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Do I have cluster headaches?

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CD80

(Member)
From: Derby
4 total posts
Currently suffering :(
I am currently experiencing 'headaches' that began a week ago. First couple of days having one headache in the afternoon to now having 3 a day morning, afternoon and night. The length varies from 45 mins to 1.5 hours. The pain is really bad from behind my right eye, sometimes down my face and on top of my head. My eye is bloodshot and teary after an 'attack'. The pain is indescribable, but it can feel like extreme pulsating, or like a current striking my head, only on the right side.
I have had these headaches before the last was 2 years ago, and 2 years before that. Over the counter pain relief doesn't even touch the pain, and doctors have prescribed anti inflammatories that don't work either. Really hoping this ends soon I can't stand the pain 🤕
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CD80

(Member)
From: Derby
4 total posts
Currently suffering :(
I live in a small country town and the docs here have said its migraine to stress related but the medication they prescribe doesn't even take the edge off the pain. From what I have read about cluster headaches I think this maybe what I am experiencing?
In need of pain relief!
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stevienic

(Member)
From: cowes
31 total posts
Currently suffering :(
Hi I does sound like cluster type headaches , Your GP should look it up . He can try you on a coarse of Prednisolone. Its is a steroid. It prevents the release of substances in the body that cause inflammation. starting from 75mg then decreasing But you cant stay on that medication for the long term. The next is verapamil , its normally used for high blood pressure and if you get no side effects it can be used long term . The best and not harmful is oxygen therapy . With a non breather mask 15 to 25 litres per minute can take the cluster headache away within 2 to 5 mins . Its sounds you maybe an episodic cluster sufferer. you may get the headaches for up to 6 weeks , then they go then return in 1 or 2 years for that time again . Chronic cluster headache sufferers never have a break. The knowledge with GP,s are often poor with cluster headaches . You may need a referral to a neurologist . there are many medications they will trial and as your episodic it may be enough to get you through . Also alcohol can trigger an attack . Googling about cluster headaches you will find a lot of information . There is no cure but hopefully you will find some luck to ease these terrible headaches often known as suicide headaches .
If you need oxygen a letter from your doctor and supagas is the one of the best to get oxygen , You can speak to Kay Tebby on 0404626455. from supaga
Your doctor may be reluctant to give you a letter but Kay can advise you
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CD80

(Member)
From: Derby
4 total posts
Currently suffering :(
So after another trip to GP, they 'think' it sounds like I'm having cluster headaches. I have been prescribed sumatriptans (nasal spray) they actually work most of the time! It takes up to 15 mins to kick in, but I'll take that over an extra hour of pain!
Does anyone else use this for pain relief and how often are you allowed to use for cluster headaches? I try to save for really bad ones as the pharmacist thinks it's not good to use so often. I have been using daily for a week now.
i get that oxygen would be the best/safest option but small country towns usually never have what you need 🙂
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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
Sumatriptan doesnt work on me but I take Zomig (zolmitripan ) and find it can cut an hour or so off an attack. Unfortunately it only comes in tablet form. 2.5mgThis post was edited on 07/03/2018 at 5:35 pm
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Slipper-A13F5B8B13

(Member)
From: Canning Vale
18 total posts
Not currently suffering :D
My Immigran sprays are my saviour, the tablets are only good on an empty stomach as they don't work in time to abort the attack. Only 2 sprays in 24 hours can or should be used. I accidentally overdosed quite severely one time on tablets, I put a handful into my water bottle instead of back in their pot and then drank the water later that night not realising what I had done until the foul taste hit me. Its a very dangerous drug as it constricts all blood vessels, I did find out I don't have any cardiovascular disease tho , The treatment for overdose is GTN infusion which just brings the pain right back again if in a cluster cycle and an annoying night in hospital having peripheral perfusion and my suspected suicidal state checked every 30 minutes.This post was edited on 31/08/2018 at 12:19 am
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