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freelia's profile

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Location: Melbourne 
DOB: Saturday, 10th November, 1973
Site: Not Entered
Status: Not currently suffering :D
Joined:  18th January, 2011
Posts: 3
Until 2011, I have been told by GPs and made the mistake of telling GPs and the hospital's emergency that it was migraines. I went to a neurologist today who instantly identified it as cluster headaches as all the symptoms fit perfectly. I am surprised with the consistency of time of year and period of time each year, that no-one had ever even suggested CH.

This site really helped me to see that it is worse than migraines and not that I'm just a wuss. It's sad to see that so many others are going through what I am, but comforting to know that I'm not alone.

I am currently taking Isoptin SR 240mg/day and suffering almost every side effect listed, however I haven't had a cluster this year. Because I only get them twice a year I will only take it for 6 months each year (that's the plan) and hopefully I won't need to keep upping the dose. It seems to be working, but I can still feel that nerve twinge-ing at cluster time, does this mean I'm still having a cluster but it's 10,000 times intense?? No idea.

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