Showing all posts by "lil_fuzzy"
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Posted in Just a thought on 12 Sep, 2014 - 12:33 pm
Everyone go and get typhus!
jk 
Interesting though, would be interesting to hear from other sufferers who have had typhus (or other illnesses that seem to have changed the CH attacks).
Posted in Recently Diagnosed and worried on 12 Sep, 2014 - 12:31 pm
Wine is ok for some people. My husband's attacks are not triggered by wine.
Posted in Teenager that needs an answer! on 20 Jul, 2014 - 9:47 pm
Hi,
I'm actually not a CH sufferer, but I'm married to one.
Have you read through the CH symptoms? If they fit, maybe print out some info and take it to your GP? Or ask your GP for a referral to a neurologist.
Posted in New to the site on 16 Jul, 2014 - 11:11 am
Welcome to the forum
Posted in Teenager that needs an answer! on 16 Jul, 2014 - 11:10 am
Hi Craig,
welcome to the forum
Sorry to hear you're suffering. I haven't personally heard of head spins as part of CH, but maybe someone else has or knows something about it.
Posted in Here is the clip from The Project on 16 Jul, 2014 - 11:08 am
I was actually a little disappointed with it. They only focused on how much pain there is, but there was nothing about how or why.
Posted in Here is the clip from The Project on 15 Jul, 2014 - 10:09 pm
Thanks for posting that
Posted in Why we had to remove quiz! on 05 May, 2010 - 5:18 pm
Obviously he's in it for the money (and he must be making a lot to bother hiring lawyers etc) and not to help people.
Posted in Latitude Correlation th CH on 02 Sep, 2009 - 3:45 pm
Well‚ my partner was in remission for about 2-3 years‚ then in 2006 he came to see me in Norway where I was living a the time and 2 months later his CH were back.
He returned to Brisbane‚ Aus‚ after a week of CH and they lasted another 3 weeks and haven't been back since.
Before that‚ when they were chronic for him he lived down in Victoria.
So yeah‚ I suppose you could speculate that there is a connection‚ but we would require a lot more proof before saying anything for sure.
Posted in Untitled on 13 Jul, 2009 - 12:04 am
Welcome to the forum
Posted in Untitled on 26 Jun, 2009 - 9:12 pm
Just because it's rarer in women than in men‚ doesn't mean you don't have CH.
Try the cluster quiz on the left here‚ that will give you some indication. We can't diagnose you‚ as we are not doctors and we're not seeing you in person‚ but by doing your research you should be able to determine whether or not you have CH.
Posted in Untitled on 07 Jun, 2009 - 10:22 pm
Yay
Posted in Untitled on 22 May, 2009 - 10:51 pm
Welcome to the forum
Posted in Untitled on 21 May, 2009 - 11:11 pm
They're not predictable‚ but you can suddenly go into remission for several years for no apparent reason. My partner used to get them every 3 months or so for years and years‚ then they suddenly stopped and he was in remission for 3 yrs‚ had a bout that lasted for a month‚ and has now been in remission for nearly another 2 years.
So they might go away‚ or they might not..
Posted in Untitled on 18 May, 2009 - 11:30 am
That's an interesting thought..
My partner is in remission now‚ but he occasionally gets migraines (once every two months or so) and he gets a big blind spot about an hour before the migraine starts‚ so when he gets the blind spot‚ he drinks two large glasses of water‚ and it usually aborts it‚ or makes it so mild it hardly even bothers him.
Not sure how it works‚ or even what they theory behind it is..
Posted in Untitled on 16 May, 2009 - 8:19 pm
Cool
Posted in Untitled on 15 May, 2009 - 11:42 pm
It would be good if this site poll sufferers about their alergy or lack of.
I didn't mean regular allergies‚ I mean stuff you are allergic to and don't know it‚ or a combination of allergies‚ where the symptoms manifest as CH. A poll on allergies would be useless for that.
However‚ I've been trying to get people to try a healthy 'raw' diet to see what it would do for their CH‚ as such a diet has been known to cure many other conditions‚ such as diabetes‚ migraines‚ high blood pressure etc.
I haven't gotten any volunteers yet tho‚ I think people just don't wanna change their diet‚ even if it means fixing CH...
What I would suggest for anyone who is interested‚ is to go off dairy‚ gluten‚ caffeine and alcohol‚ and eat lots of raw veggies and fruit every day‚ as a main part of their diet‚ or even excluding everything but raw food (which includes some types of natural yogurt and fermented yogurt).
Anyone wanna give that a try‚ please post your result in the forum‚ as I'd love to see how that goes.
Posted in Untitled on 13 May, 2009 - 2:48 pm
Another thing that works for some people is the water treatment‚ where you have a big glass of water once an hour.
But personally I think the cause of CH is an allergic reaction to something in your diet; gluten‚ dairy‚ sugar‚ preservatives‚ in combination with a lack of healthy food‚ such as veggies and fruit on a daily basis.
Posted in Untitled on 07 May, 2009 - 9:18 pm
CH is very unpredictable and can change at any time for no apparent reason. They can go from being chronic to being gone for several years‚ or vice versa‚ so no one can really say what's going to happen.
But my partner and I do believe that eating healthy food can greatly reduce the frequency of CH‚ or get rid of them altogether. It was mentioned in another thread here recently‚ I'll have to see if I can find the link.
Basically you'd cut out coffee‚ bread‚ milk‚ and other processed food‚ and eat a LOT of fruit and veggies every day (more veggies than fruit)‚ and drink mainly water.
Posted in Untitled on 07 May, 2009 - 3:14 pm
Welcome to the forum
Did you take the cluster quiz which you can find on the left of the page? That could give you some indication.
And yes‚ it is possible that you are having mild CH‚ and in that case you are very lucky
Posted in Untitled on 04 May, 2009 - 7:48 pm
I reckon diet is the answer. Different people are allergic to different things‚ and that's why no one knows what causes CH. But now we've realised that the only common denominator is that everyone eats processed food. Cut out the processed food‚ and you'll be healthier‚ your body will go back to its natural state‚ which is a 99% disease free state.
This will not only cure CH‚ but also reduce obesity and its related illnesses‚ reduce the risk of most forms of cancer‚ lower blood pressure (Roger's mum went on a similar diet and two weeks later reported that her blood pressure was lower than ever and her dr wanted to know what she'd been doing) etc etc.
Roger and I have been eating healthy for a while now‚ and have noticed that we don't get colds as often as before‚ and even when we do‚ they are much milder and pass more quickly than before.
Posted in oxygen availability on 14 Apr, 2009 - 2:29 pm
Hi and welcome to the forum
Not sure how you go about getting oxygen‚ but I know some medical centres let you come in during an attack and get oxygen.
There are quite a few posts on oxygen tho‚ so have a look around the forum and see what you can find. And I'm sure one of our oxygen gurus will be able to give you a better answer
Posted in Untitled on 14 Apr, 2009 - 2:27 pm
I'd say the CH is triggering the sinus problems‚ not the other way around...
But you would know‚ what comes first when you're due for another bout of CH - CH or sinus problems?
Spose the operation is worth a try‚ but because it's a known misdiagnosis and there is no known cure for CH‚ I'm not sure I would bother personally...
Oh and welcome to the forum
Posted in Untitled on 09 Apr, 2009 - 11:47 pm
Welcome to the forum‚ and sorry your ch is back...
My partner used to get them quite regularly‚ and then they were suddenly gone for 4 years‚ then back for a month‚ and now gone again for 2.5 years. Quite unpredictable.
This section seems to be the right one for this post
Posted in Untitled on 26 Mar, 2009 - 3:48 pm
Welcome to the forum
What do they think the anti psychotic medication is gonna do?
Posted in Untitled on 19 Feb, 2009 - 1:34 pm
This is quite interesting. I read a book called Raw Energy a while back‚ which advocates a diet consisting of not much more than raw fruit and veggies (as well as some cheese‚ fermented yogurt etc) and it was saying that this diet has been known to fix people who get migraines and various other conditions generally believed to be uncurable.
I asked in the forum a few months ago if anyone would be interested in trying this for CH‚ but didn't get much response.
But it appears you are now doing a similar diet and experiencing relief. I would think this is because humans are supposed to eat a diet consisting mainly of raw fruit and veggies‚ and the reason for a lot of common illnesses is the amount of processed unhealthy food that most people stuff themselves with these days. So reverting to the diet our bodies were meant to eat‚ also reverts our bodies back to a healthier state.
Thanks for sharing that
Posted in Untitled on 15 Feb, 2009 - 5:03 pm
A friend of a friend who gets both migraines and CH mentioned that she injects toradol and maxalon at the same time and finds this works 7 our of 10 times‚ so just wondering if anyone here has tried them?
Posted in Untitled on 12 Feb, 2009 - 12:41 pm
Thanks for the tip on where to get them‚ and welcome to the forum
So you can legally buy the seeds/spores. But does that mean they keep track of the people buying them so they can check on them later to see if they have kept them until they become illegal?
Posted in Untitled on 05 Feb, 2009 - 11:29 am
Yes‚ it's always good to know what's going on‚ especially because you can now attempt some treatment methods. I would suggest the water treatment (link to the left) to begin with‚ just because it's free and you don't need a doctor to get started. O2 is very efficient too‚ but you need a doctor for that.
Posted in Untitled on 01 Feb, 2009 - 10:12 pm
The reason triggers for CH are not listed one this site‚ is because there are no definite triggers. What triggers it for you may not trigger it for anyone else.
My partner can have all of the 'usual' triggers all he wants - chocolate‚ alcohol etc‚ and they don't trigger CH for him‚ even tho they are known to trigger CH for *some* people.
A 'trigger' could be anything really‚ it all depends on the individual. That's the thing about CH‚ it's always different from person to person and no one knows for sure what causes it in the first place‚ or what triggers it.
Posted in Untitled on 01 Feb, 2009 - 5:12 pm
Welcome to the forum.
I assume you mean O2‚ not CO2 If you've tried all the medications listed on this site and none of them do anything‚ then I don't see what a CH specialist will be able to do. I've never heard of going through surgery to fix CH.
Have you tried the mushrooms and water treatment listed on this site? A lot of people find that they work well‚ so they are worth a try.
Posted in Untitled on 22 Jan, 2009 - 11:06 am
Haven't heard of people using inhjections‚ but nasal spray and tablets are very common. Can prolly get the injections as well‚ if you ask for it.
The trouble with the nasal spray is that there's a limit as to how many doses you can get in a certain period of time‚ and for most people with CH it's not enough.
Dunno if it would be the same with the injections‚ but I'm sure someone else will know.
Posted in Untitled on 22 Jan, 2009 - 10:56 am
Fascinating. Never heard of it myself‚ but maybe others have?
Posted in Untitled on 17 Jan, 2009 - 9:37 pm
Sorry to hear what you are going through
Posted in Untitled on 09 Jan, 2009 - 4:13 pm
Welcome to the forum‚ and sorry to hear what you are going through
Yes‚ you are right‚ there's no info on triggers on the forum‚ because there are no definite triggers for clusterheadaches. There are some things which trigger an attack for some people‚ such as sleep‚ chocolate and alcohol‚ but a lot of people find that they can eat and do anything they want without triggering an attack‚ and the attack will come at its usual time every day‚ despite them eating chocolate and drinking alcohol.
Posted in Untitled on 08 Jan, 2009 - 1:52 am
Hello and welcome to the forum
You're in Murrumba Downs too
My partner gets CH but is currently in remission. He went to the doctor at Castle Hill medical centre for an injured elbow a while back‚ and told the dr he gets CH‚ and the Dr said when he gets them again just come in and they'll give him O2. So that would be just up the road for you‚ if you wanna try O2.
Posted in Untitled on 30 Dec, 2008 - 12:12 am
In fact it makes me wonder if I might be finally be growing out of them??? Has anyone else ever had this happen?
I've heard of them changing from chronic to irregular and vice versa‚ and also from occuring once or twice a year and then not occuring for several years.
It doesn't seem unusual for them to change.
Posted in Untitled on 30 Dec, 2008 - 12:09 am
Never heard about that. Let us know how you go with it.
Posted in Untitled on 30 Dec, 2008 - 12:09 am
Oh no
Welcome to the forum tho You'll find lots of useful advice and suggestions on treatment
Posted in Untitled on 28 Dec, 2008 - 9:59 pm
Welcome to the forum
12 hour attacks
How are you treated at the moment? Oxygen is the most effective treatment among members on this site‚ but there are many other treatments to try‚ which you can read more about by clicking the links on the left.
The headaches inbetween clusterheadaches could be shadows as mentioned‚ but also tension headaches. As you can imagine that kind of pain would make you tense up. My partner has nearly constant tension headaches inbetween ch‚ but he says he much prefers them to the ch ones‚ so he doesn't really complain about them.
Posted in Untitled on 19 Dec, 2008 - 1:39 pm
On CH and pain‚ anyone that gets CH and hasn't killed themselves has a high tolerance to pain.
Yep‚ my partner doesn't feel pain at all (it seems).
Posted in Untitled on 14 Dec, 2008 - 4:59 pm
well‚ you & Roger totally direspected me first by invalidating what I was going through and what I was feeling.
So by asking a question about your post because it wasn't entirely clear‚ I'm disrespecting you and invalidating your feelings?
This is disrespectful:
Sorry to hear about your pain‚ but do you get migraines or cluster headaches? Or both?
??
Bit sensitive aren't we?
We get people come on here with headaches but with symptoms which don't fit CH at all‚ so when someone describes symptoms which don't fit‚ we ask them what they mean and if they've been properly diagnosed. If you have a look around the forum you'll see you're not the only one who's been told their symptoms sound more like something other than CH.
Obviously someone who's had nothing worse than migraines cannot imagine what CH are like‚ and so they might describe them as being really bad‚ while someone who's has CH will describe migraines as not bad at all.
Posted in Untitled on 12 Dec, 2008 - 8:25 pm
Grow them yourselves and tell no one? If you don't tell anyone‚ then no one will know‚ but if you start telling people you have these illegal things growing for medicinal use‚ then word is bound to get out sooner or later.
why are they illegal anyway?
Posted in Untitled on 09 Dec, 2008 - 3:36 pm
Hah‚ if it guarantees 100% treatment I'd say it's a scam. Nothing is 100% in medicine. You might get treatments that work 99% of the time‚ but never 100%. Just saying that is totally unprofessional.
Posted in Untitled on 04 Dec, 2008 - 11:34 am
Thanks for the tip‚ that will prolly be useful to some of our members
Posted in on 17 Nov, 2008 - 11:34 pm
Hey Gus‚ welcome to the forum
Posted in Untitled on 15 Nov, 2008 - 2:00 pm
Imigran is also a migraine medication‚ in fact the leaflet on imigran does not mention cluster headaches at all‚ but it does say
Your Imigran nasal spray does not work in other types of headache which are not a migraine.
Which is clearly not accurate‚ because it does work to abort ch attacks for some people.
I'm not familiar with Topamax‚ I'm just saying that because it's used for migraines doesn't mean it can't be used for ch.
You can look up different types of medication here:
http://www.mydr.com.au/drugs/drugs.asp
Posted in Untitled on 07 Nov, 2008 - 11:22 am
You could try the cluster quiz here:
http://www.clusterheadaches.com.au/quiz.php
It will tell you the % chance of you having clusterheadaches. Of course it will never replace a doctor‚ but it can give some indication.
Posted in Untitled on 04 Nov, 2008 - 4:15 pm
The article about oxygen treatment says
A regulator that will deliver up to 15 litres per minute (10-12LPM is usually enough‚ less will not be as effective).
So maybe try a higher dose of oxygen and see if that works?
Also‚ you might wanna try water treatment‚ which you can read about here:
http://www.clusterheadaches.com.au/water.php
That's always worth a try‚ because it's free and the only side effect is that you need to go the toilet a lot
Posted in Untitled on 04 Nov, 2008 - 4:13 pm
Hi‚ and welcome to the forum
For many of our members oxygen treatment has proved very effective. You can read more about it here:
http://www.clusterheadaches.com.au/oxygen.php
Posted in Untitled on 01 Nov, 2008 - 4:50 pm
Sorry to hear about your suffering
What treatment are you currently trying‚ and have you looked the treatments described on this site? O2 treatment seems to be particularly efficient...
Posted in Untitled on 28 Oct, 2008 - 11:50 am
You have to drink so much water and fluid because your body gets really dehydrated after treatment and when it is trying to heal.
Maybe it's all the water you had that made your ch better? Water treatment has proved effective for a lot of people.
Posted in Untitled on 20 Oct, 2008 - 11:43 pm
When my partner injured his elbow a few months back he went to a GP at Castle Hill medical centre in Murrumba Downs‚ and when the GP asked about other medical conditions he said he also gets ch‚ and the GP told him next time he gets them come in and they'd give him O2.
So he seemed to know what it was‚ but my partner is in remission so he's never really tested the GP's knowledge about it‚ but just the fact that he knew about them and how to treat them is a good sign I'd say.
Can't remember his name unfortunately...
Posted in Untitled on 15 Oct, 2008 - 10:24 pm
I wouldn't say my partner is having a walk in the park when he has ch. We're talking passing out from the pain here.
He also gets migraines which has completely different symptoms and which he personally descibes as 'nothing compared to ch'.
So I find that comment a little bit disrespectful. Just because they don't vomit like you do doesn't mean they don't go through hell.
Posted in Untitled on 15 Oct, 2008 - 10:20 pm
My partner quit smoking about 5 yrs ago. He was in remission when he quit and nothing changed.
Posted in Untitled on 06 Oct, 2008 - 3:39 pm
You could prolly google it and find a store that sells them online too...
Posted in Untitled on 15 Sep, 2008 - 9:22 pm
Everything's worth a try with CH I guess. Good luck finding some
Posted in Untitled on 14 Sep, 2008 - 11:56 pm
Hello and welcome to the forum
I've deleted your other post because it was identical..
Never heard of using this mushroom.. do you know any sites about it? Or where did you heard about it?
Posted in Untitled on 12 Sep, 2008 - 12:28 pm
Welcome to the forum
Posted in Untitled on 10 Sep, 2008 - 9:57 pm
I am wracked with up to 6 migraines a day
Sorry to hear about your pain‚ but do you get migraines or cluster headaches? Or both?
What you describe about being sensitive to light sounds like migraines to me.
Posted in Untitled on 08 Sep, 2008 - 12:35 pm
Where's the pressure part? They're just normal pushups aren't they?
It's good if it works for you‚ and it might work for other people as well‚ but a lot of people will not be able to do pushups during an attack‚ so that's a bit of a bummer.
Thanks for the suggestion tho
Posted in Untitled on 27 Aug, 2008 - 5:07 pm
My partner used marijuana onces too. He said it didn't remove the pain but it made him not care about it as much. He has been unwilling to use it more than that one time tho..
Posted in Untitled on 27 Aug, 2008 - 5:05 pm
I wouldn't worry about it too much. I used to work at a nursing home where some of the residents used to get aspirin every day as part of their medication‚ and they were all fine.
So it's a possibility that it could lead to health problems‚ but doesn't happen to everyone. Just something to be aware of.
Posted in Untitled on 26 Aug, 2008 - 11:31 am
Welcome to the forum
And sorry to hear about your suffering.
Posted in Untitled on 26 Aug, 2008 - 11:29 am
That's interesting. Usually over the counter painkillers do absolutely nothing.
But like you said‚ it's not particularly healthy. I think you're not supposed to take them for more than 10 days in a row‚ as they can cause stomach ulcers and liver problems.
Posted in Untitled on 19 Aug, 2008 - 11:15 am
The forum has actually been quieter than normal ever since around March or so. I assume it's because a lot of people are in remission‚ but it doesn't seem to be linked to winter.
Posted in Untitled on 09 Aug, 2008 - 9:43 pm
Hi‚ and Welcome to the forum both of you
Posted in Untitled on 17 Jul, 2008 - 11:57 am
Yay
That's great
Posted in Untitled on 13 Jul, 2008 - 8:57 pm
No worries
Posted in Untitled on 13 Jul, 2008 - 1:21 pm
Imigran nasal spray is very effective when you feel the CH coming on‚ and for a lot of people it will abort the attack within minutes... Would suggest trying it if you haven't.
Posted in Untitled on 13 Jul, 2008 - 1:20 pm
also medication for other headaches will never work for CH and visa versa...
That is not entirely correct. Imigran is a migraine medication‚ but is usually very effective against CH.
Kirsty‚ it sounds like what you have are migraines‚ not CH. CH is always accompanied by swollen watery eye‚ and without that I don't think it can be diagnosed as a CH.
Posted in Untitled on 12 Jul, 2008 - 10:00 pm
Spray?
Posted in Untitled on 12 Jul, 2008 - 9:58 pm
Welcome to the forum
How are you treating them at the moment?
Posted in Untitled on 11 Jul, 2008 - 5:25 pm
Yes‚ cycles can change. They can be chronic for a long time‚ and then stop and only come once a year‚ or vice versa. Seeing as there are no definite triggers (what triggers them for one person might not trigger it for anyone else) it's difficult to say what changes to make to avoid them becoming worse. Obviously you'll want to avoid things which trigger them for you‚ but there's still no guarantee that they won't get worse. Or better.
Posted in Untitled on 18 Jun, 2008 - 3:54 pm
Hi Geoff‚ welcome to the forum
Just curious‚ if port normally triggers a headache‚ why would you risk drinking it?
Posted in Untitled on 14 Jun, 2008 - 10:15 pm
Hi‚ and welcome to the forum.
Have you suggested to your doctors that you might be having cluster headaches? What are your symptoms?
Posted in Untitled on 13 Jun, 2008 - 11:59 pm
Hi Keriblu and welcome to the forum
Thanks Barry and David for the tips on the oxygen.
Posted in Untitled on 03 Jun, 2008 - 10:27 am
Good to hear
Posted in Untitled on 01 Jun, 2008 - 2:47 pm
I do get annoyed when someone brings up the bible as if it is a factual tome.
Why? Does it annoy you when people refer to the theory of evolution as a proven fact?
Most Christians believe that the Bible is directly inspired by God‚ and therefore the truth. Many non christians believe that the theory of evolution and big bang is a proven fact and the absolute truth‚ completely ignoring the flaws in the theory of evolution. Which is what it is. It's a theory‚ just like Creation is a theory.
People have different beliefs‚ there are many things about both the Bible and theory of evolution that do or don't make sense. They are both just theories. To get angry because someone has chosen to believe the truth is something other than what you believe is arrogant. It's like saying you have discovered the absolute truth and everyone else is wrong.
Posted in Untitled on 31 May, 2008 - 10:49 pm
Wow‚ that's fascinating. Hope they stay away.
Posted in Untitled on 19 May, 2008 - 11:35 am
Welcome to the forum
Posted in Untitled on 08 May, 2008 - 10:48 pm
Flickering lights sounds more like something you'd get with migraines‚ not that I'm an expert on migraines. But my partner has had migraines as well as ch...
Posted in Untitled on 08 May, 2008 - 4:21 pm
So you get an attack if you don't sleep‚ and you also get an attack if you do sleep. Can't win can ya?
Posted in Untitled on 08 May, 2008 - 4:19 pm
That's interesting. Maybe you don't need to get flushed‚ maybe a change of diet is all it takes. Wouldn't that be wonderful
Posted in Untitled on 05 May, 2008 - 10:47 pm
Sorry to hear that
Posted in Untitled on 03 May, 2008 - 12:17 pm
Could be really severe migraine or mild ch.. difficult to tell.
Posted in Untitled on 30 Apr, 2008 - 11:17 pm
I'm reading this very interesting book called 'Raw energy' which is written by Leslie and Susannah Kenton. It's basically saying that anyh processed food is bad for you‚ but a diet consisting of 75-100% raw fruit and veggies has been known to cure cancer‚ diabetes‚ arthritis and migraine‚ among others.
So I thought it might be an interesting experiment if someone currently suffering from ch would try it‚ and see if there's any improvement.. Anyone up for it?
Posted in Untitled on 30 Apr, 2008 - 10:45 am
Oops I missed your apology. Sorry
My partner and I believe in completely different things and have long discussions about god and the universe etc‚ so no I have no probs with anyone believing in different things and telling me they think I'm wrong‚ as long as they can handle if when I tell them I think they are wrong too. And as long as people stay on topic and don't get rude about it. I never get rude when I ask people about what they believe and why‚ so I would expect the same thing from them.
Posted in Untitled on 29 Apr, 2008 - 2:51 pm
Saintpeter‚ you can disagree all you want‚ I just don't think calling the Bible 'irrelevant' is very nice.
Posted in Untitled on 27 Apr, 2008 - 2:25 pm
Let us not be abusive of other people's religion. There is no definite proof of how the world was created nor has it been proven that there is or isn't a god. No one can be absolutely certain of anything‚ we can only make up our mind of what we *choose* to believe in.
Posted in Untitled on 27 Apr, 2008 - 12:04 am
Never heard of that one before.. are you sure your lights are not really flickering?
Posted in Remission? on 24 Apr, 2008 - 10:33 am
Wow‚ I guess he's been really lucky then. He used to get them alot for about 10 yrs‚ then they suddenly went and stayed gone for 4 years..
Posted in Untitled on 18 Apr, 2008 - 11:04 pm
Hi‚ and welcome to the forum
I can see why you would think it's of a spiritual nature. They are truly evil‚ I don't think anyone would disagree with that. However‚ regular medications or other forms of treatment do work for most people‚ so it's clearly a physical condition.
Your wife is lucky to be in remission. How long ago did she have them?
Posted in Remission? on 16 Apr, 2008 - 9:52 am
I was chatting with my partner last night and he's been in remission for 1 1/2 years‚ and before that for 4 years‚ and he was saying that they always come back‚ to which I replied 'you never know‚ you might be in remission for the rest of your life'
So just wondering‚ what's the longest anyone has been in remission?
Posted in Untitled on 31 Mar, 2008 - 12:23 pm
Welcome to the forum
Posted in Untitled on 31 Mar, 2008 - 12:22 pm
Good to hear it's getting better Thanks for sharing.
Posted in Untitled on 28 Mar, 2008 - 12:25 pm
My partner was given cafergot‚ and from what I understand‚ it's a prophylactic that you take every day and hope it prevents an attack. It doesn't actually stop an attack once you get one.
Posted in Untitled on 25 Mar, 2008 - 2:05 pm
Yeah‚ the water treatment is rather interesting‚ and seems to be working for you as well. Thats good
Sure hope your daughter doesn't get ch. I thought it wasn't hereditary?
Posted in Untitled on 24 Mar, 2008 - 9:53 pm
Welcome to the forum
Sorry to hear about your attacks.. is this your first time experiencing ch?
Oxygen treatment seems to be the most effective treatment among the members on this site. There's a link to the left called O2 treatment where you can read about it. Some medical centres let you come in and have some oxygen when you have an attack.
Posted in Untitled on 18 Mar, 2008 - 10:47 am
Yeah‚ I meant leave it to others in here to tell you about it‚ I don't consider myself an expert‚ as I'm not a sufferer‚ I'm just living with one.
Posted in Untitled on 18 Mar, 2008 - 12:28 am
Hi and welcome to the forum
Never heard of the paralysis thing myself‚ but I'll leave it to the experts to tell you whether or not it could be connected to the CH.
Posted in Untitled on 10 Mar, 2008 - 8:58 pm
Oxygen seems very effective. Should try to spread the word about it.
Posted in Untitled on 10 Mar, 2008 - 8:57 pm
Kewl‚ thanks for posting that‚ that will prolly be helpful to a lotta people
Posted in Untitled on 06 Mar, 2008 - 4:46 pm
Hi‚ and welcome to the forum
There's lots of info on clusterheadaches on this site‚ have a read‚ and you'll learn everything you need to know.
They might stop for a while and then might or might not come back‚ or they might go chronic. No way to tell.
Posted in Untitled on 06 Mar, 2008 - 4:44 pm
That makes sense. Thanks
Posted in Untitled on 01 Mar, 2008 - 12:10 pm
That would be good‚ thanks
Posted in Untitled on 28 Feb, 2008 - 10:13 am
kirstigirl81‚ have you tried oxygen treatment? It seems to be the most effective among the members on this site‚ and I doubt it would hurt your baby.
Posted in Untitled on 25 Feb, 2008 - 9:14 pm
How does amphetamine treatment work?
Posted in Untitled on 23 Feb, 2008 - 12:40 am
Excercise is completely irrelevant to the attacks‚ so do any excercise you feel like
Posted in Untitled on 23 Feb, 2008 - 12:39 am
Hello‚ welcome to the site
Posted in Untitled on 23 Feb, 2008 - 12:34 am
Some medical centres let you come in and have some oxygen when you have an attack.
Posted in Untitled on 23 Feb, 2008 - 12:33 am
Been quiet in here lately. Must be good I guess. No one currently suffering