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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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's CH attack diary

's Profile

Wednesday 02 March, 2016: 12:00am - 12:00am


Seem to have stopped now. Thank goodness

Friday 19 February, 2016: 07:30pm - 06:30am


Had 6 headaches over 8 hours. Left my hearing diminished by around 50-70%. Headaches changed overnight to back of neck and top of head on Friday night and for few days afterwards. Nausea attacks and tight band around forehead. Got tinnitus for a week. Very weird. Had 3 weeks of clusters up until that point but haven't had any since that Thursday/Friday when the headaches changed. Got MRI scan but didn't get results back so assume all was ok.

Above period: 2 Attacks over 1 days.

-- Period of remission (31 weeks, 1 days) --

Thursday 16 July, 2015: 01:10pm - 01:25pm


They just wont leave me alone. Went to Physio last night as this time around I have neck issues. Neck is giving me trouble today too. Don't usually get such strong shadows through the day like this though. Going to be in for it tonight.

Thursday 02 July, 2015: 06:30pm - 11:30pm


Headaches most days. Not last night though which was great. Never had these clusters for this long before. 9 weeks already! Wish they would go AWAY!

Tuesday 23 June, 2015: 06:40pm - 07:10pm


No such luck as being over. Headache tonight. Oh well. At least I had 4 nights without them. Imigran didn't stop it again but did reduce intensity.

Monday 22 June, 2015: 12:00pm - 12:00pm


No headaches for 3 nights. Only twinge in left temple but headache didn't come on. Maybe the cycle has ended? So hopeful after almost 7 weeks.

Thursday 18 June, 2015: 06:30pm - 08:30pm


2 hours and Imigran didn't help at all. Totally exhausted. While not the worst headache, definitely the longest. When will they end?

Wednesday 17 June, 2015: 10:30pm - 10:55pm


All week - every night regardless of what I do to try to prevent them. Aaargh! Thank goodness the Imigran Spray is working but it requires constant trips to the Chemist which is hard when you are away from home and no car.

Thursday 11 June, 2015: 10:00pm - 10:10pm


Pain in temple woke me up so scrambled for Imigran. First time use. Pharmacist said to prime it. Dummhy! You cant prime it so lost the doze. Sniffed the air anyway and the headache went away. Still not sure if Imigran helped or was not really a cluster. Tonight will tell.

Wednesday 10 June, 2015: 06:30pm - 07:20pm


These headaches are lasting longer. Not quite as severe as I have had but still debilitating. Just keeps going and going. Exhausted when they are done,

Wednesday 10 June, 2015: 09:00am - 02:00am


I am going to get a bad one tonight again. 4 weeks this time.

Above period: 9 Attacks over 23 days.

-- Period of remission (31 weeks, 5 days) --

Friday 07 November, 2014: 07:00am - 09:00am


Been like this since I got up. Unusual to feel any twinges or shadows in the morning. looks like I am in for a bad evening

Thursday 06 November, 2014: 07:00pm - 08:15pm


This one not as bad as Tuesday night. Seemed to come and go. Bad stabs of pain and then felt like it was subsiding. Sinus partially filled up. Neck sore. Stabs of pain here and there. Yawning. Can't stand ANY light! Still uncomfortable but not the massive pain these headaches usually give me.

Tuesday 04 November, 2014: 06:00pm - 06:45pm


Came on suddenly. Have no medication. Could do nothing. So nauseous!
Started with pain in right top corner of the left eye and pain in the left temple
Pain radiated down my neck
Nose and sinus filled up on left side
Eyes watering. Light feels like lasers going through my eyes.
Yawning non stop. Big wide, deep yawns.
Pain rotating around head, stabbing, jabbing
Pain through left ear - stabbing
pain in all teeth left side of head - still yawning
Eyes watering like a tap - nose running and sinus still blocked

Monday 03 November, 2014: 08:30pm - 09:30pm


No treatment as Relpax doesn't work anymore. Just have to suffer it. Might go see the Doctor again for all the good it will do

Above period: 4 Attacks over 4 days.

-- Period of remission (8 weeks, 4 days) --

Thursday 11 September, 2014: 06:00pm - 07:00pm


3 weeks of these headaches this time. Forgot to log them. Only Relpax to take and they don't seem to stop the headaches, just tone them down a bit.

Above period: 1 Attacks over -425 days.

-- Period of remission (61 weeks, 6 days) --

Thursday 11 July, 2013: 10:45pm - 11:05pm


Woken from sleep again! Every night this week nearly. Hate it!

Wednesday 10 July, 2013: 10:00pm - 10:55pm


Again. No shadows through the day but got awoken from my sleep. Relpax took ages to work and Redbulll had no effect

Tuesday 09 July, 2013: 10:10pm - 10:30pm


Again. Maybe should try to trick it and stay up later

Monday 08 July, 2013: 10:30pm - 11:45pm


Another one and this time Relpax took 30 mins to work :(

Sunday 07 July, 2013: 10:00pm - 10:30pm


Again, woken out of my sleep but although the sinus filled up and top jaw hurt, this wasn't as bad as Friday night. Didn't have any medication as I used the last Relpax on Friday night, Only lasted half an hour and didn't get to full intensity.

Friday 05 July, 2013: 11:00pm - 11:30pm


Thought I was over the cycle. Alas, no. Had to take last Relpax.

Thursday 04 July, 2013: 06:00am - 12:00pm


No headaches since Friday night. Maybe I am out of the cycle?

Friday 28 June, 2013: 10:00pm - 10:30pm


Not a twinge all day and then wham - an hour after going to bed I wake up with full on pain in top jaw, eye. temple, forehead and neck. Had to take Relpax. Doctor only gave me 4 pills. I have had 3 headaches since last week and now he says he can't give me more. One pill left but two weeks before I can see him again. Going to be murder after last pill gone. It's not fair that they restrict a drug that treats pain as horrific as these headaches. I will ask to see a Neurologist if the GP is restricted in offering me sufficient treatment.

Wednesday 26 June, 2013: 04:00am - 09:00am


Especially worse after brain scan (CT) yesterday

Tuesday 25 June, 2013: 10:00am - 12:00pm


Only had twinges until CT scan. Pain in corner of eye and temple increased after that. Tried not to take a Relpax and bear with it through the day but couldn't go back to work for fear of full on headache.

Monday 24 June, 2013: 05:00am - 09:00am


Sunday 23 June, 2013: 12:00pm - 12:00pm


Saturday 22 June, 2013: 05:00am - 09:00am


Had to take Relpax. Fortunately headache didn't get horrible and was over in half an hour

Friday 21 June, 2013: 07:00am - 05:00am


None - just waiting for it to strike this evening

Above period: 13 Attacks over 21 days.

-- Period of remission (707 weeks, 3 days) --

Tuesday 30 November, 1999: -