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14 Jun, 2008 - 5:24 am

im a sixteen girl and for about 9 months ive had constant headaches. they have a lot of similarities to cluster headaches but they are there every single day i wake up with and i go to bed with them‚ becasue of them i have trouble sleeping. in 9 months there has not been one day i havent had a headache. some days there ok and some days they are so bad i cant even lift my neck and get out of bed. last year i missed a term and a half of school becasue of them the doctors have been trying to give a name to them but havent been able to. because of them i have missed a lot of things and they make it hard to be a normal person..

please help

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14 Jun, 2008 - 10:15 pm

Hi‚ and welcome to the forum.

Have you suggested to your doctors that you might be having cluster headaches? What are your symptoms?

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16 Jun, 2008 - 8:17 am

Hi Blondie‚

Yes I agree with lil fuzzy‚ see your doctor and suggest you may be getting Cluster Headaches.
You will need to have your condition PROPERLY diognised before you can get it under control.
Please tell us more about your progress and your current symptons.

David

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29 Jul, 2008 - 10:14 am

Hey Blondie‚

I don't know if this is helpful to you.... I agree you need to keep communicating with your doctor to work out what the problem is. I have heard of daily headache syndrome... also I know (I know!) that taking headache painkillers can cause rebound headaches! Stupid‚ crazy stuff. You take the painkiller to relieve the headache but as soon as it wears off you get another headache!

Sorry I'm not able to be more helpful. I hope you work something out soon.

Take care‚

Kate

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01 Aug, 2008 - 2:11 pm

Hi Blondie & welcome
Below this post is a questionnaire I pulled from the US CH.com site & it gives a very good guide as to whether you have clusters or not but only a Nuro who specializes in headaches can confirm a diagnosis.
You don’t say in your post if you have seen a Nuro yet but if you haven’t then I suggest you ask your local GP to refer you‚ the Nuro I saw was Prof Sasson Gubay who lectures at UWA & has a practice in Churchill Rd Subiaco & specializes in head pain‚ he gives the impression of a grumpy old bloke but he’s not he’s just very thorough.
Here’s the quiz & Cheers‚ Barry from Karratha
There have been so many questions on the message board from people asking if the headaches they suffer from are clusters or not I decided to build this quiz.
It will give you a quick‚ generic idea whether you may suffer from cluster headaches or not.
#1) Do your headaches normally last LESS THAN 15 minutes?
Yes No

#2) Do your headaches normally last MORE THAN 4 hours?
Yes No

#3) Do your headaches normally switch sides from day to day or during a headache?
Yes No

#4) When you have a headache‚ do you normally seek a quiet‚ dark place?
Yes No

#5) When you have a headache‚ do you normally want to be around other people?
Yes No

#6) When you have a headache‚ can you normally lay down and be motionless?
Yes No

#7) When you have a headache‚ can you normally go to sleep to make it go away?
Yes No

#8) When you have a headache‚ do you normally experience nausea?
Yes No

#9) Are your headaches always on the same side of your head?
Yes No

#10) Do your headaches normally wake you up from a sound sleep?
Yes No

#11) Do your headaches normally occur at the same time of the year and same times each day?
Yes No
#12) Do you normally experience a stuffy nostril on the same side of the face as the pain?
Yes No
#13) Do you normally experience a "droopy" eyelid on the same side of the face as the pain?
Yes No

#14) Do you normally go from totally pain free to totally debilitated in 5-10 minutes?
Yes No

#15) Do you normally go from totally debilitated to totally pain free in 5-10 minutes?
Yes No

#16) When you have a headache‚ do you walk‚ pace‚ bash your head‚ thrash‚ scream?
Yes No

Evaluation
Questions 1-8 are not normally associated with cluster headaches. If you answered "Yes" to a few of these questions‚ you probably don't suffer from cluster headaches. Please do your research and see a doctor!
Questions 9-16 are normally associated with cluster headaches. If you answered "Yes" to most of these questions‚ you may suffer from cluster headaches. Please do your research and see a doctor!

Follow-on
No matter what type of headache you have‚ the most important thing is that you see a health care professional for treatment. Self-diagnoses of head pain can be life threatening!
If you would like to take another quiz something like this one‚ there is a very good 30 question quiz located at the Headache Care website. It asks different questions about all different types of headaches and may help you try and figure out what exactly it is that is causing your pain.
Please read all of the information on this site as you can about cluster headaches. There are many good links on the links page to all kinds of other headache sites and pages on the net where you can research your headaches. Please inform yourself about your headaches as much as possible! Knowledge is power!

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04 Aug, 2008 - 3:53 pm

Sounds to me as if they are not cluster headaches‚ based on your comment of "can't lift my head to get out of bed' - cluster headaches are not like that at all.

Why have you not had it diagnosed if you have been having them every day for 9 months? Are you not afraid it might be a brain tumour? - PLEASE get it checked out!

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01 Jul, 2009 - 9:27 pm

I'm 15 & have been diagnosed.
In my experience the headache tends to be behind one eye & the pain is extremely unbearable for about 10minutes-2hours‚ then after that there's just a constant (but not as sevre) pain.
I usually hit my head or squeeze it to try & make the pain go away.
& 1/2 my face droops.

you should really try looking into the symptoms more or go for a CT scan.

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