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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Woo's CH attack diary

Woo's Profile

Monday 14 March, 2016: 10:00am - 07:00pm

4

Shadows becoming more severe as day continues - only took panadol


Sunday 13 March, 2016: 10:00am - 04:00pm

3

Shadows all day


Saturday 12 March, 2016: 12:00am - 01:00am

3


Tuesday 01 March, 2016: 07:00am - 10:00am

6

Woke up with CH. Eyes blurry hard to focus. Tried to go to gym but couldn't. Used Nasal spray followed by 2 panadol. Faded to shadow by afternoon.


Monday 29 February, 2016: 04:00am - 05:30am

5

Woke with CH.used Immigran nasal spray.


Friday 26 February, 2016: 08:00am - 08:30am

3

Tension type head above temple both sides - took 2 panadol


Monday 22 February, 2016: 04:00pm - 04:30pm

0

Saw GP for review. I reported no fewer attacks over last month but intensity has decreased. Also numbness around eye, temple and back of head remains. Advised to increase Verapamil to 360mg per day. To be reviewed in another 4 weeks.


Sunday 21 February, 2016: 07:30am - 02:30pm

2

Shadow most of day - no medication taken


Saturday 20 February, 2016: 04:00pm - 12:00am

5

Had 3 x glasses champagne over lunch
4pm - Shadow started & intensity kept increasing
5pm - Took Suma spray at 6pm - eased off slightly
10pm - pain & numbness around eye - took 1 mersyndol


Thursday 18 February, 2016: 10:00pm - 12:00am

4

Pain around eye - couldn't sleep - took 1 x mersyndol


Wednesday 17 February, 2016: 01:00pm - 03:00pm

3

Shadow continued throughout day - took 2 more panadol


Saturday 13 February, 2016: 01:30am - 03:30am

3

Woke up with pain and numb feeling around eye, cheek and back of head. Took 2 panadol. Tried going back to sleep but couldn't.

No relief so had Suma nasal spray at 2.30am - dulled the CH. Fell back to sleep around 3.30am.


Thursday 11 February, 2016: 10:30am - 12:30pm

2

Woke up with Shadow around left eye and across cheek. No energy.


Thursday 11 February, 2016: 01:30am - 03:00am

4

Woke up with pins and needles type ache above eye and pain around and behind left eye. Took 1 x mersyndol


Wednesday 10 February, 2016: 09:00pm - 09:30pm

2

Dull ache. Pins and needles above left eye. Took 2 panadol and went to bed.


Friday 05 February, 2016: 05:00pm - 06:30pm

3

CH closing in so used Suma nasal spray. Settled down by 6.30


Tuesday 02 February, 2016: 12:30pm - 01:00am

3

Had catnap in recliner after Stretch Class. Woke with another headache. Took 2 more panadol. Reluctant to take another Suma Nasal dose after being sick last night


Tuesday 02 February, 2016: 08:00am - 08:15am

3

Woke up with headache not severe took 2 panadol. Doubled dose of Verapamil to 240 mg per day as advised by Dr because of breakthrough headaches. Sigh!


Monday 01 February, 2016: 08:00pm - 08:15pm

1

Shadow only but nauseous and vomited half way through dinner. A bit numb on left side of face and back of head and down left side of body


Monday 01 February, 2016: 03:00pm - 03:30pm

5

6th Day of Verapamil. Woke up with slight Shadow. Went to 1st day of tap dance class. Watched tap videos in afternoon. CH started around 3pm. Took 20ml Suma Nasal Spray. Numbed it slightly.

Breakfast Cereal, toast & apricot Jam
Snack Strawberries
Decaf Coffee
Lunch Beef Burger Slider with spinach, tomato, beetroot & beef pattie


Tuesday 26 January, 2016: 12:00pm - 12:00pm

0

1st day of 120mg day Verapamil. Let's see how it goes!


Monday 25 January, 2016: 03:20pm - 03:20pm

0

Saw GP today. She prescribed 120-240mg Berapamil tabs per day & 10mg Sumatriptan nasal spray for use as needed. She said 02 difficult to get and thought in addition to CH I may have Trigeminal Neuralgia. I see her again in 4 weeks for review.


Saturday 23 January, 2016: 09:30pm - 10:00pm

2

Slight shadow after taking 2 x mersyndol
Pins & needles & numb feeling left side of face & head


Saturday 23 January, 2016: 04:00pm - 04:30pm

3

Bearable left side CH Shadow. Slightly light headed with pins and needles in right hand and occasional shooting twinge in arms from all the meds.
No further medication


Saturday 23 January, 2016: 11:00am - 11:30am

10

Left CH and whole head unbearable.so sought relief from Chemist until Dr appointment on 25/1.. Given Nurofen + and Mersyndol
2 x Nurofen Plus
Duration 2 hours - Left CH dulled to bad shadow.


Saturday 23 January, 2016: 08:00am - 11:00am

9

Left side of head exploding! Waves of CHs every few minute + full headache.
2 panadol & 1 Sudafed
Duration 3 hours


Saturday 23 January, 2016: 05:00am - 05:30am

8

Woke full on CH left eye piercing pain combined with whole head headache
2 panadol + Sudafed
Duration 30 minute until slightly dulled


Friday 22 January, 2016: 12:00pm - 01:00am

10

Full on CH left side of head - felt like it was exploding. Exacerbated by hot weather & alcohol (taken for relaxation which obviously didn't work)
3 x panadol
Duration 1 hour when I went to sleep. Woke at 5am just as bad


Friday 22 January, 2016: 08:00am - 12:00pm

7

Left CH side of head/face/eye nose/temple - exhausting
6 panadol over 12 hours
Duration Continuous in waves of CHs from 30 secs to five mins


Thursday 21 January, 2016: 12:00pm - 12:00pm

4

Shadows left side of face/eye/nose/temple
4 panadol over full day
Duration continuous


Wednesday 20 January, 2016: 12:00pm - 12:00pm

3

CH + Shadows left side of face/nose/eye/temple
2 x panadol on waking (6 total during day)
Duration continuous shadow + CHs of 30 sec to 5mins duration


Tuesday 19 January, 2016: 01:00pm - 01:30pm

8

Severe left eye pain very sudden while out shopping. Couldn't focus. Had to sit down until it passed.
2 x panadol
Duration 30 minutes in peaks every few minutes


Monday 18 January, 2016: 01:00pm - 08:00pm

3

Shadows left side of face/nose/eye/temple
No medication
duration continuous


Saturday 09 January, 2016: 07:00am - 12:00pm

3

All day shadows left eye + full temple
6 x panadol over 12 hours
Duration all day


Friday 08 January, 2016: 07:00am - 11:00am

3

All day shadows left eye and temple
6 x panadol over 12 hours
Duration all day


Saturday 02 January, 2016: 07:00am - 10:00am

5

CH piercing left eye - red & blurry
2 x panadol
Duration on & off 3 hours


Saturday 02 January, 2016: 02:00am - 03:00am

7

Severe left eye pain woke me up
2x panadol
Duration on and off for 1 hour & went back to sleep


Sunday 13 December, 2015: 12:00pm - 01:00pm

4

Pain behind left eye
2 x panadol
Duration 1 hour


Saturday 12 December, 2015: 08:00am - 08:15am

4

Pain behind left eye on waking
2 x panadol
Duration 15 mins


Saturday 05 December, 2015: 08:00am - 12:00pm

1

Morning shadows behind left eye
No medication
Duration 4 hours


Friday 04 December, 2015: 08:00am - 12:00pm

3

Morning shadows + dull ache behind left eye
2 x panadol
Duration 4 hours


Thursday 03 December, 2015: 08:00am - 12:00pm

1

Morning shadows behind left eye
No medication
Duration 4 hours


Thursday 03 December, 2015: 08:00am - 12:00pm

1

Morning shadows behind left eye
No medication
Duration 4 hours


Tuesday 01 December, 2015: 01:00pm - 04:00pm

1

CH shadow right temple
No medication
Duration 3 hrs


Tuesday 01 December, 2015: 08:00am - 08:30am

4

Pain behind left eye on waking
2 x panadol
Duration 30 mins


Monday 30 November, 2015: 02:00pm - 02:30pm

3

Right temple pain
No medication
Duration 30 mins


Sunday 29 November, 2015: 02:00pm - 02:15pm

4

Pain behind left eye
2 x panadol
Duration 15 mins


Sunday 29 November, 2015: 09:00am - 09:15am

4

Pain behind left eye
2 x panadol
Duration 15 mins


Saturday 28 November, 2015: 08:00am - 08:30am

3

Pain behind left eye on waking
No medication
Duration 30 mins


Friday 27 November, 2015: 08:00am - 08:30am

4

Pain behind left eye on waking
2 x panadol
Duration 30 mins


Above period: 48 Attacks over 109 days.

-- Period of remission (762 weeks, 3 days) --


Tuesday 17 April, 2001: 987458400 - 987460200

3

Woke up with shadow - took 2 panadol


Above period: 1 Attacks over -11,428 days.

-- Period of remission (1,633 weeks, 5 days) --


Thursday 01 January, 1970: -

3

Took 2 panadol


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