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Showing all posts by "Bob"

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Posted in Winter clusters on 15 Jul, 2019 - 11:15 am

I seem to get my bouts starting in June. I have lived in Perth, Melbourne, Darwin and now in Malaysia and doesn't seem to matter where i live they start in June. I usually have a 3 week bout but now in my 4th week sad


Posted in Treatment ECH on 13 Jul, 2019 - 5:00 pm

Hi All,
I am new to this forum but not new to the CH sad. I have been suffering for a number of years now., Basically every two year during month of June I will start a bout which normally goes for about three weeks. I think you all know the rest it just sux.
I have started to do a lot more research now as I just do not seem to be able to manage as well as I used to. I found today some information that FDA in USA approved Emgality (galcanezumab - gnlm). as the first and only medication for ECH. I was wondering if anyone has tried this? and if so how did it go?


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