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Showing all posts by "johnofbham"

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Posted in Untitled on 11 Jan, 2011 - 9:27 am

Thank-you. Have seen several neurologists but they seem to "run their course" and what was once somewhat manageable now seems to be clouded and ol Dr. Canofcorn just never seemed to get CH's in general and I am going to see the first doc that originally diagnosed me and went through the steps with care.. An mri might be in order after so long as you suggest. I will get back..


Posted in Untitled on 10 Jan, 2011 - 4:27 pm

Started with the gurney bending type (always rightside eye,ear, base of skull) back in 1993 and only shots could give me relief from the blindsidings. Those headaches became predictable if barely tolerable but I have only had a few pain free years to date.. Now I have daily recurring CH's multiple x a day and have recently started experiencing numbness to my left limbs, dizziness, even lost feeling completely in my leg and collapsed as if it weren't there. My blood pressure is always good and CT scans have always came back negative. I just don't know what to do anymore as I can't find the answer because what always seemed to be identifiable now seems to have morphed into something of a mystery that worries the hell out of me which as you know only worsens the cycle. I recently had outpatient surgery on my sinuses, had my vision checked and a full work-up at a GP and there seems to be no indication for the cause for these "spells".I thought perhaps someone here might know of someone or have been through something similar that could put me on the right path as I am at a loss.