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Workplaces, employers and CH

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AngelaM

(Member)
From:
4 total posts
Currently suffering :(
My husband is the sufferer and we are new to CH - only diagnosed in October 2014 - so we are still finding triggers and right medications and right levels.

His employer is not understanding to say the least, to the point where we have now involved the union...

Has anyone got any suggestions/resources on how to help an employer understand how debilitating this condition is, the need for time off work and that going to a GP for a medical certificate to justify a day off is not useful for treating the condition and is actually a very difficult excursion requiring a very sick person to leave the house?

I don't think the word "headache" or even "migraine" is useful - many people have suffered from these and apply their own experience and I think this exacerbates their lack of understanding...

Thanks
Angela.
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stevienic

(Member)
From: cowes
31 total posts
Currently suffering :(
HI YOUR HUSBAND SHOULD GET A LETTER FROM HIS DOCTOR TO EXPLAIN TO HIS EMPLOYER ABOUT THE PAIN OF THESE , ALSO GET HIS BOSS TO GOOGLE CLUSTER HEADACHES AND HE WILL GET HIS ANSWER.
HOPE YOU HAVE LUCK AS MANY DO NOT KNOW THIS CAN BE THE WORST PAIN SOMEONE CAN EXPERIENCE AND IT IS OFTEN CALLED SUICIDE HEADACHES. SUICIDE EXPLAING THE ONLY POSSIBLE ESCAPE
REGARDS STEVE
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kat-620A431DE0

(Member)
From:
5 total posts
Currently suffering :(
If he has a neuro get the letter from the neuro As this has more weight than a general doc letter. When you see the doc next ask them to print out unusual primary headaches keys to accurate diagnosis. From medicine today oct 2013 vol14 number 10. Pages 39-40 explains it simply yet effectively what clusters are and meds Used. If you like i can copy these pages and email you them if that helps at all.
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AngelaM

(Member)
From:
4 total posts
Currently suffering :(
Thank you both for your advice. Things have settled (but I think that's because he is currently well!), so I might keep these suggestions up my sleeve...
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stevienic

(Member)
From: cowes
31 total posts
Currently suffering :(
Hi thats good things have settled, what medications is he on that has hepled it ?
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