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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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's CH attack diary

's Profile

Friday 27 March, 2015: 02:05pm - 02:55pm

5


Tuesday 24 March, 2015: 02:10pm - 03:00pm

4


Sunday 22 March, 2015: 03:00pm - 04:15pm

5

O2


Sunday 15 March, 2015: 09:20pm - 10:00pm

1

just shadows


Sunday 15 March, 2015: 09:10pm - 09:20pm

5

5ml of imigran MKII Injection

Aborted CCH


Thursday 12 March, 2015: 04:10pm - 05:00pm

7

o2
1mg x imigran MKII Injection << Work just has good as a full injection


Wednesday 11 March, 2015: 07:50pm - 08:35pm

6

FUCK!^RE!%$

treatment:
o2


Wednesday 11 March, 2015: 06:50pm - 07:10pm

4


Tuesday 10 March, 2015: 03:50pm - 05:15pm

4

o2
endone 10mg


Monday 09 March, 2015: 09:45pm - 10:50pm

10

red bull
o2
Imigran MKII Injection @ 10:47PM


Monday 09 March, 2015: 09:45pm - 10:50pm

10

red bull
o2
Imigran MKII Injection @ 10:47PM


Monday 09 March, 2015: 02:25pm - 02:55pm

6


Saturday 07 March, 2015: 07:25pm - 07:50pm

5

o2
endone 10 mg's


Saturday 07 March, 2015: 03:50pm - 04:45pm

8

o2
Oxycotin 30mg's
Clonazepam 4mg's


Sunday 01 March, 2015: 10:00pm - 10:35pm

6

o2
endone 15mg's
Oxycotin 30mg's
Clonazepam 4mg's


Thursday 26 February, 2015: 12:00pm - 12:00pm

0

YAY One Day and Counting, lol


Tuesday 24 February, 2015: 11:35am - 11:45am

4


Monday 23 February, 2015: 09:00pm - 09:20pm

8

sait water in the nose
1 x Injection imgrain MKII


Saturday 21 February, 2015: 09:25pm - 10:15pm

10

o2
1 x Oxycotin 30mg's
2 x Endone 5mg's
6 x Seroquel 300 mg's
2 x Nitrazeram 5mg's
1 x Maxolon 10mg - feeling sick


Saturday 21 February, 2015: 12:15pm - 12:30pm

5


Thursday 19 February, 2015: 11:50am - 12:20pm

3


Wednesday 18 February, 2015: 12:50pm - 01:10pm

3


Monday 16 February, 2015: 12:15pm - 01:00pm

4


Saturday 14 February, 2015: 12:25pm - 01:00pm

4


Thursday 12 February, 2015: 03:00pm - 03:20pm

2

o2


Sunday 08 February, 2015: 05:45pm - 06:10pm

5


Sunday 08 February, 2015: 01:05pm - 01:55pm

3


Saturday 07 February, 2015: 02:30pm - 03:00pm

3


Saturday 31 January, 2015: 12:20pm - 12:30pm

4


Sunday 25 January, 2015: 03:15pm - 03:25pm

10

O2 ran out
sait water in the nose
1 x Injection imgrain MKII
arrgggggg.................................


Sunday 25 January, 2015: 03:15pm - 03:25pm

10

can you tell we/hate these. Alot?


Tuesday 20 January, 2015: 12:15pm - 12:45pm

6

treament
o2
4 x oxycotin 20mg's


Monday 19 January, 2015: 03:30pm - 03:45pm

5

o2


Sunday 18 January, 2015: 12:40pm - 01:20pm

7

saitwater up the nose
o2
2 X oxycotin 30mg's
Imigran Nasal Spray 20mg


Saturday 17 January, 2015: 12:00pm - 12:00pm

2


Friday 16 January, 2015: 01:30pm - 01:50pm

4

treament
o2
4 x oxycotin 20mg's


Friday 16 January, 2015: 12:00pm - 12:00pm

2


Thursday 15 January, 2015: 08:20pm - 08:35pm

10

What's not fun, the pain intense.
o2
5x Clonazepam 2mg's =12mg's
took the endone before
1 x Injection imgrain MKII
the injection work well few minute gone


Thursday 15 January, 2015: 12:55pm - 01:25pm

5

o2
4 x endone 5 mg's = 20mg's


Wednesday 14 January, 2015: 02:00pm - 03:00pm

3


Tuesday 13 January, 2015: 01:20pm - 02:05pm

3


Monday 12 January, 2015: 12:30pm - 01:05pm

5

o22
3 x oxycotin 30mg's
Imigran Nasal Spray 20mg


Sunday 11 January, 2015: 12:00pm - 12:00pm

1

slept all day and night


Saturday 10 January, 2015: 12:05pm - 12:15pm

5

o2 15LPM for 10 minutes
4 x Clonazepam 2mg's
3X oxycotin 30mg's
Imigran Nasal Spray 20mg


Friday 09 January, 2015: 12:10pm - 01:00pm

9

>SKENFJOHDSFJKLHjsdfhkjHSDFKJHskjdfhkjsDHFK;jshdfl;jhsD:OUOIYiuyUIH87g%rd4%E$%ER&^Y*(U(O_+P{}P_O_)I(((((I(*&&T^T^TYUU(IOI(U(U **Y *U*U *(U (*U *(U *U *U *U *U *U *UI(I)OO_PP{FLsdhfl


If you can read that you know how i felt
o2
4 x Clonazepam 2mg's
3X oxycotin 30mg's
2 x Endone 5mg's


Wednesday 07 January, 2015: 01:50pm - 02:00pm

9

02 15 LPM for 30 min's
Rocking
5X oxycotin 10mg's
2 x Endone 5mg's
1 x Injection imgrain MKII


Sunday 04 January, 2015: 12:00pm - 12:00pm

0

No CH's YAYAYAYAYAYAYAY


Saturday 03 January, 2015: 02:10pm - 02:40pm

6

02 15 LPM for 20 min's
Rocking
3X oxycotin 30mg's


Friday 02 January, 2015: 12:20pm - 01:20pm

4


Thursday 01 January, 2015: 01:15pm - 01:30pm

10

ArrhhHSHSHShdadhahdAHSDHAShdhashdhashdhasd

Now Teartment plan
o2 15LPM 35 minute's
Ice Pack 30 minute's
4 x oxycotin 20mg's
2 x Endone 5mg's
1 x Injection imgrain MKII


Tuesday 30 December, 2014: 02:00am - 02:15am

5

Not in a happy place


Sunday 28 December, 2014: 11:50am - 12:10pm

4


Saturday 27 December, 2014: 02:30pm - 03:20pm

6


Friday 26 December, 2014: 12:35pm - 01:00pm

3


Friday 26 December, 2014: 12:35pm - 01:00pm

3


Friday 26 December, 2014: 12:35pm - 01:00pm

3


Thursday 25 December, 2014: 12:10pm - 01:00pm

3


Wednesday 24 December, 2014: 02:20pm - 03:00pm

4

o2 15LPM 35 minute's
Ice Pack 30 minute's
14x oxycotin 20mg's
2 x Endone 5mg's
3 x Clonazepam 2mg's


Tuesday 23 December, 2014: 12:50pm - 01:10pm

4

o2 15LPM 20 minute's
Ice Pack 30 minute's
1 x oxycotin 30mg's
2 x Endone 5mg's


Monday 22 December, 2014: 01:35pm - 02:40pm

10

02 15 LPM for 60 min's
2 x Endone 5mg's
3 x Seroquel 300mgs (to try to sleep)
3 x Clonazepam 2mg's
ice pack
screaming
head baging


Monday 22 December, 2014: 12:50pm - 01:15pm

8

Imigran Nasal Spray 20mg
02 15 LPM for 20 min's
Rocking
2X oxycotin 30mg's
2 x Endone 5mg's


Sunday 21 December, 2014: 01:05pm - 02:00pm

7

Aspro Clear 500mg's
Imigran Nasal Spray 20mg
02 15 LPM for 30 min's
Rocking
3X oxycotin 20mg's
4 x Seroquel 300mgs (to try to sleep)
3 x Endone 5mg's


Saturday 20 December, 2014: 11:45am - 12:35pm

5

Aspro Clear 500mg's
02 15 LPM for 30 min's
Rocking
4X oxycotin 20mg's


Friday 19 December, 2014: 02:10pm - 02:45pm

6

02 15 LPM for 30 min's
3X oxycotin 5mg's
Imigran Nasal Spray 20mg
4 x Seroquel 300mgs (to try to sleep)
2 x Nitrazepan 5 mg's (to try to sleep)
3 x Clonazepam 2mg's

I ended up knocking myself out with tablets

Woke up 10:10Pm
CH's Gone


Thursday 18 December, 2014: 02:40am - 03:25am

9

02 15 LPM for 30 min's
3 x Endone 5mg's
3X oxycotin 10mg's
crying into my pillow
head baging
1 x Injection imgrain MKII after all that


Tuesday 16 December, 2014: 07:45pm - 08:05pm

3


Tuesday 16 December, 2014: 12:40pm - 01:00pm

2


Monday 15 December, 2014: 07:45pm - 08:05pm

3

Put this it on the wrong day


Monday 15 December, 2014: 01:05pm - 03:40pm

4


Sunday 14 December, 2014: 08:05pm - 09:45pm

8

02 15 LPM for 30 min's
3X oxycotin 10mg's
Imigran Nasal Spray 20mg
Ice Pack
4 x Seroquel 300mgs (to try to sleep)
2 x Nitrazepan 5 mg's (to try to sleep)
3 x Clonazepam 2mg's


Sunday 14 December, 2014: 01:15pm - 02:05pm

3


Saturday 13 December, 2014: 07:20pm - 08:55pm

3


Saturday 13 December, 2014: 01:00pm - 01:55pm

5

02 15 LPM for 40 min's
2 X endone 5mg
1 X oxycotin 20mg's
4 X oxycotin 10mg's
Imigran Nasal Spray 20mg


Friday 12 December, 2014: 08:50pm - 09:35pm

10

Worst one in a longtime
Banging head

Treatment:
Aspro Clear 500mg's
02 15 LPM for45min's
1 x Injection imgrain MKII after 40 minutes
4 x Seroquel 300mgs (to try to sleep)
2 x Nitrazepan 5 mg's (to try to sleep)


Friday 12 December, 2014: 01:35pm - 02:15pm

8

I am Getting piss right off with CH's

Treatment:
Aspro Clear 500mg's
3 x Endone 5mg's
2 X oxycotin 20mg's
02 15 LPM for 20 min's


Friday 12 December, 2014: 11:55am - 12:40pm

3


Friday 12 December, 2014: 11:55am - 12:40pm

3


Thursday 11 December, 2014: 02:00pm - 02:20pm

3


Wednesday 10 December, 2014: 01:15pm - 02:20pm

4


Tuesday 09 December, 2014: 12:40pm - 01:10pm

7


Monday 08 December, 2014: 01:10pm - 03:05pm

6


Sunday 07 December, 2014: 12:30pm - 01:00pm

5

Treatment:
Aspro Clear 500mg's
02 15 LPM for 20 min's
Endone 10mg's
2 X oxycotin 30mg's


Sunday 07 December, 2014: 12:05pm - 01:55pm

8

Aspro Clear 500mg's
02 15 LPM for 60 min's
Endone 10mg's
2 X oxycotin 30mg's


Saturday 06 December, 2014: 10:20pm - 10:35pm

8

02 for 15 minutes
No benefit

So took injection
1 x Injection imgrain MKII
Minute later the cluster is gone
Felt a warm feeling going through my body as the cluster was going


Saturday 06 December, 2014: 01:00pm - 04:25pm

9

What can i say? Not fun


Saturday 06 December, 2014: 07:35am - 07:35am

1

sorry that last post up first and forgot about changing the date.
So that is why it posted twice


Friday 05 December, 2014: 10:20pm - 10:35pm

8


8

02 for 15 minutes
No benefit

So took injection
1 x Injection imgrain MKII
Minute later the cluster is gone
Felt a warm feeling going through my body as the cluster was going


Thursday 04 December, 2014: 09:20pm - 11:40pm

3

Head is sore
Residual headaches is happening through all this time.
Still not fun but there not as bad as they have been.

I have the imigran injections now. So hopefully the very bad clusters I get it should stop them or at least help the pain to go away.


Thursday 04 December, 2014: 02:30pm - 05:05pm

7

o2 left on til asleep


Wednesday 03 December, 2014: 07:45pm - 08:25pm

2

Imigran FDT 50mg's


Wednesday 03 December, 2014: 03:40pm - 04:20pm

6

02 for 25 minutes on 155 LPM
3 x Oxyconit 20mg

Sleep


Wednesday 03 December, 2014: 03:40pm - 04:20pm

1

02 for 25 minutes on 15 LPM
3 x Oxyconit 20mg

Sleep


Tuesday 02 December, 2014: 06:35pm - 08:25pm

7

02 on 15LPM for 30 minutes
3 x Oxycotin 20mg
oxygen on and off


Tuesday 02 December, 2014: 12:00pm - 12:00pm

1

-- Period of remission (97 weeks, 4 days) --

Lies they have not stop I feel like breaking my computer


Above period: 93 Attacks over 116 days.

-- Period of remission (64 weeks, 5 days) --


Wednesday 11 September, 2013: 04:10pm - 05:25pm

7

2X Panadol OSTEO
2X endone 5mg
Imigran Nasal Spray 20mg
02 15 LPM for 10 min's


Wednesday 04 September, 2013: 08:00pm - 08:35pm

4


Tuesday 03 September, 2013: 10:30pm - 11:20pm

7

2X Panadol OSTEO
1X endone 5mg
Imigran Nasal Spray 20mg
02 15 LPM for 10 min's


Above period: 3 Attacks over 2 days.

-- Period of remission (97 weeks, 4 days) --


Friday 28 October, 2011: 05:00pm - 06:00pm

8

Treatment:
Aspro Clear 500mg's
Imigran FDT 50mg's
02 15 LPM for 10 min's
Endone 10mg's

wait for 15 min's

02 15 LPM for 10 min's
Imigran Nasal Spray 20mg


Friday 21 October, 2011: 04:00pm - 05:25pm

5

Treatment:
02 15 LPM for 10 min's
Imigran FDT 50mg's
02 10 min's again


Saturday 15 October, 2011: 09:50am - 12:00pm

1


Friday 14 October, 2011: 01:00pm - 02:00pm

4

Treatment:
oxygen 10 min's on 15 LPM

wait for 35 min's

Imigran Nasal Spray 20mg


Thursday 13 October, 2011: 06:40pm - 08:05pm

5

Treatment:
oxygen 10 min's on 15 LPM
Imigran FDT 50mg

Well the Imigran (FDT) 50mg is lease affective than the nasal Spray.
Still works though


Thursday 13 October, 2011: 11:30am - 12:00pm

3

Treatment:
Aspro Clear 500mg's


Wednesday 12 October, 2011: 12:00pm - 12:00pm

0


Tuesday 11 October, 2011: 07:00am - 07:00am

0

Do i hear remission bells???? :P


Monday 10 October, 2011: 06:00am - 01:00am

0


Sunday 09 October, 2011: 01:00pm - 02:00pm

4

Treatment:
Oxygen 10min's on 15 LPM

Waiting for 30 min's

Imigran Nasal Spray 10mg

Work well


Sunday 09 October, 2011: 11:00am - 12:20pm

4

IT IS THE WEEKEND LETS CUT OUR LAWNS. BASTARDS
Treatment:
Oxygen 10min's on 15 LPM


Saturday 08 October, 2011: 04:00pm - 05:10pm

2

I started getting this CH about 2-3 hours after the Imigran Nasal Spray.

Treatment:
Oxygen 10 min's on 15 LPM


Saturday 08 October, 2011: 12:50pm - 01:00pm

4

Treatment:
Imigran Nasal Spray 10mg

That worked quick


Friday 07 October, 2011: 03:00pm - 03:30pm

3

Treatment:
Oxygen 10 min's on 15 LPM


Thursday 06 October, 2011: 09:00am - 10:05am

4

Treatment:
Oxygen 10 min's on 15 LPM


Wednesday 05 October, 2011: 07:00am - 09:05am

4

Treatment:
Oxygen 10 min's at 15 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's


Tuesday 04 October, 2011: 08:50pm - 10:25pm

6

Feeling dizzy, hard to think, pain in right temple and right eye. Feel sick. Can't wait to see my neuro on 7th Oct.

Treatment:
Ice Pack
02 10 min's at 15 LPM
2 x Aspro Clear

Waited til 2110 hours(24 hour/time (9:10PM))

02 Again
1 x Oxycotin 5mg's
1 x Endone 5 mg's
2 x Seroquel 300mgs
2 x Nitrazepan 5 mg's (to try to sleep)


Tuesday 04 October, 2011: 03:15pm - 05:20pm

2

Treatment:
02 for 10 min's on 15 LPM

Seem to do a good job. (trying to cut down on Oxycotin and Endone)


Tuesday 04 October, 2011: 09:25am - 11:50am

4

Treatment:
02 for 10 min's on 15 LPM
2 x Aspro Clear
1 x Oxycotin 5mg's
1 x Endone 5 mg's


Monday 03 October, 2011: 12:20pm - 03:00pm

3

Treatment:
02 for 10 min's on 15 LPM
1 x Oxycotin 5mg's
1 x Endone 5 mg's


Sunday 02 October, 2011: 07:00am - 09:00am

0

YAY!


Saturday 01 October, 2011: 02:50pm - 05:00pm

5

Started while playing a game on the xbox.

Treatment:
02 for 15 min's on 15 LPM
1 x Oxycotin 5mg's
1 x Endone 5 mg's
1 x Maxolon for nausea
2 x Ice pack


Friday 30 September, 2011: 08:10pm - 09:25pm

4

A 4 is nothing compared to the 10 I had. That was the first time I used an Ice Pack it did help.


Friday 30 September, 2011: 06:00pm - 08:10pm

10

Well, What can i say? Was not fun. Two and a bit hours for pain. I was hoping I would die 1:30 hours into it.

Treatment:
02 for 15min's on 15LPM
2 x Oxycotin 5mg's -- Crushes them up -- (hoping would work faster)
1 x Endone 5 mg's
1 x Maxolon for nausea
Ice Pack for 60 min's
02 for 10min's on 15LPM

60min's later

02 for 10min's on 15LPM
Ice Pack for 60 min's
1 x Oxycotin 5mg's -- Crushes it up --
1 x Endone 5 mg's


Wednesday 28 September, 2011: 05:00am - 07:00am

4

Treatment:
Oxygen 10 min's at 15 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's


Tuesday 27 September, 2011: 09:00am - 11:50am

3

Treatment:
Oxygen 10 min's at 15 LPM


Monday 26 September, 2011: 12:25pm - 06:00pm

7

Gees it finally ended. I slept and woke up and gone.

Treatment:
oxygen mutiable times
2 x oxyconit 5 mg's each (took 2 because I had no endone)


Monday 26 September, 2011: 05:00am - 06:15am

3

Oxygen 10 min's at 15 LPM


Sunday 25 September, 2011: 12:00pm - 03:05pm

4

Treatment:
Oxygen 15 min's on 10 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's

60 min's later

Oxygen 15 min's on 10 LPM

Easy in off now.


Saturday 24 September, 2011: 05:40pm - 07:00pm

4

Treatment:
Oxygen 15 min's on 10 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's

15 min's later

Oxygen 10 min's on 10 LPM


Friday 23 September, 2011: 06:00pm - 08:15pm

9

Treatment:
Oxygen 15 min's on 15 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's

30 min's later

Oxygen 15 min's on 10 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's
2 x Panamax 500mg's
2 x Seroquel 300mgs
2 x Nitrazepan 5 mg's (to try to sleep)


Friday 23 September, 2011: 09:35am - 10:10am

2

Good so far.

Treatment:
Oxygen 10min's on 10 LPM
1 x Endone 5 mg's
1 x Oxycotin 5 mg's
2 x Panamax 500mg's


Thursday 22 September, 2011: 04:40pm - 06:00pm

5

Treatment:
Oxygen 10min's on 10 LPM
1 x Endone 5 mg's
1 x Oxycotin 5 mg's
2 x Panamax 500mg's



Wednesday 21 September, 2011: 11:05am - 12:00pm

3

headaches, headaches, headaches!


Tuesday 20 September, 2011: 05:30pm - 08:00pm

9

TREATMENT
Oxygen 15 min's on 15 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's

20 min's later

Oxygen 15 min's on 10 LPM
1 x oxycotin 5 mg's
1 x endone 5 mg's
2 x Panamax 500mg's


Tuesday 20 September, 2011: 05:00pm - 05:30pm

5

WHY DO PEOPLE HAVE TO CUT THEIR LAWNS!!!!!!

TREATMENT:
Oxygen 15 min's on 15 Lpm


Tuesday 20 September, 2011: 05:35am - 06:20am

5

Treatment:
Oxygen 10 min's at 10Lpm


Monday 19 September, 2011: 06:30pm - 11:55pm

8

Treatment:
Oxygen 10 min's at 10Lpm
1 x Oxycotin 5 mg's
2 x Seroquel 300mg
2 x Nitrazepan 5 mg's (to try to sleep)


Monday 19 September, 2011: 03:20pm - 03:20pm

4

Treatment: oxygen 10 Min's at 10 Lpm


Monday 19 September, 2011: 09:10am - 10:55am

7

Above right eye going down to the back of the eye.Sp02 drop to 88%. it is now about 3 after treatment.

Treatment:
Oxygen 10 min's on 10 lpm
1 x oxycotin 5 mg's
1 x endone 5 mg's
oxygen 15 min's on 15 lpm


Monday 19 September, 2011: 05:15am - 05:15am

4

Well i got to sleep. my medications worked.
woke up today with CH. my Sp02 levels was 88% on waking up.
Sp02 is now 93% after oxygen.

Treatment:
10 min's Oxygen.


Sunday 18 September, 2011: 06:30am - 12:05pm

7

It hit like a bomb. sharp pain above my left eye going down to the back of my eye.

Treatment:
10 min's Oxygen
5 mg's of oxycotin
600mg of seroquel
10 mg's of Nitrazepan(to try to sleep)

I hope i can sleep


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