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Showing all posts by "Kirkulles"

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Posted in Fitness levels on 09 Jul, 2012 - 10:39 am

Hi Breakingpoint ,
I currently 31 and been in pretty good shape my whole life regularly go to the gym 6-7 times a week for 1-2 hours , I'm also very active outdoors etc . I have never smoked and not a regularly drinker only a special occasions or social now . When I was in my early 20s I did drink a bit more and tried a few party drugs but nothing too dangers and not regularly .
I have suffered CH from late teens only about 4-5 years ago find out about CH .
I cant honestly say that I have noticed a difference been fit has made to my CH . I recently began another cycle and had some shockers 8-9 for a hour a few times a day . However I have noticed that stress seems to affect them . If regular fitness lowers your stress level may help .
During the end of my last cycle I worked shift work in a very high stress job in aviation in operations . The job was very hectic and very stressful working full speed the entire shift . I was also in a very stressful marriage that wasnít working . About 2 years ago Marriage end and I left my job in aviation to find a more regular hour job .
I have been a lot less stress full since and was 2 years CH free , I have been doing a regular hour job now and the stress levels are a lot lower . I have recently had the CH return but they are not as regular and not as many a day as before . I still get an 8 in pain CH but not 4-5 times a day as before .


Posted in CH back again after about 2 years free on 04 Jul, 2012 - 11:56 am

Thanks for the info ,
I have also found aspirin hit and miss as well , If i get the CH early enough durring the shadow apsirin work to stop them coming on . If not as you said it does nothing and have to wait for the CH to go away . I was only going on what the GP said about aspirin and the blood thin properties for CH but the GP wasnt very well informed about CH .

I again had another 3 CH today ,

1200 am about a 6 in pain last 45 mins or so . Aspirin did little to help .

0400 am about a 7 to 8 in pain last 45 mins again very painful right eye ,sore neck , jaw and teeth running nose etc .

0630 woke up for work could feel a shadow of one and shadow last all the way the walk to work ,
0740 turned into about a 6 just before got to work purchased a redbull for the caffeine
745 after drinking the redbull turned into a 8-9 in pain couldnít sit still lucky no one else was in at yet pain was very intense but also short only last 15 mins ,
0805 - relief pain completely gone .

I have been to two different GPs in the past about them both have prescribed different medications , one was caffeine tablets and blood pressure tablets .
The second was really strong anti inflammatory tablets was a hit and miss with if they worked or not but also could make me feel very nauseas if I had not eaten much .

Both GPs new little about CH and one even got me to breath on oxygen when I visited him for 30 mins even though I wasnít currently having an attack , I tried to tell him thatís was only good during an attack .

I can see that the GPs in the Perth area have been updated since my last visit to this site , will try to make an appointment with one of them to try some different medication .


Posted in CH back again after about 2 years free on 02 Jul, 2012 - 2:45 pm

I have suffered from CH for about 16 years now and recently had 2 years free of them . Unfortunately they have returned again and pretty bad with a regular sort of timing . I have been getting at least 3 a day just about every day of the week sparing a day free here and there . At the moment Iím getting about 3 at night which wake me from deep sleep at regular times 1200am , 3am and 6 am , the HC lasting about 45 mins to an hour . I have also noticed that from them now get a really stiff neck probably from the pain and my muscles tensing . Not to mention the pain in the eye and right jaw and teeth .
I have tried several different types of medication from doctors etc none seem to be any good at stoping them or reducing the pain .
The best method I have found is when I feel a twinge of them coming on is to take two disprin to thin my blood and I also use a migraine stick which contains lavender and other oils which apply to the side of my temples and back of the neck gives a cooling effect and helps relax . I find if I get them early enough with this method it seems to stop them coming on , but if I donít it does little to stop them or reduce the pain .
Just wondering if there had been any new advancements since in treatments since I lasted visited this site .


Posted in LSD health benefits on 10 Nov, 2009 - 10:30 pm

Though some of you's might be intrested in this article

http://www.guardian.co.uk/science/2009/oct/23/lsd-ecstacy-health-be
nefits


Looks like there doing some more reshearch on the postive effects of the drugs with dealing with various medical conditions including Cluster Headaches .
I have read on other Cluster Headache sites that LSD is ment to be the best treatment and can stop headaches in there tracks .
Lets hope they get some positve results from these studies that can help with these


Posted in Untitled on 13 Sep, 2009 - 12:16 pm

Hi Fifi ‚
I was in the same boat suffering from them for over 10 years undiagnosed . Just though or told they were headaches or migrians .

Has been a pretty bad year for me as well since about june as well . Have had a few day breks from them here and there a a week or more but they are still going on and had a blinder only yesterday at the shoping center .

I would also normally only get mine on the left hand side ‚ but this year after a in June after a the first couple of weeks they stopped for a week or more then they have started up on my left hand side now which seems to be a lot worse .

Was on Cafergot recently but didnt seem to help much hopefully helps with yours . Now am Indomethacin tablets ( whcih i used once so far and has helped) and Prednisolone tablets which Im yet to try .

Have found this site quite helpfull


Regards
Kirk


Posted in Untitled on 08 Sep, 2009 - 12:52 pm

Just wondering if any one else has taken Prednisolne tablets and Indomethacian tablets . The Doctor has prescribe these to me this time to see how they go .


Posted in Untitled on 07 Sep, 2009 - 11:19 pm

Hi Sefwill ‚
I was in the same boat suffering CH from mid teens ‚ have all was though or been told they were just head aches or migraines wasnt until recently I found out they were CH . I felt relived to find this website hopefulyl you find some helpfull information here .


Posted in Untitled on 07 Sep, 2009 - 10:35 pm

Interesting post never though of Mushrooms theres a lot of information on them work for CH on the net though .


Posted in Untitled on 07 Sep, 2009 - 10:13 pm

Thanks Peter ‚
I think the Dealin was the brand name not to sure what the chemical name of it was but was used to lower blood pressure . Hasnt seemed to help however .

I found that the Cafergot worked for the very first time I took it stop a CH from coming on completly ‚ but didnt seem to work at all after that ‚ didnt seen to lessen the intensity or shorten the attatcks .

I Had no side affects from it as well ? mabye the dose of two tablets on the onset of pain wasnt enough for my body mass ?
going back to the doctors tomorrow to see what they would recommend I try next .


Posted in Untitled on 04 Sep, 2009 - 9:29 pm

Just wondering if any one else finds stress can trigger attatcks ? Been going through a fairly bad run for about 3 weeks or more having a couple attatcks each night and early mornings also had some really bad attacks durring the day lasting around 3 hours or more . The only thing that has changed recently is my work has become way
more stress full . Does any one else find that get depression symptoms durring long cluster periods ?


Posted in Untitled on 14 Jul, 2009 - 2:28 pm

I have recently be persribed Cafergot to take at the onset of a CH attatck and Deralin 10 to take 3 a day durring a Cluster period .
Just wondering if any one else has used any of them and if they worked or notfor them and any side affects ?


Posted in Untitled on 09 Jul, 2009 - 12:31 am

Hi ‚

I'm a new member and found this website today when I was doing some research on the net about why I seemed to keep getting this head aches

I'm a 28 year old fairly fit and healthy male and have been getting CH for about 10 years now . I didn't even really now about them until a few days ago and just though I was suffering Migraines or something worse like a brain tumor as I would all ways get the pain on the same side behind the eye and the normal pain killer would do nothing . However a friend recently told me about CH and after quickly reading the symptoms have found they matched mine word for word from ‚ getting them about the same time every year for a few weeks and then beaning pain free for a few months to a year ‚ the pain on the same side and behind the eye and on the side of the temple and sore neck and teeth . CH come on with no warning and lasting 15mins to a 90 mins etc . I went to the doctor once regarding them years ago and they told me that it was from just working in front of a computer too long at work and get my eyes tested and taking some over the counter pain killers if it gets too bad . Had my eyes tested and they were fine and shortly after that the head aches went away for about 8 months so never went back .

Over the last few years they have been getting worse and affecting me at nights more and causing problems at work ‚ I work for an airline in operations and had them come on with out warning in the hectic work place I would generally retreat to the toilets and sit down there clutching my eye rocking for 20 mins or so ‚ trying to wash my face to cool it down or taking pills which seemed to do nothing . People at work would often wonder why I couldn't work at times or even be bothered to talk to them during an attack they just though it was a head ache or Migraine and though i was would be making a big deal .

Its nice to finally know some answer to what I have been suffering from all these years and hopefully find some treatments that work

Kirk