Public Cluster Headache Diaries
If you are a sufferer, then you know what these members are going through.
Intensity Scale (adapted from the 'Kip scale')
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Blog / Diaries
Click a member's name to view their Cluster Diary.
mr happy
| 14/07/2010 -- 17.30 - 18.00 |
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 3
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| Awesome, awesome night, got to stay up like a big kid. This cycle has been 6+ weeks, so im a hoping im on the turn, Fingers, toes, arms crossed. I know, i know, dont get my hope up to soon. |
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| 14/07/2010 -- 17.30 - 19.30 |
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| 4
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| How bad are we when we celebrate a 4, got to stay up like a big kid and watch tv. Hopeing im on the end of my cycle. Did i mention im the eternal optimist. |
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| 14/07/2010 -- 17.30 - 19.00 |
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| 5
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| great day apart from a bit of a beast attack, would really LOVE a Bourbon, but to hell with that, hurts 2 much 2 have any atm |
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| 14/07/2010 -- 17.30 - 18.30 |
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| 6
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| Strange, was chatting to an old mate on the phone when the shadows started, i know im being optermistic when i state that i just fought thru it and kept on chatting. it was difficult to keep going but i wasnt going to let it win, buggar me if i didnt kind of work my way around it, kept chatting and hitting me head and then realised that i had actually beaten 1, IF i get another tonight, im ringing him back lol |
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| 14/07/2010 -- 17.30 - 18.30 |
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| 3
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| All in all a good day, shadows constant from lunchtime on but all good |
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| 14/07/2010 -- 17.30 - 19.00 |
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| 4
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| Day off work, dosent feel like a holiday |
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| 14/07/2010 -- 18.30 - 20.00 |
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| 7
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| Rocked for a while till i passed out, not sure if the ice pack really works. Kids back from holidays |
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| 14/07/2010 -- 20.30 - 21.45 |
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| 5
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| Easy one, late start. Kids away |
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