freelia's profile
Membership > Member profile
| Location: |
Melbourne |
| DOB: |
Saturday, 10th November, 1973 |
| Site: |
Not Entered |
| Facebook: |
 |
| Status: |
Not currently suffering :D |
| Joined: |
18th January, 2011 |
| Posts: |
3 |
Until 2011, I have been told by GPs and made the mistake of telling GPs and the hospital's emergency that it was migraines. I went to a neurologist today who instantly identified it as cluster headaches as all the symptoms fit perfectly. I am surprised with the consistency of time of year and period of time each year, that no-one had ever even suggested CH.
This site really helped me to see that it is worse than migraines and not that I'm just a wuss. It's sad to see that so many others are going through what I am, but comforting to know that I'm not alone.
I am currently taking Isoptin SR 240mg/day and suffering almost every side effect listed, however I haven't had a cluster this year. Because I only get them twice a year I will only take it for 6 months each year (that's the plan) and hopefully I won't need to keep upping the dose. It seems to be working, but I can still feel that nerve twinge-ing at cluster time, does this mean I'm still having a cluster but it's 10,000 times intense?? No idea.
This profile has had 968 views. Members who recently viewed this profile: Barry T Coles breakingpoint Ben