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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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BOBCOM's CH attack diary

BOBCOM's Profile

Wednesday 28 October, 2015: 04:00pm - 04:15pm

5

Diagnosed Chronic sufferer in March of this year (2015).
720mg Verapamil per day was controlling the headaches for a while, can't afford not to take them at all.
last few weeks the headaches have been recurring, up to 7 per week at the moment, mainly 5-6/10, one 9/10. oxygen helps to alleviate the pain, but I will have to go back to Dr Butrev at Lang Lang Medical Centre.
I don't think that he will increase the Verapamil, next step will be to try nerve blockers. I am not looking forward to that idea.
I think it would be better if a cause could be found, at least then treatment for a particular malady could be tried.
Scans found nothing two years ago, I wonder if anything would show up now?


Above period: 2 Attacks over 1 days.

-- Period of remission (37 weeks, 0 days) --


Wednesday 11 February, 2015: 02:00pm - 11:50pm

7

5 events today, o2 helps, starting back on predisnolone in the morning.
over the last month events have been escalating, ranging in severity, average around 2 per day for the last week and a half, prior to that varying with average 1 per day.
almost see a pattern in the timing of afternoon and early hours of the morning,


Wednesday 11 February, 2015: 02:00am - 03:00am

6

was hoping to get a good night sleep, early hours attacks have been spasmodic but seem to becoming more frequent.
afternoon/evening have been more constant over the last few days


Above period: 2 Attacks over 1 days.

-- Period of remission (4 weeks, 3 days) --


Sunday 11 January, 2015: 08:15pm - 09:00pm

6

O2 seemed to work @ around 10 minutes, pain reduced to around 2, another ten minute on it was back up again so more O2;
Seems that the next cluster is here. whoopie


Sunday 11 January, 2015: 02:00pm - 02:45pm

4


Wednesday 07 January, 2015: 10:00pm - 11:00pm

6

best part of a month free


Sunday 21 December, 2014: 06:00pm - 08:00pm

1

after 2 weeks of relative quiet, the shadows have returned.
seem to be very tired today, I've had two naps this afternoon, although only short, still feel like haven't slept for days and I have been getting more sleep than in recent times.
Neurologist has put me back onto steroids 8/12/14; about to finish that course of meds


Monday 08 December, 2014: 05:00pm - 06:00pm

8

driving, had to stop for Dianne to take over, 5kms later couldn't stay in the car.
Walked maybe 100 mts, then it was down on the ground and put my own head in a headlock.
by passers stopped at the side of Bass highway to see if I was ok. Just wanted to be left alone, and intensity was easing again


Thursday 04 December, 2014: 10:00pm - 10:40pm

7

not again!


Thursday 04 December, 2014: 08:20pm - 09:10pm

6

10 minutes of O2 pain was nearly gone (for about three minutes), and then back up there again


Thursday 04 December, 2014: 05:00pm - 05:30pm

5

here we go again; so tired, dozwd off in chair for around 15 minutes, woke up to the shadows, then off it went, happily at home, O2 is handy and seems to make the difference!


Thursday 04 December, 2014: 05:00pm - 05:30pm

5

here we go again; so tired, dozed off in chair for around 15 minutes, woke up to the shadows, then off it went, happily at home, O2 is handy and seems to make the difference!


Tuesday 02 December, 2014: 06:20pm - 07:10pm

7

long day at work, out in the sun most of it, came home feeling exhausted and needing a nap. phone rings and I'm needed at a power fault, so I go.
Halfway there (2.5km trip) that feeling is there, walked into customers home, they said do you have a headache? told them I'll be back tomorrow and left again. Managed to drive home, but by the time I was there sight was blurry, pain 7/10.
Thank god the O2 seems to make a difference!


Monday 01 December, 2014: 09:40pm - 11:30pm

1

9-00pm ~ 11-30pm total
that's the longest I can remember the "shadows" staying with me, happily it didn't go any further this time.


Monday 01 December, 2014: 09:00pm - 09:40pm

1

for god's sake!!! at least this is bearable, 40 minutes in staying with me, I'm knackered for lack of sleep as usual, might take some sleeping tablets tonight


Monday 01 December, 2014: 12:20pm - 12:40pm

3

awake due to being constipated, hoping like hell that this one wouldn't develop, still awake 2-30am


Monday 01 December, 2014: 03:05am - 03:35am

6

already exhausted, got to be up at 7-00 for work, not going to be a good day


Saturday 29 November, 2014: 08:20pm - 08:40pm

6

at x-mas breakup for CERT, walked outside with Di, pain began with pulsing to eye and temple, one minute later I was crossing the road to go home and pain was already up to a 4/10, As we live across the road from the hotel it doesn't take long to get home, went straight in and put on the O2, 8-34 pm pain already subsiding again, down to 2/10, pity that I can't carry O2 everywhere with me, Even more of a pity that these episodes occur at all.


Friday 28 November, 2014: 03:00am - 04:10am

4

4 events all about same level, 3-00am & 4-00am woke me, noon and 3-45pm both in minor range, (about 4/10), the last of them seemed to be heading upwards until I used O2 which in this case was handy.
No events from Tuesday arvo until 3-00am, thought maybe cluster over or new meds' having effect.


Wednesday 26 November, 2014: 12:00pm - 12:00pm

1

missed both am and pm today, woke around 2-00am and looked at the clock with trepidation, half slept the rest of the night wondering when?


Tuesday 25 November, 2014: 03:25pm - 03:45pm

4

I had fallen asleep on the couch, very tired. woke up and thought there's a twinge which increased slower than normal for me, used O2 again, the pain was escalating and then just stopped. Wish I could carry O2 around with me everywhere just in case it wasn't just one of the normal random events of the CH cycle.


Tuesday 25 November, 2014: 02:00am - 02:20am

5

started O2 after about 5 minutes, seemed to reduce the severity, still unsure about that


Monday 24 November, 2014: 01:00pm - 01:40pm

9

took 2 x neurofen at onset, pain down from 9 - 6/10 at around 1.30pm, o2 @ 15lpm, pain down to 2/10 1.35pm.
140pm, pain 1/10


Monday 24 November, 2014: 02:45am - 03:30am

6

already taken double veracaps (480mg)


Wednesday 19 November, 2014: 08:00pm - 08:40pm

9

At Rotary dinner meeting, started to feel twinge to lhs temple, felt blood vessel there strong / prominent pulse.
within 2 minutes I knew it was a whopper, walked outside of meeting room, removed false teeth and glasses as these were annoying, tried standing with head against wall, nothing I can do at this stage to reduce the pain, ended up sitting in the dirt with my back against an adjoining chain wire fence, breathing rapidly in an attempt to master the pain and stop myself from yelling out. after 15 or so minutes I was able to re enter the meeting room at which time the other members there saw my condition (down to 5/10 by this time). The meeting was stopped so that I could be driven home. I am told that I looked shocking at that time, I wonder how I must have looked when it was full on!


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