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Showing all posts by "Pluto"

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Posted in New Treatment on 18 Jul, 2016 - 3:20 pm

Just watched that Leanne. What a wonderful outcome. Really happy for you. While the Topamax has stopped working for me, its the little things like the victory for your son that keeps sufferers heads up. I know migraines can be painful and was so glad a boy his age didn't have this Cluster demon to deal with. Now he doesn't have any pain and hopefully can stay that way. Remarkable job by the team there and good for you and your family.
I wish you and him continued success every day.

Posted in New Treatment on 05 Jul, 2016 - 10:00 am

Hi everyone. I am 42 and have suffered for 23 years with CHs. Tried every treatment under the sun except surgical treatments. I recently moved pharmacies and my new pharmacist almost fell over when I told him I had never heard of Topiramate as a CH preventative. Although it is primarily an Epilepsy and Migraine treatment, it was almost bomb proof for CH as well. So I go off to the Doctor and get on this Topomax and incredibly, for the first time in 23 years, it stopped the CHs cold in 48 hours!!! I know we are all different but I urge anyone to give it some thought and possibly a go. Its the first thing I can say that actually does work and keeps working.
I wish everyone well and pain free days and nights.