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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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breakingpoint's CH attack diary

breakingpoint's Profile

Sunday 23 October, 2011: 12:00pm - 12:00pm

1

Have had nothng more than a few shadows in the last week and none at all in the last few days .... Time to change to green .... and hope !!!


Thursday 13 October, 2011: 01:30am - 09:00am

4

$%#$*%^#$%#^% annoying shit of a thing just enough to stop sleep and build the exhaustion levels.
Only taking atenolol at the moment... not sure what to do re meds...this cycle should be over ... doesnt it know it is 13 weeks now??? long hot shower offerd some relief..


Tuesday 11 October, 2011: 09:00am - 09:00am

2

Second day off the prednisolone and have been shadowing all day without really devloping a serious headache and I have been very lathargic.
Tonight will be the test


Saturday 08 October, 2011: 09:00am - 05:00am

3

Back to 25 mg on the pred yesterday and have stoppedtasking all other meds except the atenolol. I have had shadowing most of the day today ( I have twice reduced them with a couple of Zavance but only for an hour or 2) but I'm going to see what happens over the next 48 hours.


Thursday 06 October, 2011: 12:00pm - 12:00pm

1

I have now been three days with no more than a bit of shadowing as if to let me know iI'm not out of my cycle just yet but checked dates and the devil actually returned on the 13th of July so I'm hopeful.
Have reduced Pred to 50mg yesterday so tonight will be the test.


Monday 03 October, 2011: 06:15pm - 08:20pm

6

whooo that wasn't nice.
Have increased todays dose of prednesolone to 75mg and see how I am tomorrow but not sure that i will have a good night.
This is turning into a long cycle for me with my first attack back on the 13th of July so I'm hopeful that this cyclle is close to over.


Monday 03 October, 2011: 02:40pm - 04:20pm

4

Should have followed my own advice and upped my pred back to 50mg.
Had a few lighter attacks earlier today and each has bee a little worse than the 1 before.


Sunday 02 October, 2011: 06:35am - 08:20am

3

Prednelosone back up I think Don't want these to progress
Blockers seem to be doing very little and all my relief is from the pred.


Saturday 01 October, 2011: 03:00pm - 05:20pm

3

My own fault I had a beer while watchig the grand final and I have reduced my pred from 100mg to 25 mg over the last few days maybe a bit low and a bit quick. Hoping this action will last to the end of my cycle


Thursday 29 September, 2011: 09:15am - 09:50am

2

What a difference 24 hours make... A full nights sleep and nothing more than a bit of shadowing. Isn't life grand!!


Wednesday 28 September, 2011: 10:50pm - 03:15pm

8

What a great record to set ...
As I write this at 3.16am on the 28th of September 2011 I hvae just clocked 12 hours continuous. Currently at about a 6 on my way ack from a peak of a high end 8 that had me pacing around the garage at 2.00 am repeatably hitting myself in the head with a rubber mallett. lol looks a bit sillly writing that btu who the ...gives a damn...Used an Imigran nasal spray when heading back up at 1.45 with litle effect anf just took 100mg of pred after stopping using it for the past coule of days ... back o a 4 and maybe headng for some sleep ..Something tells m any sleep will be short lived an a return to the garage and rubber mallett is almost certain. Feeling pathetic and totally defeated as i cry tears of both pain and frustration.


Tuesday 27 September, 2011: 08:40pm - 10:50pm

7

After teasing for 5 hours plus jumped up to a strong 7 .. I have never felt so unprepared.. Just wasnt expecting it.
Time to head to bed but not feeling too good hasn't ehded yet just backed off back to a 4-5 and Feels like it could come back angrier than ever ... Please please don't !


Tuesday 27 September, 2011: 03:15pm - 08:40pm

3

So easy to deal with a 3 but when it sticks around for 5and a half hours (still going) it becomes a bit of a drag ... what to do ... extra meds ... try and sleep.... give it another hour... so many choices !!!


Tuesday 27 September, 2011: 01:30am - 04:40am

4

interupted sleep a bit on an off for a few hours but still had a decent sleep overall!!


Monday 26 September, 2011: 05:20pm - 09:10pm

5

This was a long one for me.... By the end it was like a 7 but that was all about the length of time I think.. Sure it was stilljust a 5.
I'm so out of sequence compared to other cycles, but less intense than what im used too... must be the new drugs


Monday 26 September, 2011: 01:00am - 04:00am

4

Lost about 1.5 hours of sleep with 3 relatively minor attacks but still enough to make your day a bit harder.


Sunday 25 September, 2011: 10:15am - 11:40am

5

Two days in a row and I have had late morning attacks but today is a lot better than yeaterday.... wonder what tonight witll bring


Sunday 25 September, 2011: 07:30am - 09:00am

3

Got through the night without waking ... YAY. Just got this annoying little fella over toast and coffee!!


Saturday 24 September, 2011: 10:10am - 12:30pm

6

Bit nasty ... wrote a silly new thread .... hmmm daytime attack... most unusual for me


Saturday 24 September, 2011: 01:20am - 09:30am

4

Asleep, awake, asleep, awake, asleep, awake and so it continues.
Enough to wake me up but not enough to keep me awake all night.... Exhaustion got the better of me... And I slept!!!
Still a much better past 24 hours than I have had for some time.


Friday 23 September, 2011: 03:30am - 05:00am

7

A step up from the earlier one but at least the sleep I got earlier has meant I will be able to function during the day if the CHs stay away.


Friday 23 September, 2011: 01:20am - 02:40am

6

As is usual had a nice awakenig around 1.00am.
Actually went to bed at 7.30pm and had a solid sleep until this CH kicked in, so it was nice to have some real sleep for a change.


Thursday 22 September, 2011: 11:30am - 07:30am

3

Have had shadowing that fluctuated between a 2 and a 4 all day and hyeading to bed at 7.30.
Have only had 7 hours sleep since Tuesday night and none of it has been good sleep.


Thursday 22 September, 2011: 07:20am - 11:30am

4

Have been back to the doctor after a terrible night and have finally succumbed to his desire to get me to try prednisolone after I have resisted for many years.
I have seen what this drug can do to people (My mother was on for yearsfor arthritis)
Here's hoping!!


Thursday 22 September, 2011: 06:00am - 07:20am

7

Bullshit bullshit bullshit!!!! Still all consuming but have to head off to work..Hope I don't fall asleep on the way! I NEED to get through the rest of today CH free. Call doctor laterre new drugs and to arange some O2 I think.


Thursday 22 September, 2011: 03:15am - 04:30am

8

Geting ridiculous now. Had just fallen aslep from last CH and now this..
Probably the worst I have had this time around although could be compounded by the lack oof sleep.


Thursday 22 September, 2011: 01:00am - 02:25am

7

not good !!! More sleep deprivation.


Wednesday 21 September, 2011: 09:40pm - 11:15pm

3

Have taken new drugs and this is really mild. hopefuly an indication things culd be heading in the right direction.


Wednesday 21 September, 2011: 03:05pm - 03:20pm

3

A teaser while sitting in the waiting room at my GPs. Got new drugs see what happens


Wednesday 21 September, 2011: 05:15am - 06:35am

6

Doc today. Need to get some sleep again... Scared to sleep though as I know whats coming.


Wednesday 21 September, 2011: 01:20am - 03:10am

8

Son of a bitch!!!


Tuesday 20 September, 2011: 06:30am - 07:30am

3

Got through the night!!! I really needed that.


Monday 19 September, 2011: 07:35pm - 09:15pm

8

a new benchmark for this cycle


Monday 19 September, 2011: 02:25pm - 03:40pm

4


Monday 19 September, 2011: 05:40am - 06:35am

5

God I need some sleep


Monday 19 September, 2011: 01:10am - 02:40am

8

AAAAARRRGGGHHH!!!!


Sunday 18 September, 2011: 03:20pm - 03:25pm

4

Caught this sucker !!!! Win for me thanks codis and zavance


Sunday 18 September, 2011: 04:30am - 06:00am

7

so much for sleep


Sunday 18 September, 2011: 01:15am - 02:30am

8

Nasty one, the worst yet in this cycle, Not looking forward to tomorrowon broken sleep


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