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20 Oct, 2008 - 4:59 pm

Hi i am new to the site and looking for a good doctor in the Brisbane area. I live in norman park so close to the city is prefferable but more than willing to travel!

My usual GP is very ignorant of cluster headaches to say the least and when i took him some info he barely glanced at it before prescribing Mersyndol Forte...again...for it not to help in the slightest...AGAIN!

I would really appreciate any help because i am in the midlle of a very bad cycle.

Thanks in advance

Justin

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20 Oct, 2008 - 5:58 pm

Hey Justin‚
sorry to hear your suffering but your in the right place for support.
When I lived in Brissie i saw a DR at the mediprac clinic in Regents Park. A bit far from you but i did get a referal from her to see a Neuro at Greenslopes Hospital. Might as well have gone and seen a chicken boner for all that neuro knew about CH.

That was of course until I logged on here and saw how everyone else was treating themselves. Ive since learned to go to my GP and tell them what I know and what I need and virtually demand it. Imigran and Oxygen are the go for me and i just demand both.

May the wheels fall off your cycle.
Cheers
Moulis

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20 Oct, 2008 - 9:12 pm

gday justin

I totally agree with moulis
there is alot of information available on this and other sites.
I have seen numerous neuros in my 11 years of CH. None have shed any light to this condition.
In the last 6-8 weeks I have learnt more from these forums than I did in the previous 11 years.
I am in cycle now and crusing compared to previous cycles‚ although the CH is just as bad‚ I totally understand my situation and understand what I must do when an attack starts. before they would start and I would panic and hope they would stop.

Now as soon as an attack starts (any sign) 1 can of energy drink down the hatch ( skulled) this aborts about 50% if that dont work
I try to keep relaxed and I have a breathing thing I do.(short quick breaths) and try to ride it out. If that dosnt work then I inject Imigran which always works for me‚ I have only used 3 in 6 weeks.

But the best thing I have found is Verapamil started on 480mg then went back to 240mg‚ 480 made me feel not so good.

When cycle started I was getting 2-3 hits from 4pm-6am relaxation is my main trigger.
Now Im lucky to get hit 1 in two days so for me im cruising.

Feel it will end soon.

Will try oxygen soon Im waiting for a reg‚

Anyway most of the information is here ‚ just take the time to work out whats best for you‚ the answer is there somewhere but give things a chance to work dont be to impatient.(I was guilty of this for years.)
I know this is hard when your head is imploding‚ but thats the nature of this beast.


Hope you are pain free soon

Wayne

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20 Oct, 2008 - 11:43 pm

When my partner injured his elbow a few months back he went to a GP at Castle Hill medical centre in Murrumba Downs‚ and when the GP asked about other medical conditions he said he also gets ch‚ and the GP told him next time he gets them come in and they'd give him O2.

So he seemed to know what it was‚ but my partner is in remission so he's never really tested the GP's knowledge about it‚ but just the fact that he knew about them and how to treat them is a good sign I'd say.

Can't remember his name unfortunately...

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22 Oct, 2008 - 5:49 am

Thanks so much guys‚ much appreciated...I certainly have found this site to be an invaluable resource of information for both myself and my partner.

I insisted on an oxygen referral and luckily he begrudgingly gave me one so i have a guy coming up from the gold coast very soon. I hold high hopes for this helping.

Thanks again

Justin

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22 Oct, 2008 - 5:54 pm

Gday again

Good on you

Ive found that sometime you have to inform your doctor what you want.

Printing out the information on these sites and hand it to them‚ makes them learn‚ If they dont read it Look for a new doc.
Ingnorance is no excuse.

Im sure the o2 will work for you

O2 needs to be used a certain way see link to left.

Wishing you luck.

Wayne.

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