If you are a sufferer, then you know what these members are going through.
0. No pain, life is beautiful
1. Very minor, shadows come and go. Life is still beautiful
2. More persitent shadows
3. Shadows are getting constant but can deal with it
4. Starting to get bad, want to be left alone
5. Still not a "pacer" but need space
6. Need to pace and move and drive your fist into your temple
7. Pretty bad, left feeling exhausted after it finally leaves.
8. Time to scream, yell, curse, head bang, rock, whatever works.
9. The "Why me?" syndrome starts to set in. Fear that it won't stop.
10. Major pain, screaming, head banging, Hospital trip. Depressed. Suicidal.
Click a member's name to view their Cluster Diary.
| 14/07/2010 -- 12:50am - overnight |
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 3
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| Was awakened again. I could feel the ch starting I took the panadol to see if it would stop it. I lay there and it didn't get any worse it seemed to remain on a constant pain level which wasn't all that bad it wasn't as bad as the night before and I soon fell asleep with the pain. This morning there were still some shadows but at the time of logging this I am pain free. |
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| 14/07/2010 -- 12:28am - 1:05am |
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| 3
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| Just when I thought it was over. After being asleep for just over an hour I was lying on my right side with the pressure of my face on the pillow I woke and felt the pain. I thought maybe it was due to the pressure and I was quickly fully awake. The pain was above the right eye and even a bit behind. It seemed to spread to the right side of the nose but was mainly focused above the eye. I at first lay on my back deciding whether to take the panadol before it built up. The panadol and water bottle was ready. After taking that I lay back down on my left side. It didn't build up any more it stayed constant with slight stabs and I waited to see if the panadol would kick in and as quickly as it started it went. I was surprised how quickly it went I was dropping off to sleep again nearly pain free. At some stage later I woke for a second and thought I felt it in the temple but not sure if it was a dream instead. |
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| 14/07/2010 -- 5:00am - 12:15pm |
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| 4
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| This morning it started up again on the crack of dawn. My right eye was slightly moist. This time it started in the right temple and across the top of the head but more to the right. It seemed to be more spread out and not as bad as last night but bad enough. It peaked around 7am and stayed there for a while before easing only slightly and staying at that level for much of the morning. I thought I would go for my usual walk later in the morning thinking that some exercise and the cold air through my nose would help but no just the same. I took a couple of panadol and wasn't confident that it would work and it didn't make any difference like pouring a cup of water on a bushfire. The ch continued on throughout the morning and ever so slowly it was easing until it finally went. At the time of logging this I am pain free except for some slight shadows. |
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| 14/07/2010 -- 12:10am - 1:20am |
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| 3
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| They're back yes the ch have started again after two years. I suspected them starting a few nights ago but dismissed the headache for anything as being a ch. Last night confirmed it. I awoke just after being asleep for an hour and there was the all to familliar pain on the right side just above the right eye wasn't bad but was getting stronger. As I lay there the pain increased and was constant. This lasted for about 20 minutes and then it started showing signs of easing but then came the stabs and at one stage rubbed the affected area. The stabbing was sharp and soon it radiated to the right side and upper lip and even fingers of pain sxtended to the back of the neck. I eventually fell back to sleep with the pain easing. I awoke an hour later to find the pain had nearly gone went back to sleep then awoke again pain free. When the pain had gone my right eye was watery so much so as the tears were starting to run out of the corner of my eye. |
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| 14/07/2010 -- 7:45pm - 10:30pm |
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| 2
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| I have been pain free for a few days now and even at night I have slept right through apart from the usual brief awakenings. However tonight while at a meeting a ch started and it was quite mild at first but enough to recognise what it was there and then it became more apparent. I felt more annoyd that it had returned when I was feeling so much better and I thought it was over. it wasn't all that bad not much in the way of stabbing pains but more of a dull ache and this continued for a few hours. Fortunately it had gone by the time I had gone to bed and I didn't have any shadows after that not even in the morning. So far I am pain free. If I should get any ch I will enter it into the log but for any days that are pain free there will be no entries. I hope tonight will be pain free. |
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| 14/07/2010 -- 3:45am - 4:00am |
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| 2
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| Woke briefly this morning and the pain was still there. it was much less and seemed to be the remains of the attack earlier. I was only awake for about 15 minutes and am not sure as to when the pain did go completely only to find when I woke later the pain had gone. |
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| 14/07/2010 -- 7:30pm - current |
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| 3
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| This evening another ch hit but not bad so far as it is still there. It built up more slowly this time which does happen and it doesn't appear to be getting any worse. It is stabbing in the usual places above the right eye, in the right temple and even behind the right ear. The stabbing seem to be more above the right eye. Have been advised to drink plenty of water. Hope this ch will go before I retire for the night and that I won't get another through the night and also over the weekend as I will be away until Sunday evening. |
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| 14/07/2010 -- 2:20am - 3:05am |
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| 1
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| Last night wasn't too bad either had a small ch but was able to get back to sleep as I was probably awake for a matter of minutes when I felt it and lay there wondering whether it would start up but it didn't do anything and so went back to sleep only to wake later to find no pain at all. Not uncommon with these cycles I have had in the past and I am hoping that I am now coming to an end of the cycle but not sure yet. Today pretty much pain free except around 8pm a 1 above the right eye and to the back of the head and near the right nostril so it's a little bit active but so far as I write not getting worse heres hoping. More of those flashes today but I am not entirely sure if it's related to ch this feature on the radio sounded interesting. I had a look on the net and auras are uncommon with ch but do happen. Hope tonight will be a good night. |
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| 14/07/2010 -- all day - |
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| 1
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| Had a pretty good night last night and today was pain free. Some slight shadows but nothing to be concern about. Yesterday the ch in the evening ended at atound 9:45pm. Also yesterday and on other occasions in this cycle I have seen some flashes expecially when I blink. I heard there was a report on the radio that these flashes occur with ch similliar to migraine and I wonder whether the two are related in some way. We don't hear people say cluster migraine so much. Since I didn't have a ch today I am hoping that tonight will be pain free. |
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| 14/07/2010 -- 12:30am - 2:30am |
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| 7
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| It was a bad one last night. Only had been asleep for over an hour and woke to the slightest onset of the ch. I stayed awake and soon it built up and the stabbing started and it wasn't occasional it was pretty constant. so restless lay on my left side then on my back didn't want to put pressure on the right side of my face although I could drive my fist through my head and grab what was causing it. Oh' it went on and on so restless couldn't escape it how long was this going to last for dare look at the clodk to much because I would know how much sleep I lost. The pain went to the right side of my head and then my right eye started to water and this time the tear ducts flowed. My right nostril started to block not become stuffy but acutally block and then the left nostril went the same way in sympathy and I had to resort to breathing through my mouth for it was hard to breathe through the nose but somehow the nose became clearer later in the attack. Great I can now breathe. The pain wasn't any better though. I gave this entry a 7 but the pain was much more. I turned on the radio and listened to some talk back because I wanted to get my mind on to something else. Ever so slowly I became more drowsy and I believe the pain had eased ever so slightly I turned off the radio it must have been somewhere around 2am. When I turned it on must have been just after 1am. I must have gone off to sleep from being drained and I had crazy dreams. I woke at 3:55am pain had eased and I went back into a fitful sleep only to see the light of dawn and the radio sounding at 6am. I have to go to work today. Didn't get much sleep at all. |
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| 14/07/2010 -- afternoon - evening |
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| 1
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| Well last night was the best night I have had since these ch had started. I woke as usual only for a minute and realized that there were no ch. went back to sleep and felt more refreshed this morning. Today has brought some mild and I mean mild ch not enough to worry about but enough to make me know that they are still there. This mainly occured this afternoon. I didn't put a specific time as they have been happening frequently. It is interesting how we tend to monitor our pain well I do and check where it is coming from and there is still that dread that a ch will hit just when we feel a slight shaddow only to find nothing and I can be pain free again and so that is what it has been like today. I felt more energetic and better in myself as I was at work. The pain which was very slight seemed to come from different areas. It didn't start above the right eye but could be felt in the temple or just below the hair line on the right of course and I seem to recall even on the right side of the lip so it was moving around. As I write it is still there but very mild and my right nostril is a little stuffy but I don't think it is from any ch. I hope that tonight will be another peaceful one. |
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| 14/07/2010 -- 12:50am - 2:20am |
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| 7
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| A complete onslaught. I was feeling so well yesterday and I enjoyed the evening just as I would and went to bed and to sleep for an hour and then suddenly woke and it was mild for a minute then BANG just above my right eye exploded into action and the searing stabbing continued on and on and on and on relentlessly for over an hour it then started to spread to the right temple and then behind the right ear the right nostril a little stuffy later in the period the right eye was moist and I have been told that when I get these my eye can look bloodshot and it must have been bloodshot then. It continued as I lay there. After all that time I went back to sleep don't know how probably from being drained of energy only to wake later with it still there but not as bad. Not a good night. |
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| 14/07/2010 -- 8:00pm - 9:30pm |
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| 7
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| Was feeling so good today with no shaddows. I went to a meeting and was still feeling well then it hit and quickly at that. Soon the sharp knives were stabbing above my right eye and it was starting to radiate to the fight temble and eventually to the top of the head and to the back of the head. somebody at the meeting knew someine who had ch and she recognised my bloodshot eye. She knew what to look for. This brings comfort as it indicates that ch can be visable to the outside world. The pain continued throughout the meeting with it's pulses that stab at random amongst a backdrop of dull pain. slowly the pain eased but still stabbed as the pain in the background eased. After such an attack there is a feeling of lethargy I say funny things I feel tired but can still carry on. I am now as I write this left with some shaddows as the main attack has gone. I hope that I have a pain free
night. |
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| 14/07/2010 -- 3:15pm - 3:30pm |
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| 5
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| The day was largly pain free apart from shaddows that occured frequently. I was resting during the afternoon and must have dozed off and the pain woke me to fully. It was very slight at first but then built up quickly for 15 minutes and ended just as fast as it came. I was reading outside in the sunlight and being outside made me feel better and it didn't make the pain any worse. For the rest of the evening I was pain free. This ch was a quick one as today was a double bunger. |
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| 14/07/2010 -- 12:15am - 12:45am |
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| 4
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| Had a pain free day except for a few shaddows later this evening. However all didn't start that well with an attack early this morning. It is those attacks during the night I don't like. I have heard about cold packs and so I put some frozen peas in the freezer to try in case I had an attack through the night. I guess I was hoping I would get an attack so I could try it out. I went to sleep and sure enough I woke with one starting. I applied the cold pack which in itself gives you a headache and pressed it against the pain area for a while and then went back to bed and the pain didn't progress at all it was as if it had been arrested and then it eased and I went back to sleep. Now I am not sure whether it was going to ease anyway or whether the peas did the trick but I will need to continue the experiment while the season is here. Now today I heard you can use the wheat pack so tonight I now have the wheat pack in the freezer the ones you heat up to relieve muscle pain. Well this will be used to relieve headache pain and I could even try heating it up to see if it works so tonight it could come again and I will try it. Now the pain level I mentioned was 4 but I could say it was more like 3.5 last night and so it really wasn't one of those blinders. Hope tonight will be pain free. |
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| 14/07/2010 -- 2:00pm - 3:05pm |
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| 4
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| This afternoon was the worst attack so far. In the early hours of this morning I did wake briefly to some shaddows but soon went back to sleep. Shaddows continued during the morning but only occasionally. However by 2pm it started quickly and the hot knives were stabbing. All ch occur for me on the right side of the head above the eye. As the hour progressed the pain was starting to radiate and could be felt mildly near the ear and into the mouth and nose area. It would throb at irregular intervals and the right eye started to moisen but not water. Soon the pain slowly subsided completely without shaddows and at the time of writing am pain free. |
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| 14/07/2010 -- - |
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