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Old anti-inflammatory thread

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ange666

(Member)
From: Mudgeeraba
7 total posts
Currently suffering :(
Hi there. I am very new to this site (2nd day!) and so have only just learned about the vitamin regimen.

I apologise in advance if this has been asked a lot of times, but I have done a bit of searching and can't find a lot of info.

I have found links to the US site, in particular to the member 'batch' - I have the list of recommend doses of vitamins and minerals.

My question is really for the aussies who have tried it. Which brands do you use? I am not good at taking pills so don't want to be popping too many of those really massive suckers that vitamins can be. 1 or 2 a day would be preferable. There is so much choice out there, I thought I would ask you guys and gals first for your advice.

Thanks a lot
Ange

Ben

(Member)
From:
116 total posts
Currently suffering :(
Hi Ange666,

Credit where it is due - Batch's thread: http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=132404640
4

I am sure Batch would appreciate survey participants and their results.
Believe it or not, this sort of info ends up under the noses of CH experts and impacts directly on treatment approaches right here and now in Australia. Thanks to my ranting on Vitamin D, I am pretty sure both my GP and treating clinical Pharmacologist are doing Vitamin D levels upon presentation for headache conditions, so your contribution to Batch's survey is appreciated.
http://www.esurveyspro.com/Survey.aspx?id=fb8a2415-629f-4ebc-907c-c
5ce971022f6

Batch is the go to person for this regimen, not me.
I have however, attempted to source local Australian supplements and replicate the regimen and tweak it, until it works for me.

FIRST - REQUEST A VITAMIN D TEST FROM YOUR GP.
You will need this as a "control" baseline indicator of where your Vit D levels are currently sitting. You can start without this figure, rather than delay Vit D3.

I have a sort of hunter-gatherer and trial and error approach to implementing this regimen in Australia. I can't make fresh Lemonade from scratch etc etc. So I put together what works.

So I instead use:
Ostelin 1000iU Vitamin D capsules:
DOSAGE: 10,000iU PER DAY.
4-5000iU (4-5 caps) in the morning + 4-5000iU in the evening.
WITH FOOD.
http://www.ostelin.com.au/wp-content/themes/ostelin/images/products/5001-Vit-D-60.jpg


Jees, big enough picture Roger?
Do we have to resize? To quote Jimeoin "That's bloody shuuuge".

(I have found that not all Vitamin D supplements are created equal.
Solubility and uptake are an issue. After trial and error and much research, I found Ostelin to be one of the more expensive but most effective ones available, sometimes you get what you pay for... Usually, I can pick up 250 X Capsules from a warehouse/discount chemist chain for about $30 on special.
Other chemists charge up to $50. If you are planning on trying this in CH, best to scale up and buy the 250 capsules, you will get through them quickly and smaller sizes are even more expensive. Buy in bulk!)

Doctors regularly use Vitamin D "Megadoses" of 250,000iU or more to quickly get your Vit D level back to where it should be. This may be great for patients who are forgetful of daily tablets, but could be a problem in CH. As soon as you have had your "Megadose", your levels are going to again decline, so daily dosing of Vit D, with a meal, is probably a more consistent approach for CH, if any efficacy is to be found.

I had success with Ostelin alone, but then added Centrum.
Centrum is a CSIRO researched multivitamin that should take care of basic Magnesium needs. http://www.centrum.com/centrum-adults-under-50#tablets

More recently, I added Salvital daily.
"In 1922 Bickford's "Sal Vital", an effervescent "health salt" powder which "contains all the elements that tend to cool and purify the blood, and makes as well, a refreshing and cooling beverage", first went on sale."
It contains some goodies that may help alter arterial pH in your favour, if my research is correct. I am still researching the mechanics of it..

The short version of the daily lot I take:
10,000iU of Ostelin (with food, AM and PM doses of 5000iU)
1 X Centrum Multivitamin (with food, same time as morning vit D dose)
1 X desert spoon of salvital dissolved in 300ml water.

Hope this helps.

It pulled the handbrake on over 30 years of DRCCH for me!
Still having shadows and the odd attack, but severity must have reduced by at least 70%.

Cheers, Ben.This post was edited on 06/12/2012 at 1:55 pm

ange666

(Member)
From: Mudgeeraba
7 total posts
Currently suffering :(
Great thanks a lot for all of that. wow, sounds like you've had amazing results with this regimen. Do you take the fish oil? there are so many of them, I didn't know where to start to choose one - then they've added the krill oil..

I had already bookmarked Batch's threads, including the survey one, so will definitely complete it once I've been trialling it for a while.

I went to chemist warehouse today to check the vitamins out - the 'expert' there told me that the 10,000 iu of D3 was toxic at that level and recommended I see a doc before undertaking any sort of regimen found on the internet. She gave me a mini-lecture, which I didn't really appreciate, I'm not an idiot lol. One side of me said to take heed of what she was saying - the other side of me thought that because she had never heard of CH, she couldn't comment on it & didn't know what she was talking about.. She tried to sell me a 'vitamin drink' - I just left! I will go see my GP and have a chat to him and have a blood test done.

Thanks a lot for taking the time to respond, I really appreciate it.

ps: lol at the pic size shuuuuuge alright!

Ben

(Member)
From:
116 total posts
Currently suffering :(
Hi,
Yeah sorry about the free ad.
I just wanted anyone reading to be able to visually ID the packaging, there are similar products, dressed up to look like the one I use.

I'm no Vitamin expert by any stretch, I am sure everyone needs to be vigilant when considering any supplement like Vit D. There may be problems in the longer term, I think there is a real good reason why the fishoil and Calcium citrate are part of the regimen, but I must go back and read it all again. I know Batch worked hard on backing this up with evidence and facts. Have not tried the fishoil yet.
(ain't broke, don't fix it, I spose...)

I showed the regimen to a new GP who found my Vit D deficiency.
She saw no harm in it and recommended it for me, after checking against my medications for any problems. She did suggest that I implement only one new variable at a time.
This was a logical and smart move from her.
Seeing as I was Vit D deficient anyway, that is why I began with 10,000iU per day, simply to address a detected deficiency. Only after this did I notice any CH benefits.
I started in Jan/Feb of 2012, had a patch of "CHish" symptoms recently and I am keeping my fingers crossed. It was discovered by accident. This seems to work for me.

Hmmm, don't you just love those pharmacy lectures?
I have letters from my specialist Pharmacologist for such persons, it tends to shut them up when they read what CH is, straight from him...
My specialist has OK'd the regimen for me too.
To my knowledge 10,000iU of Vit D3 per day is not toxic.
Here are some study results to show your self-appointed "expert" pharmacist.
I am no expert, by all means have it checked out, this is info from the internet!

http://www.ncbi.nlm.nih.gov/pubmed/21378345

http://www.pamelaegan.com/articles/vitamind3/

It was OK for this study to use doses of 500,000iU in a single oral dose!
I know people who use a single 250,000iU oral dose every 3 months.

From the bone study:
"High dose
In this latest study, Nicholson and colleagues tested the high-dose strategy in 2256 women aged 70 years or older, considered to be at high risk of fracture.
The women were given 500,000 international units of cholecalciferol (a form of vitamin D), or placebo, orally once a year for three to five years."

Maybe that will allay any fears of Vit D overdose.

Cheers, Ben.

ange666

(Member)
From: Mudgeeraba
7 total posts
Currently suffering :(
Great, thanks for all the info.

ange666

(Member)
From: Mudgeeraba
7 total posts
Currently suffering :(
just a little update for anyone who is interested.

I went to docs today to get advice for the regimen, he googled vitamin d on mayo clinic and vitamin d council and concurred that 10kiu/day of vitamin day is probably not toxic, i have a blood test ordered for monday. but in the mean time, I have bought some calcium & vitamin d to get started. I haven't got the multivitamin yet as I can't take massive pills. have seen some 'tiny tabs' online which i will look into, they look like they have all the right stuff in them.

I'm excited to get this started, and nip the beast in the bud before heading to NZ for a month over xmas.

I'll be heading over to the US site to let Batch know my progress too.

Thanks for 'listening' lol

Ange

saintpeter

(Member)
From:
610 total posts
Not currently suffering :D
Hi Ange,
good to see you're progressing icon
Don't fall for the "tiny tabs" crap. Bust a pill in half if it'll get used.
Were you metaphorically heading over to Batch, or physically? I'm thinking that's serious reseach.
cheers peter.

ange666

(Member)
From: Mudgeeraba
7 total posts
Currently suffering :(
haha yeah definitely not physically! I 'went' the the US site & actually found that I had joined up there back in 2007. From a couple of messages I wrote I was taking propranolol & prednisone.. apparently was working too, I wonder why I don't use that now.. probably coz the imigran is better...

anyway, hopefully I will have some better news to report very soon.

Ange.R

(Member)
From: Christchurch
56 total posts
Currently suffering :(
Hi
Is there anyone here that has had success with this regimen in treating either chronic or episodic paroxyml hermecrania?
Be interested to know.
Cheers
Ange

Ben

(Member)
From:
137 total posts
Not currently suffering :D
Hi Ange R,

Apologies if I covered this somewhere before, but a bit strapped for time, so can't look back through all posts to see it.

Indocid response is good in PH.
Pretty sure you have done that one (from my shaky memory).

There is a new thread posted on Batch's anti-inflammatory regimen today, with direct supervision from Batch. I am working closely with him to bring it to Aussies.
http://www.clusterheadaches.com.au/forum_posts.php?id=2985&start=0[
/L]

The new thread should probably supersede any old discussions on the regimen, as we have the man himself on board this time.

I have some grunt work to do here yet, re: finding local ingredients of the right type.
I am zeroing in on Australian high dose 5000IU or even 10,000IU gel/oil D3 caps as we speak. Also locating the correct variants of Calcium (Citrate) and Magnesium types required. I will post on that thread, when I have rustled up an on-shelf, localised regimen for Aussies.

I'm on it.

As for it working in PH.
I am unsure, but would give it a try.
Perhaps you could be one of the few PH patients that tries the regimen.
I'm sure Batch would be delighted to know your experiences with it, even in PH.

Let us know how you go - it's worth a shot.
From what I understand Indocid is a powerful (although undesirable) anti-inflammatory.
I know that Indocid will burn a hole in your gut.
I know the regimen won't.
Safer is better, I think.

Perhaps the regimen has relevance in PH too.
I will check with some people and see what they reckon.
It's definitely worth a shot.

Cheers, Ben.This post was edited on 07/04/2013 at 12:28 pm

Ange.R

(Member)
From: Christchurch
56 total posts
Currently suffering :(
Oh....I had a big response typed out but it won't let me post...error 404

Will keep trying...good thing for Ctrl A, Ctrl C, Ctrl V and wordpadThis post was edited on 07/04/2013 at 2:28 pm

Ange.R

(Member)
From: Christchurch
56 total posts
Currently suffering :(
Thanks Ben
I've spent today digging around options for this regimen and have just been to the health shop to stock up. D3 only available in NZ at 1000IU max, so I may be rattling by the time I've dropped a few of those down my throat along with all the other bits and bobs.
Won't let me add any more than this. Keeps giving me the error.This post was edited on 07/04/2013 at 2:38 pm

Ben

(Member)
From:
137 total posts
Not currently suffering :D
Hi to all,

The Anit-Inflammatory Regimen and Survey, by Pete "Batch " Batcheller.

Direct link to the US site, for the Anti-inflammatory regimen, with regular updates and current safety info:
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=132404640
4


Current discussion on the US site, with Q&A from Batch can be found on his thread here: "123 days Pain Free and I think I know why.", by Batch.
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=129196941
6/1350#1359


Current discussion on this site, regarding Australian use of the regimen should go here: http://www.clusterheadaches.com.au/forum_posts.php?id=2985&start=0[
/L]


Updates on sourcing local Vitamin & Mineral supplements, Aussie user experiences, contraindications and any important safety issues will be posted on the above thread on this site. Always check with Batch's threads, as the science is updated regularly.
----------------------------------------------------------------------------------------------

****This thread contains inaccuracies and omissions of important co-factors, contraindications and safety measures, most of which are my own doing...
The above links in this post should be consulted for the latest updates.****

For users of Batch's regimen, I will lock this thread to further discussion here, and leave it posted purely as "historical" information.

I don't want to stifle discussion here, or for anyone to feel unwelcome, censored, or left out of discussion on this thread, but the new thread is the place to continue discussion, for the safety of all regimen users.

It's just a safety and currency of information issue.
If there are any objections, feel free to PM me.
I or any of the Moderators here can always unlock it again.

See ya over on the new thread.

Cheers, Ben.This post was edited on 21/04/2013 at 9:41 am

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