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Nickee

(Member)
From:
11 total posts
Not currently suffering :D
...I hope this isn't the start of an episode.

I've just realised my whole right eye is quite sore‚ even when I blink. However there is no noticeable headache at this stage.

My first and last CH was back in 2007 and I didn't even know it was CH until 3 weeks after I'd had a car accident. BTW‚ the accident wasn't caused by the CH I just assumed my head hurt cos I had smacked it on the windscreen icon

So I am not sure what I should be expecting‚ but I am really hoping this is just some random pain!

I'll keep you posted!icon *fingers crossed*
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Frosty

(Member)
From: Rosanna
23 total posts
Not currently suffering :D
Let's hope not.
I've also been getting some shadows over the past three weeks and I keep expecting it to start ramping up again. I think it's linked to lack of sleep - my daughter is teething at the moment so sleep is a rare thing for the household!
I risked a beer last night and I was fine - usually this kicks one off if I'm in cycle.
I hate it any time I feel a pain in my eye. I always fear the worst!!

Fingers crossed for you ;)
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Nickee

(Member)
From:
11 total posts
Not currently suffering :D
Well there is not as much pain in my eye‚ only now when I actually press on it ('cos that is a clever thing to do! icon)

All day the thought of a headache was niggling at me‚ but never came on. I have that sensation again‚ so I might down some more panadol.

Thankfully someone I work with is a volunteer ambo and they have offered to take me up to the ambo and sit on oxygen for 20mins if it does fully start.
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Dusker

(Member)
From:
765 total posts
Currently suffering :(
Fingers crossed for you 2!
Get in early with any preventative treatment‚ and have your meds ready to go.
I am currently in my 2nd week of a cycle. The previous one in February was hell on wheels until I saw a new neurologist who "sorted me out". Managing this cycle a lot better by taking imgran when first feel or note the symptoms rather than leaving till too late.
Good luck
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Nickee

(Member)
From:
11 total posts
Not currently suffering :D
Well nothing seems to come from it. I think I am starting to talk myself into it as I never know when to expect one!

I don't have any meds for CH yet as I've only had it once.

Is there something strong like panadeine forte out there‚ without the codeine? Codeine makes me nauseous after a few days.
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Dusker

(Member)
From:
765 total posts
Currently suffering :(
Hi you will find that "most times" general analagesia as you talk of is not particularly helpful during the early stages of a CH attack. I am currently "not at home" so will come back to you in a day or so.
Trust me--- mmmm where have I heard those words before.
Heather
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Dusker

(Member)
From:
765 total posts
Currently suffering :(
OK; home now.
I have found that general analgesic type medication like panadeine is not effective. When my GP kept wanting me to take panadol and nurofen when I was at the height of my headaches--I basically took them to shut him up as they did nothing for me--BUT--if I am feeling "shadows" I will take them and then find they can be quite helpful for the low level pain.
So........... use what works for you. If you take panadeine and you still have the pain 30-45 minutes you can fairly safely say--didn't help during the acute stage.
Just listen to your body and react quickly when attack imminent. You both sound as though you are "waiting" for an attack as if you are unsure of what is happening. I can tell you‚ at one stage‚ when I thought I was going absolutely nuts‚ I refused to acknowledge that I had an attack‚ took no analgesia or oxygen and even tried to lie down. Well can tell you I soon learnt that I had failed (or did I pass). The pain just escalated past the point of complete agitation distress and even anger until it slowly eased off. What I did find was that I was left with a low level pain--more than shadow--the pain never really left‚ and another attack followed on within an hour.
So........you need to learn more about what could kick an attack off; and be open to seeing that eating/drinking/smoking or hanging upside down from the ceiling or whatever are the catalysts for you. For instance for me: as much as I hate to admit it--RED WINE. Tie that in with a cigarette and I know that I am playing with fire.
Then.........work on a plan to manage during the acute period and the chronic stages.
And........if/when that stops working being proactive in recording what happening and giving your neuro some information he/she can work with!
Let us know how you are going!
I am pleased to say that I have been pain free for nearly a week now--I am out of the acute part of my cycle. Wooppeee!
Cheers
Heather
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saintpeter

(Member)
From:
606 total posts
Not currently suffering :D
Good for you‚ Heather. Have you got an established cycle yet? I'm still waiting for my Spring bout to arrive- I don't want it but I know it's going to happen.

Nickee‚ ask your doctor about Tramadol. If they prescribe you codeine‚ they should be ok with Tramadol as well- it won't make you queasy either. I don't bother with it any more‚ but it was what my Neuro recommended.

I know what you mean about red wine‚ Heather. I almost don't touch it anymore‚ sad to say. Cheese is out as well‚ when i'm in cycle‚ and that's even harder to forego. No Parmesan on pasta or scrambled eggs‚ that's really tough.

Best wishes to all.
Peter.
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Dusker

(Member)
From:
765 total posts
Currently suffering :(
Well.....just been through another cycle‚ but‚ very pleased to see the Imigran works a treat for me. Called in to a different chemist to pick up more for "stock"; and the pharmacist insisted on seeing me because I had requested 2 scripts (each for 4 tablets only) to be be told that I shouldn't be taking so frequently‚ and no more than 10 in a week etc etc etc. I really wish that people "stuck to the script"--in this case‚ pun intended. I have not been able to find any literature on line that has this limitation on it--do you?
I have been a good girl and have recorded all my headaches during this cycle and it just shows how clock-like they are.
Seeing the neurologist in a couple of weeks so will at least have a better picture for him.
Our days are lengthening now as we are in our Autumn period‚ but weather wise we are still experiencing some very warm weather.
Have been thinking of you and "your cycle".
Cheers
Heather
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