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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
I currently use Zolmitripan for my CH but want to try oxygen. My GP says an oxygen concentrater may be a more economical option. If anyone can give me a heads up on both these options it would be greatly appreciated.
Cheers
Scoot
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Kim

(Member)
From: Victoria Park
93 total posts
Not currently suffering :D
Hi Scoot,

i looked into this awhile back.

oxygen concentraters are not really an option .

first they are very expensive to buy.

secondly and more importantly they can not produce oxygen
in the volume required to treat CH.

check out oxygen treatment on this site.

kim
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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
Thanks Kim much appreciated.
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Peter Yarrow

(Member)
From:
10 total posts
Not currently suffering :D
You'll need 100% pure O2 through a non-rebeather mask like the O2ptimask for CH, at 15 l/minute, minimum.
You can get an O2ptimask through clusterheadaches.com store, not available here.
I don't think site admin here would mind a link, if it brings you relief: http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow
&ref=clustero2kit

The trick with these things is having enough O2 in the bag, 3 liters or more and making sure you don't re-breathe any exhaled breath.
Some are using O2 demand valves pushing well over 15l/min and having success where before they did not.
O2 Concentrators can't support the purity required or as Kim says, the flow required rate.
Pete Batcheler also has some O2 breathing techniques (hyperventilation technique) that may help, he's the O2 expert there.
If your GP recommends a concentrator, he's not read up on O2 in CH at all and you may have trouble getting prescribed O2 from that GP. A referral to a Neurologist should be able to prescribe O2 for CH.
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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
Thanks for your reply Peter. Have just heard back from BOC and got pricing on O2. Unbelievable !!
You'd have to be a Neurologist to afford it. I'm on a carers pension so I have no hope in hell of going down this track much to my disappointment.
I'll have to stick to Zolmitripan and wait til it kicks in 😱.
Anyway mate thanks again for that info. I'll revisit it when I win the lotto.
Cheers Scoot
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Fraser Coast Neurology

(Member)
From: Hervey Bay
21 total posts
Not currently suffering :D
I get my patients to buy their masks through Amazon. Has to be 100% Oxygen. Local supplies of Oxygen cost most of my patients about $5-00 per week.. I live and practice in a rural area

There is virtually no role for oral triptans for cluster headache. Ideally ,the subcutaneous injection is best..

Millions of people give themselves insulin every day by subcutaneous injection..

The nasal imigran helps a few patients. There is a new transdermal (ionontophoretic) preparation becoming available in the US. Also an inhaled powder is in the US.

If all else fails there is still the possibility of injections of Ergotamine--most members of the Australian Headache Association know how to get this.
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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
Thanks but your patients must be on some sort of government subsidy ?
I'm a Queenslander now living in Northern NSW and I can't seem to locate any government assistance here.
I think there is a group called ENABLE but my GP reckons I won't qualify.
Sumatriptan doesn't seem to do much for me ( I have tried the nasal one also ).
Unfortunately ( as you would no doubt know ) zolmitripan isn't avail in a nasal spray in Aus.
I'll cut and paste your reply and take it to my local GP next visit re the other treatments.
Thanks so much for the info.
Much appreciated.
Scoot.
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