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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Starbaby's CH attack diary

Starbaby's Profile

Monday 19 December, 2011: 12:00pm - 12:00pm

0


Sunday 18 December, 2011: 12:00pm - 12:00pm

0


Saturday 17 December, 2011: 12:00pm - 12:00pm

0


Friday 16 December, 2011: 12:00pm - 12:00pm

0


Thursday 15 December, 2011: 12:00pm - 12:00pm

0


Wednesday 14 December, 2011: 12:00pm - 12:00pm

0


Tuesday 13 December, 2011: 12:00pm - 12:00pm

0


Monday 12 December, 2011: 12:00pm - 12:00pm

0


Sunday 11 December, 2011: 12:00pm - 12:00pm

0

Good morning Starshine!
So good waking up all clear, even in this heat.


Saturday 10 December, 2011: 12:00pm - 12:00pm

0


Friday 09 December, 2011: 12:00pm - 12:00pm

0


Thursday 08 December, 2011: 12:00pm - 12:00pm

0

Still going strong!
Only 6 more pain free days and i'll officially change my status to green!!!


Wednesday 07 December, 2011: 06:00am - 06:20am

1

I wouldn't normally bother recording this kind of twinge but seeing as i'm taking note of what could possibly be the end of it all i decided even shadows are worthy of a mention...
Carried on as normal and got ready for work.
It disappeared without me even noticing it was gone.
Thats how mild this twinge was.
So its still sunshine and lollipops for me!


Tuesday 06 December, 2011: 12:00pm - 12:00pm

0

Still none.
I think I can officially say it's over once again!


Monday 05 December, 2011: 12:00am - 12:30am

0

Still no headaches!
I even lay down in bed to play games on my iphone before going to sleep last night.
Haven't been able to do that for months.
I'm so happy.
Seeing my doctor today. Can't wait to let him know!


Sunday 04 December, 2011: 11:00am - 11:00am

0

Big long sleep after my trip working away.
Slept from Friday night right through until sunday morning.
And not 1 headache.
I think it's all over for this bout.
Very pleased.


Saturday 03 December, 2011: 11:00am - 11:00am

0

slept right through until sunday morning from the mild attack I had fraiday night.


Friday 02 December, 2011: 02:00am - 02:20am

4

Woke up with mild attack.
Sat up in bed for a while smacking my head but must have fallen asleep again because I dont remember it getting worse.
Didnt even need to get the frozen peas...


Thursday 01 December, 2011: 11:00am - 11:00am

0

Late night.
Lots of stress getting things on track for my week away for work.
But no headache.
This is wonderful.


Wednesday 30 November, 2011: 04:00am - 04:40am

7

Still away for work.
Lots more driving.
Late to bed because of Xmas Party.
Didn't drink alcohol, just soft drink.
Too late getting to bed to take endep this time.
1 headache only much later than usual.
No abortive.
Just frozen peas.
Very hot weather.



Tuesday 29 November, 2011: 03:00am - 03:40am

7

Away this week for work.
Lots of driving.
Stressed and disorganised.
Late to bed.
Let taking endep.
1 headache only much later than usual.
Late to wake up.
No abortive.
Just frozen peas.
Very hot weather.


Monday 28 November, 2011: 01:00am - 01:00am

0

Slept like a baby!
My headache pattern has completely gone hay wire.
I dont know when to expect them.
It's good i'm having less but I also feel like I've got less control as well.
Still, another painfree night can only be a good thing!


Sunday 27 November, 2011: 08:00am - 08:30am

7

Damn it!
Had no abortive meds handy.
I thought I wouldn't need them!
Ice and more aspirin just to get a bit of releif.


Sunday 27 November, 2011: 03:00am - 03:30am

7

I thought these were almost over and done with until this one.
Frozen peas.
Is the Endep no longer helping?


Saturday 26 November, 2011: 07:00am - 07:30am

1

Woke up with a slight twinge.
Carried on as usual and it disappeared.
:)


Saturday 26 November, 2011: 03:00am - 03:10am

4

Woke to some pain but sat up on bed and it disappeared straight away.
No ice needed.
I did try to sleep sitting up but obviously got too comfy and slid down into the bed too much


Friday 25 November, 2011: 11:00pm - 11:30pm

1

Because I was so tired from working through the night before, I was laying in bed watching TV.
Endep must be helping coz I wouldnt ever do this normally.
Low and behold, laying down started what I thought was going to be an attack but it never eventuated.
Decided to sleep sitting up again till I get back into my routine of early nights.
Still got a cough when i lie down anyway from losing my voice the week before.
Won't be long now. They'll be gone soon.
I can tell.
That sponginess in my right temple above eye level just before my hair line has started to flaten out.


Friday 25 November, 2011: 05:00am - 07:00am

1

Slept for 2 hours after night shift before I had to get up for normal work.
Had ningling type shadows the whole time.
Nothing bad.
But didn't really sleep.
And didn't take any Endep at all the whole night.


Friday 25 November, 2011: 01:30am - 01:40am

0

Worked a night shift through till the morning.
So no headache


Thursday 24 November, 2011: 01:30am - 01:40am

0

Increased Endep to 20mg as Dr said.
Slept like a baby all night


Wednesday 23 November, 2011: 01:30am - 01:40am

4

second one for the night.
different again.
Pain was worse when I first woke up but eased off immediately after getting out of bed.
No ice.


Tuesday 22 November, 2011: 11:00pm - 11:25pm

4

woke up at 11pm.
I've been going to bed early all week.
Never got intense.
Still needed ice


Tuesday 22 November, 2011: 04:00am - 04:50am

7

Fairly big headache.
Frozen peas again.
This might have been triggered by the fact that I've been coughing all night from a chest bug I picked up last week.
Been getting lots of sleep and it wasn't hot today either.


Monday 21 November, 2011: 12:00pm - 12:00pm

0


Sunday 20 November, 2011: 06:00am - 06:25am

5

less severe.
Headaches seem to be getting milder but spaced out over a longer period of time now....


Sunday 20 November, 2011: 03:00am - 03:30am

5

No frozen peas.
Used sunnyboy instead.
Much shorter.


Saturday 19 November, 2011: 11:00pm - 11:50pm

5

Again, the unusual headache before bedtime.
Again it lasted much longer but was less severe.
Again it knocked me out and I woke up with headache number 2 and defrosted peas on my bed.


Saturday 19 November, 2011: 06:00am - 06:30am

6

Used ice.
Stayed awake after this one


Saturday 19 November, 2011: 03:00am - 03:20am

6

Woke up with one again.
Shorter and no more painful than the one I had before I went to bed...
Frozen peas weren't frozen, so I had no ice...
But didnt matter.
It was bearable with nothing cold.


Friday 18 November, 2011: 11:00pm - 11:50pm

6

Strange that I developed this one before going to bed.
Pain was less severe but it lasted much longer.
It knocked me out too, fell asleep with the frozen peas on the bed...
Unusual....


Friday 18 November, 2011: 03:00am - 03:15am

4

Very small.
Very short.
Almost didn't even remember getting this one in the morning.
Slept lying down for the first time in a month.
It's a good feeling.


Thursday 17 November, 2011: 01:00am - 01:30am

6

Bearable with the ice.
Hopefully this doesn't keep up all night again.
Pain feels like it's in a different area. Slightly more around to front in some moments. Then it returns back to the usual spot...


Wednesday 16 November, 2011: 10:30pm - 11:00pm

6

Early to bed, early attack...
Seems worse when I contemplate how much of the night I still have left to go.
Ice / frozen peas.


Wednesday 16 November, 2011: 06:00am - 06:15am

2

Woke up with a small CH.
Lingering feeling, but I can keep getting ready for work and ignore it.
Been sleeping sitting up and with the air con on all night.
This has helped too.
Wont help the electricity bill when it comes but who cares.
Thats 2 fairly good nights sleep in a row
Yay!


Wednesday 16 November, 2011: 03:00am - 03:30am

6

Once again, I slept right through the times that i'd normally get the first couple of attacks.
Again very pleased.
The Endep must be helping.
Yay!


Tuesday 15 November, 2011: 07:00am - 07:20am

5

Slept in.
Really had a good night's sleep last night!
Makes waking up with this headache much more bearable.
And it's not too bad really.
Frozen peas for 10 minutes.
Now off to work.
Feeling more cheery than previous days.
Maybe they will stop soon enough.


Tuesday 15 November, 2011: 05:00am - 05:30am

5

Woke up with the pain but definately not as intense as previous nights.
Could the Endep be starting to help deal with it?
Frozen peas.
Should probably stay awake now but feeling very tired so back to bed.


Tuesday 15 November, 2011: 03:00am - 03:30am

6

Slept through the first usual headache timeslots.
Very happy.
Frozen peas and back to bed.


Monday 14 November, 2011: 05:00am - 05:15am

6

Less intense.
Only had ice on my head for 5 minutes.
Interesting that without asprin, the headaches got less each time during the night.
Can't wait for this to bout to be over...
Went back to bed for 45 mins.
Didn't wake up with one when i got up for work at 6am.


Monday 14 November, 2011: 03:00am - 03:25am

6

Less painful again.
Progressively less each attack tonight.
Regretting going to bed earlier than usual because it just allowed more time to wake up with extra headaches.
But pleased I haven't poisoned myself with useless aspros.
Haven't touched the Maxalt again either.
ice and air con.
Legs ok this time.


Monday 14 November, 2011: 01:00am - 01:25am

7

Not as bad as the first.
Jumpy legs again.
Maybe it's the heat. It's been really hot for a few days straight.
Frozen peas.
Air con on my back.


Sunday 13 November, 2011: 11:00pm - 11:40pm

8

Went to bed early.
! hour later it started.
I threw the aspro's out before I left my sisters house earlier today which is probably a good thing because I probably would have taken them all.
Bad one. Lasted a bit longer too.
Frozen peas and even noticed the jumpy leg thing... Don't think I want that to continue.
Feeling fed up again.


Sunday 13 November, 2011: 05:00am - 05:25am

6

Not as bad.
Looking forward to getting home tomorrow so I can suffer alone without my sister or anybody else to worry about hearing me...
Ice, no aspros.
Up at 6am next day.


Sunday 13 November, 2011: 03:00am - 03:30am

7

Went straight for more Aspro's.
Taking too many.
So i managed to stop myself this time.
Starting to feel nauseas from them.
Just peas and some swearing.
back to bed


Sunday 13 November, 2011: 01:00am - 01:30am

8

Nasty.
really really bad eyes and nose this time.
Frozen peas.
Lots of smashing my head.
Woke my nephew.
After it died down, it just lingered.
This is unusual...
took aspirin to kill the last part.
back to bed.


Saturday 12 November, 2011: 04:30am - 05:00am

8

Another baddie.
same as before but took half as much aspros.
They really dont do anything so gotta break the security of taking something for nothing...
Up at 6am next day


Saturday 12 November, 2011: 03:00am - 03:30am

8

Too soon after the first one.
Intense.
Real bad.
Had aspro's to dim the grunt of it.
Knew I should have got to bed much earlier.
ice
sat outside the back door to avoid waking my nephew up.


Saturday 12 November, 2011: 02:00am - 02:30am

6

Away tonight at my sisters place.
Very late getting to bed.
Usual head pain but i think it was worse than it needed to be because I didn't get up soon enough. I didn't want to disturb anyone in the house.


Friday 11 November, 2011: 06:00am - 06:20am

6

Not too bad.
Went fairly quickly.
No ice this time. No meds.
Just sat up in bed.


Friday 11 November, 2011: 04:00am - 04:30am

8

No Maxalt this time.
It didnt work last night.
So just stuck to the ice.


Friday 11 November, 2011: 02:30am - 02:50am

6


Friday 11 November, 2011: 01:00am - 01:30am

6


Thursday 10 November, 2011: 06:00am - 06:30am

8

Arrgh! Had to try the Maxalt after all.
Didn't get rid of it.
Still lasted half an hour.
Then crashed out and was late for work...
Must admit I did feel more rested than usual.
But too woozy.


Thursday 10 November, 2011: 04:40am - 05:00am

6

round 3...
Hard to walk to the freezer without stubbing my toes. too groggy


Thursday 10 November, 2011: 03:00am - 03:25am

7

Lots of pain.
I think because I was too drowsy to get the ice early enough.


Thursday 10 November, 2011: 01:00am - 01:25am

6

pain was already bad when i woke.
First night trying endep.
Didn't take a Maxalt to see if it works as an abortive.
Didn't want to take endep and maxalt for the first time all in one night.
Ice and air con and tried ice around my feet too.
That actually helped. Thanks Sara!


Wednesday 09 November, 2011: 04:15am - 04:40am

6

last one for the night


Wednesday 09 November, 2011: 03:00am - 03:20am

6

not geting any sleep...


Wednesday 09 November, 2011: 02:00am - 02:20am

6

30 mins after falling asleep from the 2nd attack


Wednesday 09 November, 2011: 01:00am - 01:20am

6

30 mins after falling asleep from the first attack


Tuesday 08 November, 2011: 04:30am - 04:50am

6

last one for the night.
Much easier night than the one before.
air con on must have helped


Tuesday 08 November, 2011: 03:00am - 03:20am

6

another shorter headache than usual.
Ice for 10 minutes


Tuesday 08 November, 2011: 01:00am - 01:15am

6

Went away quickly


Monday 07 November, 2011: 06:00am - 07:00am

8

again, horrible.
beside myself.
neighbours worried from all the noise i made crying out in agony during the night.


Monday 07 November, 2011: 03:00am - 04:30am

9

horrible.
Longest one ever.
beside myself...


Monday 07 November, 2011: 02:00am - 02:15am

5

bearable.
ice for a small while.
disappeared quickly


Sunday 06 November, 2011: 05:30am - 06:00am

4

Woke up after spending the night sleeping lightly in the sitting position.
Definately not any where near as bad.
didnt have to get the ice this time.
Just sat up holding my head.
didnt bother going back to bed after that.


Sunday 06 November, 2011: 04:00am - 04:40am

5

decided to try sleeping sitting up.
didnt work.
still woke up at the usual time with the pain.
didnt seem to be quite as bad.
lasted a bit longer though.


Sunday 06 November, 2011: 02:30am - 03:00am

6

Went to bed late to avoid the first attack last night coz i dont have to get up for work in the morning.
Still exactly 1 hour later was woken up with the usual.
ice pack and sat up


Saturday 05 November, 2011: 03:30pm - 03:30pm

0

Finally got some sleep
slepy 8.5 hours with no headaches at all, all day long.
Thank God!
I really needed that.
Why do I get headaches when i sleep at night but not when i sleep in the daytime?
Maybe I should get a night job so i can avoid them altogether...


Saturday 05 November, 2011: 06:30am - 07:00am

6

Not as bad as during the night.
So tired from lack of sleep.
feels unusual to have the pains when the sun is up.
I know i should stay up now so i dont wake with yet another one but im so so tired.
Ice pack and back to bed.


Saturday 05 November, 2011: 04:30am - 04:40am

8

very painful
but very short
got very hot and worked up, maybe that's why it was so painful.
frozen sunny boy again.
cried a lot out of despair.
when will this ever end?


Saturday 05 November, 2011: 02:50am - 03:20am

9

very intense
really bad
little bit of vomit
smashed my head with the frozen sunny boy


Saturday 05 November, 2011: 01:30am - 01:50am

8

shorter attack than normal
very intense for about 10 minutes of it.
smashed my head with the frozen sunny boy


Friday 04 November, 2011: 05:30am - 06:00am

9

awful.
ice pack.
really hitting rock bottom now


Friday 04 November, 2011: 03:00am - 03:30am

8

ice pack
beginning to feel despair


Friday 04 November, 2011: 01:00am - 01:25am

6

Ice pack


Thursday 03 November, 2011: 07:30am - 07:50am

5

unusual to get one at this time of day
wasn't as bad as the ones during the night.
only needed ice for about 5 minutes when it was at it's worst
late for work though


Thursday 03 November, 2011: 04:30am - 05:00am

8

same as always
ice pack
tried to keep calm


Thursday 03 November, 2011: 02:30am - 03:00am

8

same as always
ice pack
tried to keep calm


Thursday 03 November, 2011: 01:00am - 01:30am

8

same as always
ice pack
tried to keep calm


Wednesday 02 November, 2011: 11:00pm - 11:30pm

8

same as always
ice pack
tried to keep calm


Wednesday 02 November, 2011: 04:30am - 04:50am

8

a shorter attack but not any less painful.
ice pack again


Wednesday 02 November, 2011: 01:30am - 01:50am

8

a shorter attack but not any less painful.
ice pack again


Tuesday 01 November, 2011: 12:00pm - 12:00pm

0

Full nights sleep!
Will this be the end for a while after a 3 month bout?


Monday 31 October, 2011: 05:00am - 05:20am

8

Can't handle it anymore...
Really need a full nights sleep...


Monday 31 October, 2011: 03:00am - 03:15am

8

intense but short.
didn't grab the ice pack this time.


Monday 31 October, 2011: 01:00am - 01:30am

8

frozen ice pack to the temple.
It's good for giving my head a bang here there when i lose control too...


Sunday 30 October, 2011: 05:00am - 06:00am

10

This is one of the worst ones I've ever had.
And lasted about twice as long as usual.
Would have gone to hospital if i thought i could drive myself there. But knew if i did, it would be gone before a doctor saw me anyway.
I screamed and cried and yelled out for help. How embarrassing! Luckily I live alone... but my poor dog was terrified again.

Treatment
I had frozen sunny boy held to the side of my head until it completely melted.
Sat underneath the air con during the intense part of the headache in an attempt to keep cool and stay calm.
Desperately swallowed 6 x 500mg aspro clear tablets even though i'm allergic to asprin. What was I thinking???
Eventually it went away and I went back to bed.


Sunday 30 October, 2011: 03:00am - 03:30am

8

same at 3am, the same as always, with intense pain...
reached for the frozen sunny boy and sat there until it went away 30 minutes later...
Feeling completely fed up!


Sunday 30 October, 2011: 01:00am - 01:30am

8

I woke up at 1am (as usual) with intense pain already kicking in...
I grabbed the frozen Sunny Boy from the freezer and sat at my computer table with it held against my temple in the dark...


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