Sign in

Untitled

Home  >  Forums  >  Questions and Support  >  Untitled

Toms headaches

(Member)
From: Northbridge
30 total posts
Not currently suffering :D
16 Oct, 2010 - 12:16 pm
Can suffers explain that distraction does not help when in an attack?
My son's physic team seems to think that if I distract Tom I can help him get over his pain when having an attack!!! Poor child. They do not realise the intense pain that he goes through. I am able to tell him a story at the end of an attack however when in the middle of an attack he does not even want to be touched.
I need to prove to the Physic team that distraction does not help. I will print out any replies and show the team on Wed.
PLEASE HELP with your comments.
Thanks you very much.
Martine.
0 people like this

Les-8020E5DAC2

(Member)
From: Robina
13 total posts
Currently suffering :(
16 Oct, 2010 - 1:35 pm
Hi Martine,
Distractions .... I am sure young tom wants nothing more than his favourite toy or tv programme thrust upon him during one of his attacks to settle him down NOT!!!!!!!!!!!!!!
For goodness sake why cant anyone listen to what we have to say , does everyone think we are all a bunch of liars, and just pretend we are in such pain. during even a mildish attack all i ( a 38 year old fairly fit man) can focus on is when will the episode pass thats it period,at these times believe me there is nothing else in the whole world that can help
especially distractions... there is one great distraction and i already got it its called cluster headaches.

be lucky Martine and young Tom.
0 people like this

Toms headaches

(Member)
From: Northbridge
30 total posts
Not currently suffering :D
16 Oct, 2010 - 1:54 pm
Exactly. I will show your reply to the Phycology team. I have told them over and over that distraction is not something that we can use. However they don't seem to believe me!!!
Thank you for taking the time to reply.
Martine
0 people like this

Dusker

(Member)
From:
765 total posts
Currently suffering :(
19 Oct, 2010 - 2:01 pm
Dear Tom's Psychic Team
The last thing Tom would be looking for is distraction.
Tom's pain will be so intense that he will have no ability to focus on anything external--unless he wants and then only when he is ready to.
I can only tell you from my perspective as a 63yo, that during an attack I become agitated and if pressed can change from a normally happy woman to being quite aggressive. I want to be left alone to deal with my pain the best I can. Then when I am ready I want someone with me.
Tom will know what he wants. Just as any child knows when they are sick with a cold, they will curl up with their favourite toy or whatever, Tom will do what he wants to--turn to Mum or whatever, he will instintively do what is best for himself. His Mother Martine is doing what she can in her role as a Mother to help and protect him, yours I believe is to support--please help her in this.
Heather
0 people like this

Toms headaches

(Member)
From: Northbridge
30 total posts
Not currently suffering :D
19 Oct, 2010 - 3:03 pm
Thank You for providing this in site. I will take a copy with us to the hospital tomorrow.
Martine
0 people like this

Roger

(Admin/Moderator)
From: Latrobe
251 total posts
Not currently suffering :D
19 Oct, 2010 - 10:14 pm
The one thing that makes them less tolerable is distractions! that's the worst thing you could try to do. It takes all my concentration just to deal with the pain, therfore any distraction just makes itn worse because it is more difficult to deal with.
0 people like this

sunset21

(Member)
From: Melbourne/East Bentleigh
27 total posts
Not currently suffering :D
21 Oct, 2010 - 12:52 pm
I'm with you Roger - trying to distraction a person let alone a kid is the worst thing, it is the last thing you want - all you are doing is putting all your focus and energy in dealing with the pain (the beast) - that why we rock and pace to try an deal with it.

Martine I feel for you and Tom.....poor little man ....
0 people like this

Dusker

(Member)
From:
765 total posts
Currently suffering :(
21 Oct, 2010 - 6:58 pm
How did you go Martine?
0 people like this

Toms headaches

(Member)
From: Northbridge
30 total posts
Not currently suffering :D
25 Oct, 2010 - 11:05 am
Tom's physic team agreed that distraction would not be beneficial in a full blown attack - after I showed them a few You Tube clips. The problem is people do not understand the pain level patients are suffering. I send quite a few friends the Ouch You tube clip. They now have a better understanding.
I will post information I found about about Melatonin on the medications forum.
I think it is really helping Tom.
Thank you for all your support and comments.
Martine.
0 people like this

Please sign in to leave replies