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Ben

(Member)
From:
324 total posts
Currently suffering :(
Hi everyone,
I have recommended to a few people on here already to try Aspirin for CH.
It may sound "Weak" or "Run of the mill" and is often dismissed or overlooked by many doctors, specialists and people suffering from CH, simply because it is available on a supermarket shelf. It may seem counter-intuitive to seek remedy at the supermarket after sitting through a Neurology clinic... again... But I say give Aspirin a go.

As a sufferer for 30+ year I still use and recommend 900mg of SOLUBE "ASPRO CLEAR" at the onset of an attack. It can work quite well as an abortive drug. Not only do I find this drug effective, inexpensive and easy to obtain, many other CH sufferers gain benefit from the use of Soluble aspirin. I have had some success out on the road with "Disprin direct chewables" tablets that can be purchased from a service station for around $2 for 2 or 4 tablets.

Not to be confused with solid Aspirin pills or ones that "fall apart" in a glass of water. They must fizz (contain sodium bicarbonate) and dissolve into a solution, not a suspension.

Before I am summarily dismissed by the CH community - try it first and see if it works for you.
I have completed approximately 50 drug trials. Everthing known to man and some that previously weren't... I still use opiates and triptans (Imigran FDT and s/c Injections) for bad attacks, but why crack a walnut with a sledgehammer? If Aspirin will work then I use it first, saving the expensive injections for later, or more intense attacks.

I still say give Aspirin a go, it might just work....

It is all too quickly dismissed.

End of rant, sorry people.

As usual, seek medical advice, Aspirin is contraindicated with many other medications.
Talk to your Doctor first.

Cheers, Ben.This post was edited on 01/02/2011 at 5:55 pm
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Shell

(Member)
From: Echuca
123 total posts
Currently suffering :(
Hi Ben,

Aspirin does seem to be beneficial slightly when taken at first onset of an attack but with so many of the other medications that are usually prescribed for CH there is quite a large risk in combining this as you mentioned. You may be onto something, time will tell, but will the side effects in relation to the quantity required versus the benefit be worth the risks involved, when oxygen is side effect free and so much more effective!

Guess it gives us something to think about!

Regards Shelliconiconicon
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Shell

(Member)
From: Echuca
123 total posts
Currently suffering :(
Hi, I was just thinking about this and realized that some of the most important new medications for sufferers available get very little attention also, these are garbapentin which has been used as a preventative successfully in the US for many years and melatonin. If you suffer from night time attacks at the right dosage melatonin can all but break a cycle. That's got to be good news for many!

Regards Shelliconiconicon
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chrisjs

(Member)
From: Applecross
22 total posts
Currently suffering :(
i'm going to try melatonin today, not used it before. usually my headaches come at 2130. which is fine, hop on the oxygen and i'm fine. getting them at 1430 everyday this week which is not fine at work.

tried aspirin today, think it made the attack worse for me. definitely didn't help but hey, it was well worth a try.
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Ben

(Member)
From:
324 total posts
Currently suffering :(
Hi Chrisjs,
Sorry to hear that Aspirin did not help you. Don't let this put you off recommending it's use to others. I will continue to advocate the use of Aspirin in the treatment of CH.
30 years of benefit for me from this drug should not be overlooked by other CH sufferers.
It has to work for someone else. With nearly 1000 members on this site, surely someone will gain benefit from 900mg SOLUBLE Aspirin.

I will keep banging on about it until I hear otherwise!
Maybe not banging, but talking, anyway...

Cheers, Ben.
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chrisjs

(Member)
From: Applecross
22 total posts
Currently suffering :(
Hi Ben.

Absolutely. Please don't think for a minute I was suggesting that it is not effective. The odd thing is that some treatments work for some and not others. I'm going to leave it a week and try again with the aspirin. It could have been any other factor that made my attacks so bad that day.

We have to keep trying everything we can. Sadly I dont think there is a miracle cure all out there for us yet but maybe one day! Until then we just have to happy when we find something that works for us.

No attacks today but 4 yesterday evening and overnight. By the forth I couldn't even face going downstairs to get my oxygen so just slammed in an immigrant injection and lay there shaking. Fun.
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chrisjs

(Member)
From: Applecross
22 total posts
Currently suffering :(
Drafted autocorrect on iPhones. I did of course mean fourth and immigran. Though I do have some comedy thoughts about what an immigrant injection would look like.
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Dusker

(Member)
From:
765 total posts
Currently suffering :(
Yes, I wondered about that one. Have you found that information yet about how to split up the injections?
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Erin

(Member)
From: Mornington Peninsula
4 total posts
Currently suffering :(
After reading this topic I thought I would give the aspirin a shot and I have to say I'm pleasantly surprised at how effective it has been. I do have to take it as soon as I feel it coming on - if I wake up during an attack it's too late. But as long as I catch it quickly enough I feel very little pain.

I'll definitely stick with it while it works.
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