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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Rick-FE69FCC6E1's CH attack diary

Rick-FE69FCC6E1's Profile

Tuesday 27 February, 2018: 12:00am - 12:00am

0


Monday 26 February, 2018: 12:00am - 12:00am

0


Sunday 25 February, 2018: 12:00am - 12:00am

0

Another clear day. That just about confirms that I'm over this episode hopefully. I'll stay on the Verapamil till they're gone. About a week.


Saturday 24 February, 2018: 12:00am - 12:00am

0

Nothing. Feeling great. So pleased. I've only waited 48 years for a pharmaceutical relief of the pain. Thanks to this site, I was able to hand my GP all the relevant information to enable treatment. He had not seen a CH sufferer prior.
Now I need advice on withdrawal from Verapamil.


Friday 23 February, 2018: 12:00am - 12:00am

0


Thursday 22 February, 2018: 12:00am - 12:00am

0

Looking good. 6 week episode. A little shorter than usual. I'll put that down to the Verapamil. Pain has been reduced during attacks due to the Imigram. Hoping this is the end of this one.
3 clear days usually a good indication.


Wednesday 21 February, 2018: 12:00am - 12:00am

0


Tuesday 20 February, 2018: 12:00am - 12:00am

3

Day started with mild shadows, gradually increasing during the day. Tried working hard, but pain relief needed. Mersyndol x2. Helped but not much.


Monday 19 February, 2018: 12:00am - 12:00am

1

Slept well all night. Moderate shadows all day. Uncomfortable.


Sunday 18 February, 2018: 12:00am - 12:00am

0


Saturday 17 February, 2018: 02:00am - 02:30am

2

Awoken by mild pain. Imigram and back to sleep. Shadows again all day.


Friday 16 February, 2018: 01:40am - 02:10am

3

Awoken by moderate pain. Imigram and 15-20 min back to sleep. Mild shadows all day.


Thursday 15 February, 2018: 12:00am - 12:00am

0

Good nights sleep. Shadowlands in the morning. Bearable,


Wednesday 14 February, 2018: 02:40am - 04:00am

4

Awoken at 2-40am with moderate to severe pain. Imigram.
15-20 min then relief. Mild pain kept me awake for a while. On awakening in the morning, severe shadows.


Wednesday 14 February, 2018: 12:00am - 12:00pm

0

Slept all night. No shadows all day


Tuesday 13 February, 2018: 12:00am - 12:00pm

0

Slept all night. No shadows.


Sunday 11 February, 2018: 02:10am - 02:25am

1

Awoken with mild pain. Imigram resolved within 10 min. Back to sleep.


Saturday 10 February, 2018: 12:00am - 12:00am

0

Slept all night. Getting confident that Imigram & Verapamil is working for me. Starting to feel better during the day as well. Reduced shadows.


Friday 09 February, 2018: 12:00am - 12:00am

0

Slept through.


Thursday 08 February, 2018: 12:00am - 12:00am

0

Slept through the night.


Wednesday 07 February, 2018: 01:00am - 01:30am

2

As / last night. Resolved after Imigram and back asleep.


Tuesday 06 February, 2018: 02:00am - 02:50am

2

Same as last night. Imigram resolved pain within 30 - 40 min..
Back to sleep.


Monday 05 February, 2018: 02:05am - 03:15am

3

Awoken with pain, less than normal. Took Imigram. Pain didn't increase as it usually does. About 1 hr of symptoms then resolved..


Sunday 04 February, 2018: 02:00am - 03:00am

2

Awoken after 3 hours sleep by mild CH.
Had started Verapamil 180mg yesterday. Took Imigram NS 20mg. For first time. BP149/77 HR 66.
Aiming for reduction in severity & duration of attack..
Certainly achieved both.


Saturday 03 February, 2018: 12:40am - 12:00am

5

Awoken by moderate CH pain after 2 hrs asleep. Imigram at
12-45 am.. nil relief at 1-15. Imigram. Pain now at 6.
Took BP for first time ever during attack. 194/93 HR 60
At 10 min later 193/94. HR 60
Finally, relief at 1-50.
Friday was a day of heavy shadows all day, with the fear of impending attack. Much greater than usual.


Friday 02 February, 2018: 01:25am - 02:35am

7

Awoken by moderate CH 2 hours after bed. Imigram at 1-30. Nil relief at 1-50. Imigram. Pain becoming much more severe, now 6-7. At 2-15, pain terrible. Shocking.
2-35, that sudden easing. Rapid relief.


Thursday 01 February, 2018: 02:15am - 03:05am

7

Awoken by severe CH 2 hrs after bed. Imigram at 2-20. Nil relief at 2-45. Another imigram.
Finally, at 2-55, that wave of relief I'm coming to rely on.
Rapid relief & pain free at 2-05.


Wednesday 31 January, 2018: 12:25am - 12:45am

6

1 1/2 hrs after bed, awoken by severe CH.. imigram with easing within 10-15 min.. Restless night followed.


Monday 29 January, 2018: 02:40pm - 05:45pm

6

Typical CH at low level. 50mg Tramadol. Nil relief at 5pm. Starting to intensify at level 5. Started at level 3. Now, at 5-15 level 6. Intolerable constant pain. Took Imigram. Relief started about 5-30 and had resolved by 5-45, but had "mini incursions " of bursts of pain that self resolved after 2-3 minutes.


Monday 29 January, 2018: 12:20am - 12:45am

6

Nasty one. Disappointed. Have gone so well. Awoken in severe pain. Took imigram tab immediately. Waiting. Pain reduced within 15-20min. All clear by 1:15am.
Good stuff.


Sunday 28 January, 2018: 11:40am - 03:05pm

3

As previous attack. Typical CH at low level. Quite annoying, but coping with Tramadol.


Sunday 28 January, 2018: 01:25am - 07:00am

3

Awoken by pain typical CH lower level. Mersyndol taken and back to sleep. This repeated on 3 occasions during the night with no breakthroughs of the beast.
Annoying, but coping well with no "attacks".
Also seeing a reduction in resting heart rate. Still high, but improved.


Saturday 27 January, 2018: 12:55pm - 01:50pm

3

First pain episode of real note since starting prednisone.
Panadol control. Very hopeful. Prior use of prednisone has not been successful.


Friday 26 January, 2018: 05:20am - 07:15am

4

Had a good nights sleep. Was awoken by mild pain typical CH at low level.
Doctor started me on prednisolone 50mg for 5 days, & sumatriptan 50mg when reqd. Hoping!
Bloods came back ok. Awaiting scan result.


Thursday 25 January, 2018: 01:40am - 02:55am

6

15 min after last attack. That's 3 in a row. Typical CH.
Same as last, and ran its course. Can't go on. This is intolerable. The pain is incessant, and the fear of continuing is not on. Must see doctor tomorrow after brain scan.
Sumatriptan subcutaneous only option with a long weekend coming up.


Wednesday 24 January, 2018: 11:50pm - 01:25am

6

50min after sleep. A usual attack. No nausea or vomit.
Ran its course.


Wednesday 24 January, 2018: 09:15pm - 10:15pm

6

Rapid onset after a couple of beers. Severe pain, nausea, followed by projectile vomit.
Beer has not been a trigger in the past.
Strange.
Mersyndol of no use at all.


Tuesday 23 January, 2018: 08:30pm - 10:45pm

7

Shocker. Nausea & intense pain. No triggers noted. No relief from mersyndol + panadol.
Still active pain at 11pm (much reduced). Had bloods taken today looking at thyroid. Also ecg as my resting heart rate, usually 54-58. Now 75-77.
Brain scan Thursday.


Tuesday 23 January, 2018: 12:05am - 01:15am

3

Doctor started me on mersyndol today. Took 1 on commencement of episode. CH ran its usual time frame, but possibly prevented escalation.


Monday 22 January, 2018: 09:00pm - 09:45pm

4

Quite mild episode while watching tv.


Monday 22 January, 2018: 01:00am - 02:40am

6

Mild.


Sunday 21 January, 2018: 06:00pm - 08:00pm

10

Shocker. Terrible pain. Head banging on br floor. Passed out with pain. Doctor tomorrow. Have no CH history with him. Interesting. Also vomited on floor. Think that was endone.


Friday 19 January, 2018: 11:30pm - 01:30am

8

Getting worse. Need relief. Used endone that was on hand. Too slow to get relief. Felt ill in morning.


Wednesday 17 January, 2018: 11:45pm - 01:30am

7

Typical episode. Using cold tiles in bathroom for relief with little effect.


Tuesday 16 January, 2018: 11:50pm - 01:30am

7

Typical attack. Getting very weary during the day. Tramadol ineffective.


Monday 15 January, 2018: 10:15pm - 11:50pm

7

Same as yesterday. Had gone to bed early. Approx 1 hour after, episode started.


Sunday 14 January, 2018: 01:30am - 02:40am

7

Typical onset & pattern. Took tramadol that was on hand. Very little if any relief.


Saturday 13 January, 2018: 01:00am - 02:15am

7

Totally unexpected after 10+years of remission. Typical of previous attacks on the medium scale. What was the trigger after all this time. My GP had put me on amitriptyline & naproxen 1 week previous for OA of the neck. Suspect???


Above period: 34 Attacks over 39 days.

-- Period of remission (946 weeks, 4 days) --


Tuesday 30 November, 1999: -


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