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Greater Occipital Nerve Block

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longservice

(Member)
From:
2 total posts
Currently suffering :(
Hi all...my first post.
Hoping some of you could share your experiences with me. Last Monday I had a nerve block injection. For the following two days I had no CHs and felt fantastic. Clear head able to think. No fogginess or pain. Day 3 CH back again and each day since. Feeling quite overwhelmed now that it didn't work after two days reprieve.

Today visited Neurologist again. Has recommended entering hospital to go on a lidocaine drop and for further consideration. I am quite depressed simply because I cant work and otherwise get a huge amount of satisfaction from using my mind creatively.

Are there any other people who have had a nerve block and it not being successful?
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Ex-member

(deleted-member)
From: unknown
42 total posts
Currently suffering :(
Trying to post, but having issues.
403 forbidden error messages...
Will get back to you later, if this posts.

Ben.
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Roger

(Admin/Moderator)
From: Burpengary
258 total posts
Not currently suffering :D
Hey Ben,

Type up your reply in notepad and then copy/paste it into here so you don't lose it if it fails.

The reason for the error is due to there being something in your text that contains code that could be used to perform actions on the server. Sometimes, it can just be simple HTML. If you're pasting from Word, then it would carry over hidden formatting that could have that effect.
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Ex-member

(deleted-member)
From: unknown
42 total posts
Not currently suffering :D
Thanks Roger,
I was using notepad, always have, because it is raw .txt with no page formatting.
I know I mistakenly mentioned Word before, I sometimes use it to spellcheck a post, but I always copy over directly from notepad.
It is a good tool for writing up and saving posts if there is any fear that they will be lost!
I suspect the problem is with some of my links and their html data contained within, I remove them and the post will work.
Put them back and it fails again.

Apologies "Longservice", this is not usually what happens around here.
I don't want you to think the site is problematic.
The site works beautifully, so this is definitely not the norm.
I did try to paste my post into a PM for you, but that failed too.
I will have to revise it (In notepad of course) and try to re-send.
Please be patient with me as I work through this glitch!

I only offered drug treatment ideas, as I have never had a nerve block procedure myself.
Will get onto it, my notepad files are located on a different PC to the one I am using right now, sorry.

Cheers, Ben.
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Ex-member

(deleted-member)
From: unknown
42 total posts
Not currently suffering :D
I have tried everything I can, for hours on end, just to post.
I am about to throw my PC out the nearest window.
I give up.
Sorry.

Ben.
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Ex-member

(deleted-member)
From: unknown
42 total posts
Not currently suffering :D
Longservice,

Your post says "GT Optical nerve block".
Is this a new name for a procedure, or a mis-named procedure?
I have never heard of Optical nerve implicated in CH teatment.
In headache conditions, I know of the SPG (Sphenopalatine Ganglion) nerve block:http://www.mirxprotocol.com/images/spgtransnasal.png
Or the greater occipital nerve block: http://www.painmanagementlosangeles.com/wp-content/uploads/2013/01/Occipital-Nerve-Block.jpg
Which is the one you are making reference to?

Apologies for this thread mate, having difficulties with the server misinterpreting my posts as "Malicious code" for some unknown reason.

Cheers, Ben.
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longservice

(Member)
From:
2 total posts
Currently suffering :(
Thanks Ben,
The professor treating me suggested an optical nerve block as the injection site as shown in your diagram is one of the trigger points for CH's.
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Grant

(Member)
From:
3 total posts
Currently suffering :(
I had the greater occipital nerve block done on Thursday morning and the following day my clusters had returned, they are not as fierce but they are there. I'm angry but at least I know this procedure is a sham, for myself anyway. I'm on slow release verapamil and lyrica for preventatives but will be trying the short acting version of verapamil next week which is taken upto 3 times a day opposed to the other being taken once. My doctor is quite oblivious to this disorder and does not know much which makes it difficult to have proper understanding, I believe I know more than doctors mostly because I have researched extensively for the past 10years. Possibly having the nerve damaged with toxins or cut is the way to go for anyone with clusters headaches and such will trying to accomplish this in the near future, will see how medications are tolerated for now.
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beastie

(Member)
From: Geelong
4 total posts
Not currently suffering :D
Iíve had the ONB several times - in the beginning it worked really well and broke cycles - but it does very little for me now mid cycle - maybe a day or two with reduced pain.

Iím not going to bother for a year or two to see if it gets its mojo back - when I told the Neuro that he said he wants to try to put an oscillator inside my head in roughly that location instead - he said he was looking forward to having a crack at it, never having done one before icon
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JB_88

(Member)
From:
1 total posts
Not currently suffering :D
I've had a similar experience with the nerve block. It was effective in reducing severity and duration for one cycle in March last year, but was ineffective for a cycle later in the year, which lasted for over 3 months - beginning October. :-

I wonder how much of a role the placebo effect plays for all these different treatments? John
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Fraser Coast Neurology

(Member)
From: Hervey Bay
21 total posts
Not currently suffering :D
I have mentioned in previous posts, having worked at the Headache clinic at Prince of Wales Hospital in 1988,both Prof James Lance and Michael Anthony were using Greater Occipital Nerve Blocks.

These continue to be used world wide both for Migraine and Cluster headache. Chiropractor above rightly points out the lack of association--I entirely agree.

However, like the Mortein add--when you are onto a good thing stick to it. Let the science catch up.
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Anna-35EB53ADB4

(Member)
From: HENDERSON
1 total posts
Not currently suffering :D
Has anyone tried CBD oil with the Batch regimen?
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Kim

(Member)
From: Victoria Park
89 total posts
Currently suffering :(
Hi all,

i had a greater occipital nerve block quite a few years back, didn't help in any way.

after a very welcome three year brake , the beast is back.

am trying the GON block again. had it done on 24 august., no change that day.
25 and 26 of august - dramatic increase in the number of night time attacks , from usual
one or two up to six or more., every time i fell asleep, the beast woke me..

the neuro said it should start to work in three days with maximum benefit achieved
after seven days. we will see.

i know quite a few people are interested in this procedure,
so i will keep you posted on the outcome.

kim
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Kim

(Member)
From: Victoria Park
89 total posts
Currently suffering :(
Hi all,

said i would let you know how the GON block turned out..

it has been seven days and there has been no improvement at all.

the research said there was a 61% chance of it stopping the pain for
three months, so it was worth a shot.

kim
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