i have been diagnosed with CH by a Nuro for the last 4 yrs or so but had them for at least ten. got really bad about 2 years ago and the only drug that seemed to work was isoptin. I had sinus surgery 6 weeks ago and from the moment i woke up in post op i was clustering out of control. no ammount of morphene could stop it. The isoptin doesnt work for me any more. i am working my way through the list of drugs with no success. i havent slept in 2 days (refer diary). as i live in Port Douglas wich is essentially a country town the hospital is 1.5 hours drive away. I have been giving my G.P print outs from this site as a refernce as to which drugs to try next. He said he would be happy to sign off on any oxygen treatment but did not know how i would obtain it. Can anyone help me please? I am exhausted and at my wits end.
Thanks‚
Gus gardiner