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21 Sep, 2009 - 9:11 pm

i remember vividly the first night that i had a cluster type headache...i woke next morning with a paralysed face(the same side i get my ch on now)...i was diagnosed as having bells palsy‚whicch lasted for around 12 months..since then i get ch every other year‚always around march‚(although this year i have been getting a few warning shots already?)
any connection between bells palsy and ch?

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03 Feb, 2010 - 12:05 am

good day

i only signed up today‚ but i have had chronic paroxysmal hemicrania complicated by ramsay hunt syndrome ( chicken pox virus ‚ like bells palsy)for 5 years now . i have suffered every day ‚ prior to be diagnosed by DR Jacques Joubert at Epworth Hospital in Melb ‚ I was suicidal but 1 indocid ( indomethacin) tablet stopped the pain but it does not cure the problem.I suffer the palsy 24 hrs a day ( numbness around my eyes and cheeks ‚tinitus ‚droopy left eye ‚ everything is on my left side‚ constantly itching left nostril‚ my left teeth ache‚ my left eye doesnt work in time with my right eye‚ i can stick needles in the lhs of my face and dont feel it and I pass out if i clean my left ear. I have tried every drug imaginable over the last few years with indocid being the only one to work i.e stop the pain. Nothing else has done a single thing except maybe put me to sleep. When i am unmedicated i have between 20 and 30 attacks a day for a duration of between 1 minute to 20 minutes but 25mg indocid 3 times a day stops the pain unfortunately indocid WILL destroy my gastric system so i have that to look forward to . I have had injections in my brain and spinal cord all to no effect.
I am at a point now where i am resigned to the fact that i will have this the rest of my life but its better than some of the killers diseases or living in Haiti some i keep peddling along.
regards

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