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22 Mar, 2011 - 9:25 pm

WELL MY SECOND POST HERE...IVE BEEN WAITING ON SOME WISDOM FROM MY FIRST POSTED YESTERDAY.....BUT....STILL NO REPLIES.....SO THIS ONE I HOPE ISNT A WAYSTE OF GOOD ENERGY..

MY EYE AND HEAD ARE KILLING ME....I THOUGHT THEY WERE OVER...YESTERDAY AT 1830 WAS THE END OF WHAT I THOUGHT WAS MY FINAL FIGHT OF MY EPISODE...HOWEVER....AT 0415 THIS MORNING THE BEAST RETURNED TO AWAKEN ME AFTER MY FIRST 3 HOUR SLEEP IVE HAD IN 2 WKS...
WITH ONCE AGAIN SHEER AGONY...ONLY TO LEAVE 30 MIN.. LATER...THEN...TO REVISIT ME AT 0610...SIGH............SO WHEN?? WHEN IS IT GONNA STOP? AGAIN I ASK....I PRAY....I FEEL IT SUCKING THE LIFE RITE OUTTA ME...WILL ANYONE PLEASE REPLY TO MY LAST POST..OR THIS ONE...IF YOU HAVE ANY INSIGHT TO INTERJECT ON MY CURRENT SITUATION....WHAT SHOULD I DO?? ITS WITHOUT A DOUBT.....KILLING ME....I JUST KNOW IT....

THANKS....
GOD BLESS....DDAYII

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22 Mar, 2011 - 11:42 pm

HI, i know the pain u r gng through, i am due to get mine within the next 8 weeks, and the waitin for them to happen sux!! - i highly recommend you go to the doc and get him to prescribe tegretol and take 600mg a day each tab is 200mg so 3 times a day, it will numb the attacks so that its a dull ache, its an elipesy med that numbs the brain from feeling pain - also have u tried the Imigran Nasal Spray, if u can get to the attack within the first 2 mins it will abort the attack most of the time....my attacks laast for 1 hr duration and i can get up to 6 a day, for a period of 4 weeks... thank god for Tegretol... let me know what u r using for them...and i do feel ur pain ;(

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22 Mar, 2011 - 11:43 pm

I have also been having these for the last 13 years, every 2 years.....if u dont mind me asking how old are you?, Male or female?

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23 Mar, 2011 - 2:05 am

im 39 yrs old male and have been having them 7yrs. I found out what they were 3yrs. ago....was on topomax but i was at the end of my cycle when i started taking them so i dont really know if they even worked.. Currently i am taking nothing but o2 and STRONG COFFEE!!! the O2 seems to have helped alot...my clusters are anywhere from 3hrs.. to 25-38 mins. now on avg. My shortest ones are between 13-22 min..and im having about 6-10 a day....I also take super hot,and suoer cold showers which seem to help a bit...this has been 17 days in this episode...i pray its over soon...but when i think it is...well....it really isnt...Im so greatful to have the most wonderful woman in the world to help me through...without Christ,my wife and my kids...i would'nt have suffered this way..this long..becouse of them...i keep going..

thanks for the reply...it means alot to me coming from another who suffers the way i do....
thankks again...
God Bless..DDAYII

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23 Mar, 2011 - 9:31 am

Hi DDay2
Just caught your post and am feeling your pain too. It's a strange beast we do battle with - I'm currently 6 weeks into cycle, cycles strike twice a year and usually last around 10 weeks.

Now I don't know much about about CH, but I'm learning - and knowledge is power. This site contains a stack of info - so take the time to read what you can and learn.

Keep a headache diary as well, and note down the foods you eat - the whole CH thing is far more complex than a simple food intolerance, but you might notice a link between a particular food and the really bad headaches. For me, a possible trigger is processed meats in takeaway - if I eat Maccas or pizza during a cycle, I can guarantee I'll be up 3 times during the night doing battle with a force 7 - 8 each time. Stay off those foods, and I may be up once or even twice, but it'll only be a 5. Much more manageable.

Use the time between cycles to preapare for the next one - not easy I know, because CH is probably the last thing you want to think about when you're not suffering. See your doctor and talk about possible medications etc, that way when the beast returns you have a plan of attack.

All the best
Sara

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23 Mar, 2011 - 9:04 pm

G'day DDay2

Have you been given any meds from your GP, if not ask for Imigran or Sumatriptan 50 mg tablets.
Once you have them this should help you out on the number of hitsyou have through out the day & night, the only problem is Docs arnt usually happy giving script for a lot of these but you never know, the doctor I saw here in Perth allowed me to have 5 repeats but only because he knows me from about 20 year ago & I was able to tell him what they are capable of.

Now here's the trick; when you get hit & go on the o2 count the breaths you take to kill the hit & make sure you have killed it, no nearly's or close as, it must be gone completely knock down one of the trex tablets followed by some water & then do follow up breathing for the same ammount of breaths it took to kill the hit.
I have been using this method for about the last five years & it has never failed me, I can then get from 6 to 8 hours pain free before I get another smacking.


It may also be worth getting your Doc to look up Lithicarb tablets 250 mg, they are very helpfull for a lot of us in reducing the cycle length but like all medication follow the Docs orders on the use as they can do your gut some damage if taken without food.

Edited to add: Why not print this out & take it with you to the Doc for them to read
Hope this helps out.
Cheers
BarryThis post was edited on 23/03/2011 at 9:15 pm

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24 Mar, 2011 - 8:08 am

Hi DDay2
Welcome to our "group" of CH like minded people all just trying to give each other a hand.
I hope by now you have been able to have a good read of all the great information on the left hand side of the site and taken all the links. Knowledge is power when it comes to managing your illness. I urge you to to take the time to read through them with your wife to gain a better understanding of One of the hardest lessons which is to realise that what works for one person wont necessarily work for the next.
Not sure of your current status with medical assistance ie are you seeing a good GP or neuro? You need someone on your side you can talk to and most importantly work with.
Do you keep a headache record? When they start, how long, intensity, medication effects, any information that could help your dr in assessing you.
You are indeed fortunate that your wife is with you--keep it that way--her support is so important for you as you work your way through the attacks and the after. Please dont forget to acknowledge her along the way. We can get pretty hard to live with. The strain on my relationship (married nearly 40 years) has been pretty hard and it doesnt get any easier, you really need to work on it.
There is no doubt that this is a rotten illness, but the best part is that it is not life threatening--but it can be debilitating. You need to be very proactive in your treatment and be on top of it and prepared for the attacks when they come.
Learn about the medications that you are on, including side effects.
Some suggestions of mine I know not always taken--go see a psychologist who can help you with pain management! Helped me TREMENDOUSLY!! Gave me some techniques to use that were awesome. Not saying took pain away, but helped me manage the 7-8s without using imigran!
Stay proactive, but most important, stay positive. Keep your lovely wife well informed and close; and remember the kids!
The pain of each attack will end, the cycle will end.
Good luck
HeatherThis post was edited on 24/03/2011 at 8:09 am

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25 Mar, 2011 - 10:50 am

THANK YOU ALL VERY MUCH FOR ALL THE INFO AND WISDOM......
AGAIN I THOUGHT THEY WERE GONE....THEY LET ME REST LAST NITE FOR THE FIRST TIME IN 17 DAYS...PROBLY FROM THE DECKADRONE THEY GAVE ME BEFORE I WALKED OUTTA THE ER...IM NOT SURE...ANY WAY..I GOT SOME REST..FROM 0100-0815 AM..THANK GOD..I DONT KNOW HOW OR WHY...I REALLY PRAYED THEY WERE GONE...HOWEVER..THIS AFTERNOON..1515 THE MONSTER RETURNED TO BASH MY HEAD IN..AND POKE MY EYE THROUGH THE BACK OF MY SKULL WHICH I DIDNT APPRECIATE AT ALL..THE O2..AND MUDDY COFFEE HASNT WORKED FOR ME IN 3 DAYS NOW...IVE HAD 2 MORE SINCE..ALL OF EM EVEN LONGER...AN HOUR..OR 65 MINS...WEAK...ANYONE ELSE GET WEAK..LIKE THEY JUST GOT INTO A BRAWL? THATS PROBLEY PART OF MY PROBLEM...TOO MANY BLOWS TO MY HEAD...GO FIGURE...IM JUST HAVING A REALLY HAD TIME DEALING WITH THIS CRAP....REALLY...

THANKS FOR ALL THE REPLYS AND WISDOM...

GOD BLESS....DDAYII

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25 Mar, 2011 - 3:43 pm

I know you have 2 threads running, that's OK.
I can feel your pain in this one.
Just as you feel as though you are coming up for air from the last one you get hit with another.
You obviously are not getting any pain relief at all.
DdayII it does not need to be like that.
Lots of words have been written--have you tried Imigran?
If not, why not.
If you have, how recently? And by what method, and how soon after headache commenced?
Heather

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