours. I think the morning cafergot has made a difference |
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