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Reduced frequency and changing pattern with age.

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Gaz

(Member)
From: Carss Park
11 total posts
Not currently suffering :D
It's been 5 years without an attack, almost long enough to get complacent - but not really, and here they are again. They hit about 2 weeks ago just in time for a family holiday.

I used to get them twice a year, every year through my 20s and early 30s. I am now about to turn 40 and they have returned but the pattern has changed. Not getting them daily during this cluster and the severity is different each time - sometimes "mild" and sometimes drill into your skull, smash your head against the wall intense.

While I prefer not getting the 10/10 pain each time, the random nature of this attack almost makes me more anxious about each day and what level of CH it will bring.

Has anyone had a similar experience to this?
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Scoot

(Member)
From: Murwillumbah
13 total posts
Currently suffering :(
I've had them for nearly 30 years now. In the early days I used to get them yearly lasting about 2-3 weeks with about 4-5 per day. Then they went to I think about 2-3 yearly but lasted for 2-3 months. I'm having a bout now which is only just starting to decrease in intensity. So yeah, mine changed patterns throughout my CH career. Whether this is the usual thing I couldn't tell you mate. I guess you'll have to wait for more responses or someone to reply that's in the know. Hope ya holidays go alright !
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LiamT

(Member)
From: Windsor
3 total posts
Currently suffering :(
Thanks for your post. I've had 3 rounds now (nothing on either of you) - late 2016, late 2018 and now late 2021.. For me, each cluster has definitely been different in terms of the frequency, severity and diversity of attacks.

In the past a cluster period seemed to come and go within 4 weeks, with a very sudden end.

This time around I'm diarising everything. Four weeks in and I'm only just starting to get the super intense/deep attacks now. This time around I've been prescribed Imigran as an injectable treatment - and for me it kills even the deepest of attacks within 2 minutes.

A huge relief, but definitely share your concern in terms of the ever changing characteristics of cluster periods.
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LiamT

(Member)
From: Windsor
3 total posts
Currently suffering :(
[duplicate post - apologies]This post was edited on 03/11/2021 at 5:43 pm
0 people like this

LiamT

(Member)
From: Windsor
3 total posts
Currently suffering :(
[duplicate post - apologies]This post was edited on 03/11/2021 at 5:43 pm
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