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Does anyone bleed from their affected eye??

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Shell

(Member)
From: Echuca
123 total posts
Currently suffering :(
Hey Guys,

I am concerned about Cory as always as he is being hit hard again this week, 6 attacks a day all at kip 10, with some attacks he bleeds from his left eye, this is not by any means a new thing. Over the years he has bled from his eyes,ears nose and mouth but it seems to be getting worse over the last few years!

The meds no longer work, IV Magnesium and occipital nerve block has failed, the only option we have left is surgery or bust, so when he does go into remission (which could be 12-18 months) we are going to try busting, this has to be a better option than letting some well meaning dr cut into his head.

Does anyone else have this issue?? Please let me know if this has happened with you!

Regards Shell iconiconicon
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Ben

(Member)
From:
327 total posts
Currently suffering :(
Hi Shell,
Right side CHer here. Blood from right ear is a semi-regular thing post-attack the last 2 or 3 bouts (years). I had it checked out, nothing to report. I used to get blood noses a lot, both sides, no CH corelation. Best thing about a blood nose for me was that strangely, I have never had a CH attack within 24 hours of a nose bleed, no matter which side either. I have my own thoughts about my nose bleeds being some kind of pressure release valve. In 1996 I had 9 months of really bad blood nose episodes - daily. This is also the longest period of natural CH remission I have ever enjoyed. Coincidence or not? Who knows...

Eyes.mouth are fine.
Sorry Shell, without digging through all your posts, has Cory tried the nerve stimulator implant yet? Seems to me to be the least invasive Neurosurgical option for treating CH.
I am lined up for one soon, will keep the board posted.

Cheers, Ben.
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Dusker

(Member)
From:
769 total posts
Currently suffering :(
I have to ask--has anyone suggested IV Lignocaine infusions?
Heather
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georgew

(Member)
From:
11 total posts
Not currently suffering :D
A subconjunctival hemorrhage happens when a blood vessel leaks or breaks just under the conjunctiva. When this happens, blood gets trapped in the blood vessel or between the conjunctiva and white part of your eye. Eye bleeding makes the blood vessel very visible or causes a red patch on your eye.
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