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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Katherine's CH attack diary

Katherine's Profile

Wednesday 15 February, 2012: 12:00pm - 12:40pm


R - really bad, ice, rocking, panting again. Tried to get a tablet (Tensodeine this time) Couldn't manage to take it til about 12:30 when I could see again a bit. Pain already starting to ease back so probably won't do anything much,

Wednesday 15 February, 2012: 10:00am - 11:30am


Still R eye temple & cheek - ongoing ache. Probably not a separate CH - just ongoing

Wednesday 15 February, 2012: 08:50am - 09:35am


Most of the morning had a bit of a shadow (R) and feeling very tired. By the time this one started I was on the rd to work and had to keep going. Middle Near work - Mostly driving with R eye closed and L just open. Panting and holding breath til got to work. Couldn't pull of bridge. Had to keep going. Sat in car for a while then made it to the ladies and locked myself in (cold tiles, panting, rocking - glad noone came in) until about 9:30. I thought I was looking OK - shakey, sweaty and trouble walking in a straightline - but presentable. Immediately got sent home - either they'd take me or call hubby, so called hubby. Couldn't have driven anyway. Very tired. R eye / temple ache so probably a level 3 or 4 shadow still. Try ice first, then mers forte.

Tuesday 14 February, 2012: 10:25am - 11:30am


very stabby R eye - increasing pain til about 11am. Then very weepy R eye as pain eased again back to about a 3. Stiff neck. Very tired - need sleep but can't leave work yet.

Tuesday 14 February, 2012: 09:00am - 12:00pm


Started again - milder than this AM - going to be a bad day.

Tuesday 14 February, 2012: 06:30am - 07:00am


R sided. Bad start to the day - by the time pain eased about 7 went back to bed for 1/2 hr - so tired.

Monday 13 February, 2012: 12:00pm - 12:00pm


Got 15 hrs sleep over last 24 hrs. Still exhausted but better than yesterday. Residual pain from big one Sunday. People at work commented (again) pale, unwell, exhausted. Lovely!

Sunday 12 February, 2012: 08:30pm - 09:30pm


R side again. Pain started milder - although probably shadows all day really. So abit before 8:30 got to about 3. Then quickly up to 5. By 9pm no relief with ice. Took another tablet, by about 9:30 eased back to a 2 or 3 - still totally exhausted. Went to bed before they came back.

Sunday 12 February, 2012: 04:00pm - 07:00pm


R side. Started about 4pm at a level 5 or 6. Kept going. By 5pm panting and holding breath. Though I'd spew. Ice not working. Took a tab (something in my bag, probably a mers forte) hoping to keep it down. By the time hubby came home I had made it to the bedroom (cold and dark and closer to the loo) - face down, panting & holding breath couldn't do anything. I know he stayed nearby. Absolutely exhausted by time it finished. Slept til 7pm ish. Got up and lay on couch til about 8pm.

Saturday 11 February, 2012: 07:30am - 09:30am


Right side

Friday 10 February, 2012: 09:15pm - 10:00pm


Left again

Friday 10 February, 2012: 07:00pm - 08:20pm


Back again - Left this time. Very weepy eye. Started easing about 8.20pm

Friday 10 February, 2012: 09:30am - 05:40am


Right side. Went on most of the day level of pain didn't increase but got harder to deal with. Took 1 tensodeine at 5pm. Pain pretty much gone by 5:45pm. Barely even a shadow.

Thursday 09 February, 2012: 06:00am - 07:30am


Left side - pretty bad. Ice. Can't take tablets this time - have to get to work by 8:15. Very tired all day. Had broken sleep that night (between 9:30pm and 6:00am)

Wednesday 08 February, 2012: 05:30am - 06:40am


Right side. feel like I've had no sleep all night - so tired.

Tuesday 07 February, 2012: 11:00pm - 02:00pm


No idea how many during the night. Left side on and off between 11pm. Must have got about 2hrs sleep before they started, got about 3 hrs after they stopped.