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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Victoria's CH attack diary

Victoria's Profile

Thursday 08 December, 2011: 12:00pm - 12:00pm


No real headaches since Monday, though still not getting much sleep. I can handle this, hope it continues.

Sunday 04 December, 2011: 07:30am - 11:30am


4hrs sleep post night shift, better than usual.

Saturday 03 December, 2011: 03:30pm - 04:00pm


Woke from nap with shadow, 12hr night tonight, fingers crossed.

Saturday 03 December, 2011: 11:00am - 05:00am


Friday 02 December, 2011: 12:30am - 01:00am


Minimal sleep overnight, oxygen plus wet washer.

Thursday 01 December, 2011: 12:20am - 12:50am


Oxygen plus wet washer.

Wednesday 30 November, 2011: 12:40pm - 08:05am


Total of 3 ch overnight, all lasting around 20-30 minutes. Oxygen only. Will try 50mg dothIepin tonight.

Tuesday 29 November, 2011: 09:15am - 09:30am


Alas a headache! Oxygen wet washer and torodol 15 mg.,gone in less time than the torodol took to work .... Means I didn't't need the torodol! What a waste!

Tuesday 29 November, 2011: 07:30am - 07:30am


Hey no headache since 0140hrs yesterday, and worked a 10 hr night shift, going to bed now, time will tell, but my fingers are crossed!

Monday 28 November, 2011: 09:00am - 09:00am


Hooray got 6 hours sleep, woken feeling a little fuzzy but can cope with that.

Monday 28 November, 2011: 01:30am - 01:40am


Oxygen and cold wet washer. BP 123/85 pulse 74. Decided to try dothiepin hydrochloride 75mg.

Sunday 27 November, 2011: 09:20pm - 09:40pm


Oxygen and cold wet washer. Took my blood pressure during ch 148/91, then when ch over 123/85, think I should monitor my bp a bit closer, need to see my gp and request order for large oxygen cylinder.

Sunday 27 November, 2011: 06:00pm - 06:30pm


3 neurogenic plus and oxygen, only have a concentrator at the moment, will get a cylinder soon, thanks to information obtained from this site.

Sunday 27 November, 2011: 12:20pm - 12:00pm


BP 126/90 pulse 73 oxygen wet washer, really sick of this! Maybe I'll take some dothiepin hydrochloride 75mg for the next 2weeks and see if that helps, I need to get some sleep.

Saturday 26 November, 2011: 11:30am - 11:55am


Friday 25 November, 2011: 04:50am - 05:05am


Friday 25 November, 2011: 03:00am - 03:30am


Friday 25 November, 2011: 01:20am - 01:40am


Friday 25 November, 2011: 12:00am - 12:20am


Thursday 24 November, 2011: 04:00am - 04:30am


Thursday 24 November, 2011: 02:00am - 02:20am