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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Randy's CH attack diary

Randy's Profile

Thursday 14 June, 2012: 05:15am - 10:00am


At least I slept without being woken again. But I woke with the shadow looming, and as I write this it is still there. I haven't had an attack today so that is one good thing. I have my imigran ready to go, in my pocket - just waiting for the full-blown attack before I use it - don't want to waste $60 on something that I could cope with.

I hate these things. They are consistent but also inconsistent. If they were at the same time I could manage my life....

Thursday 14 June, 2012: 01:25am - 02:00am


No such luck! I awake with the all-too-real feeling in my head, stumble down stairs for the ice pack (hoping it has refrozen since it was put back only 2 hours ago...). I stumble around, not really pacing because that implies some speed and some direction. I try to move stuff out of my way so I don't hit it when I walk. I rckon between this one and the last one I have done 5k in my bedroom and hallways tonight. Thankfully not too bad and not too drawn out. But when I fall (and I mean fall) back into bed, shaking and exhausted, I can't sleep. Possibly from the hormones racing back through my body, or perhaps because of the fear of waking up with another one.... Years ago I tried staying awake to ward them off. Not successful. Now I can't go back to sleep because I don't want to wake up with another one. 4 in 24 hours is enough! Surely?

Wednesday 13 June, 2012: 10:30pm - 11:30pm


WTF? Been having shadows all day - since the last one. Pretty bad but not unbearable - just annoying and making me cranky as my family can attest...

I lie down at 10.30 to go to bed and immediately have to sit up - it hits me like a wave and I start pacing. Not unbearable but bad enough. It takes an hour to subside and then I lie down and pray that was it for the night. It takes me an hour or more to get to sleep

Wednesday 13 June, 2012: 01:15pm - 02:25pm


A long attack. Had a meeting this morning and my body seemed to understand that I couldn't be laid up for it - so it gave me a break but then paid me back in spades with a longer attack.

It passed ok but the lingering pain is still hanging on at 8pm as I write this...
Picked up injectable imigran tonight - eff me $125 for 2 shots.... Inhaler did nothing for me years ago. Hope this works better for the cost... I'm also worried about how the hell I get my thoughts clear enough to do everything when it is properly taken hold - or do I waste a shot on something which might otherwise have only been a 4???? I think I will wait for it to have taken hold and then blow $60!

Also started taking inderal and melatonin as a longer term resolution I hope...

Wednesday 13 June, 2012: 12:40pm - 01:10am


Middle of the night attack. Woke up too hot and thought it was a normal migraine. Went downstairs, popped a mersyndol and went back to bed. Lay down and then it hit... I can't lie down when. Have these things - it just screws meup too much.
Got up, went outside in the cold - bare feet, limited clothes - in order to drop my core temp. This seems to work for me - but only really an option in the middle of the night. Not sure I could strip offset work!
Short attack this time thankfully. Stayed outside till it started passing and then paced a little till it had gone and went back to bed. Couldn't sleep for about 2 hours in the aftermath but better than some other nights. Starting to fear going to bed because I know 5 nights out of 7 I will be awake again an hour or two later...

Tuesday 12 June, 2012: 12:20pm - 12:50pm


Not too bad as a follow up. Team mates more relaxed. No crying (by me) this time... Not sure if anyone else cried!!!!
The pain lasted a while after the peak had passed - but bearable. Had one in the middle of the night too but I hadn't started tracking them by then.

This is about 3 or 4 weeks into my episode. Has changed to left side this time around. Been about 5 years since my last episode. I really thought I had these f@#%#ers beaten. But no such luck....

Tuesday 12 June, 2012: 08:15am - 09:00am


Started on the train on the way in.
By the time I got off the bus, pretty well set in place - I know what is gonna happen....
By the time I got to work, can't see out of one eye, can barely cope with light coming in the other eye.
Scared the shit out of coworkers who hadn't seen this before. Sorry guys.
One close coworker ran interference and got me water etc and had to witness it.... Wanted to die. Really bad one. Lasted about 45 minutes of full impact. The flow of relief after it passed was wonderful.