Switching sides in the middle of a HA????

09 May, 2012 - 12:26 pm

Hi All - just had a very weird thing happen and wonder if anyone else has experienced it.

Today I was 'enjoying' my regular CH type morning...

7:20-7:40am - Right - level 5 (late getting away to work - AGAIN)
8:50-9:50am - Right - level 2 (peaking at 3-4 about 9:30-9:45am)
10:20-11:40am - Right - level 2 (increasing to 3-4 by 10:45 AND switching LEFT for 10 mins!!)
11:55am-12:15pm - Right - level 2-3

So in the middle of a 3-4 CH the pain eased on the right and appeared on the left - it felt pretty much like an instant switch. Then after a quick 'stab' in the eye I was completely pain free (and eye & nose stopped running) for 15 mins before it switched back to the right.

My HAs are mainly right, but I do get them on the left occasionally. But I've never had one switch in the middle of the pain!

I'm on no medications (except for mersydnol forte - but taken none today) and haven't done anything different today to any other day. I'm pretty much chronic with a couple of pain free days a month (eg : Jan - 99 HA, Feb 105 HA / 3 pf days, Mar 72 HA / 2 pf days, Apr 84 HA / 2 pf days).

So I'd be interested to hear if anyone else has had a weird side-switching double-banger like this.

Cheers
Katherine (in Canberra)

PS - today I'm seeing the neurologist! Hopefully I'll get some kind of script for O2!!!

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09 May, 2012 - 1:01 pm

Hi Katherine
has been known for them to switch sides.
I note that we use the terminology "script" when asking for oxygen.
All I had was a note from my GP explaining to the oxygen supplier that I needed it for medical reasons. Hope you have been able to work it out by now.
Cheers
Heather

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09 May, 2012 - 1:07 pm

Thanks Heather

I had noticed that some references to O2 are for scripts and others are notes of requirement (or the like).

My GP wasn't clear on the requirements as she hasn't needed to recommend O2 for HAs before. Although at least she is aware of it as a treatment - infact it was her first comment after a neurosurgeon made a tentative diagnosis of CH and migraines (fun fun I get both). So I was pleased she'd heard of it before.

I'd much rather go down the O2 path before trial and error-ing various meds. I get so confused when I'm reading everyone's experiences with the different drugs prescribed



Thanks again

K

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09 May, 2012 - 2:10 pm

Oxygen first is as far as I am concerned THE way to go. It helped me tremendously until I got in the real chronic phase.
If you do a lot of reading you will see it is truly acknowledged as first line treatment.
H

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