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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Yoshimi's CH attack diary

Yoshimi's Profile

Thursday 16 September, 2021: 09:00am - 10:00am

4

40 minutes of breathing cleared it. It didn’t progress too far.


Friday 10 September, 2021: 07:30am - 08:15am

4

Upon waking.
Did breathing but it took 40 minutes to clear. Feels less effective.


Monday 06 September, 2021: 11:00am - 11:45am

4

40 minutes breathing.

I think it was a continuation of the earlier headache.


Monday 06 September, 2021: 09:00am - 09:45am

5

Thought I was fine this morning but it came out of nowhere.

Did breathing for 40 minutes or so.


Saturday 04 September, 2021: 09:45am - 10:30am

6

I guess I didn’t fully clear the one earlier.

It returned worse, took 40 minutes breathing to clear. Still feeling pressure around my head an hour later.

Had to use the ice pack. Writhing.


Saturday 04 September, 2021: 08:00am - 08:30am

3

30 minutes wh breathing.
Arrived after waking up


Friday 03 September, 2021: 08:30am - 09:00am

3

Started the breathing earlier after waking up.


Thursday 02 September, 2021: 07:30am - 08:00am

4

They now arrive about 30 minutes after waking. Strange.


Wednesday 01 September, 2021: 06:00am - 06:30am

3

Started the breathing earlier than usual. Only needed 20 minutes breathing to clear it.

Still. Hoping they f off soon.


Tuesday 31 August, 2021: 07:30am - 08:00am

4

Arrived after I got up. Attacked it early with breathing. 30min.


Monday 30 August, 2021: 09:00am - 10:00am

5

Worse than earlier.

Took 40 min WH breathing to clear. Took Voltaren also.

My eye was really tearing like a river.


Monday 30 August, 2021: 06:30am - 07:00am

4

Started right after I woke up.

Annoying.

30 minutes WH breathing cleared it and I went back to sleep.


Sunday 29 August, 2021: 11:30am - 12:30pm

5

Probably the worst one of the bunch.

Did 40 minutes of breathing before it passed. Icepack on my head. Strong shadows remained for hours after.


Sunday 29 August, 2021: 07:30am - 08:00am

2

I think this was a precursor to the bigger one 4 hours later. My head stayed achey all morning.


Friday 27 August, 2021: 07:30am - 08:00am

4

Slept through the past 2 nights with none! Great.

But then one shortly after waking. Did 30 minutes wim hof breathing to clear it.


Thursday 26 August, 2021: 12:00am - 12:00am

2

Did 30 minutes WH breathing before sleep.

Slept through the night, headache free, amazing!

Twinging morning though. Last 3 mornings have been the same. Dull headaches.


Wednesday 25 August, 2021: 06:30am - 07:00am

5

Enough to wake me up.
Massaging head with knuckles. Got out of bed to pace.

Aborted with deep breathing 20 minutes.

I’m consistently amazed at how quickly deep breathing aborts the headache.


Wednesday 25 August, 2021: 04:30am - 05:00am

4

Aborted with Breathing 20 minutes.

This one wasn’t so bad. I was too tired to properly address it.


Wednesday 25 August, 2021: 12:30am - 01:00am

4

Abort with Wim Hof Breathing 30 minutes.

Annoyed that it arrived only 2 hours after going to sleep.


Tuesday 24 August, 2021: 07:30am - 08:15am

4

Wim Hof breathing for 30 minutes took the intensity down.

I'm left with shadows though.

No further medications because I only took the Voltaren 3 hours ago.


Tuesday 24 August, 2021: 04:30am - 05:00am

3

Felt one stirring.

Jumped out of bed and took a Voltaren.

It didn't seem to progress and I managed to go back to sleep.


Monday 23 August, 2021: 06:30am - 07:00am

5

Wim Hof breathing for 30 minutes cleared it.

Took Voltaren to reduce inflammation.


Monday 23 August, 2021: 03:30am - 04:00am

4

Wim Hof breathing for 30 minutes cleared it.

No medications.


Sunday 22 August, 2021: 12:30am - 01:00am

4

Pain woke me up at 12:30am.

Commenced Wim Hof breathing immediately.

Did 9 rounds of breathing. 30 minutes total.

Headache was dissolving from 20 minutes onwards and was completely resolved after 30 minutes.

No medication.


Thursday 19 August, 2021: 10:00am - 10:45am

5

Damn, they’re back. :(

Used icepacks on my head for numbing pain.

Whole right side of my back also hurt.

Did Wim Hof breathing, 6 rounds for 20 minutes total.

Pain resolved after 20 minutes of wim hof breathing.

Also took Voltaren and a Panadol.


Above period: 26 Attacks over 29 days.

-- Period of remission (107 weeks, 0 days) --


Thursday 01 August, 2019: 08:30am - 09:00am

1

A twinge in the morning. But I think this bout is safely over.


Sunday 28 July, 2019: 09:00am - 09:30am

4

Woke up starting to feel it while snoozing in bed in the morning.

Didn't want to risk it so drank a Red Bull immediately. By 9:30 was feeling good.

*Note* First CH-free stretch. ~50 hours with no CH. I did take Loratadine, antihistamine medication, twice in this time. I read that CH can be histamine related, so I decided to try it. I wonder if that's helped.


Friday 26 July, 2019: 01:30am - 06:30am

7

Woke up starting to feel it.

I didn't want to drink another Red Bull for some reason. I thought I might be ok without it.

Strapped ice packs on the back of my neck and dabbed it on my head/face.

Headache went on for 5 hours and was v painful. I drank the Red Bull after 3.5 hours, it may have contributed to the resolution, hard to say.

#19. This was the nastiest headache of the batch.


Thursday 25 July, 2019: 09:30pm - 10:30pm

4

Started to feel it.

Drank a Red Bull and strapped ice packs on the back of my neck and side of head.

Managed to fall back asleep.


Thursday 25 July, 2019: 02:00am - 03:00am

4

Started to feel it.

Drank a Red Bull and strapped ice packs on the back of my neck and dabbed it on my head/face.

Didn't sleep much the whole night but managed to thwart a serious attack and also avoided ingesting pharmaceuticals.

First time trying Red Bull, I'm impressed!


Wednesday 24 July, 2019: 12:00am - 01:00am

6

1.5 hours after going to bed. Same same same.

Sumatriptan 50mg FDT fixed me up.


Monday 22 July, 2019: 10:30pm - 11:30pm

6

1.5 hours after going to bed. Same same same.

Sumatriptan 50mg FDT fixed me up.


Monday 22 July, 2019: 12:30am - 01:30am

6

Woke me up.

Same pain as usual.

Sumatriptan 50mg FDT fixed me up.

This is #14 of this cluster.


Sunday 21 July, 2019: 12:30am - 01:30am

6

Woke me up.

Same pain as usual.

Sumatriptan 50mg FDT fixed me up.


Saturday 20 July, 2019: 07:00am - 08:00am

6

Woke me up.

Same pain as usual.

Sumitriptan 50mg FDT fixed me up.

CH #12 of this episode.


Friday 19 July, 2019: 01:45am - 02:45am

6

Went to bed feeling a little shadowy.

Woke up with one.

Sumitriptan 50mg FDT made it ok.


Thursday 18 July, 2019: 02:00am - 03:00am

5

Woke me up, second time in the same night.

Same pain as usual.

I had run out of Sumitriptan.

Laid there with icepacks on my back, neck and head until I passed out from tiredness.


Thursday 18 July, 2019: 12:00am - 01:00am

5

Woke me up.

Same pain as usual.

I had run out of Sumitriptan. :( Laid there with icepacks on my back, head and neck.


Wednesday 17 July, 2019: 05:30pm - 06:00pm

5

Same pain as usual. Except, very short duration.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Wednesday 17 July, 2019: 09:00am - 10:00am

5

Woke up with it.

Same pain. Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, often reaching down to the lower back. All on the right side, nothing on the left.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Wednesday 17 July, 2019: 01:00am - 02:00am

5

Woke up with it.

Same pain.

Sumitriptan 50mg seemed to work so quickly, I was amazed.


Tuesday 16 July, 2019: 04:15pm - 05:00pm

5

Same as usual.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Tuesday 16 July, 2019: 05:45am - 06:45am

6

Woke up with it.

Same as usual.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Monday 15 July, 2019: 06:45pm - 07:45pm

6

Same as usual.

Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, often reaching down to the lower back. All on the right side, nothing on the left.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Monday 15 July, 2019: 01:30am - 02:15am

6

Woke up with it.

Same story.

Sumitriptan 50mg fixed it.

It seems to work faster if I walk around my house, possibly to do with blood circulation and absorption of the medication.


Sunday 14 July, 2019: 09:30am - 10:30am

6

Yep. Here they are. Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, down to the hip. All on the right side, nothing on the left.

Sumitriptan 50mg nipped it in the bud.


Thursday 11 July, 2019: 11:00am - 11:45am

2

Very mild but I recognise this distinct pain after a remission period of 27 months. (12 years of episodic CH)

Didn't have any medication on me. It went away after I went for a brisk walk.

I didn't consider this a CH at the time, but in retrospect this was a warning sign. I rarely get 'normal headaches'. It's all or nothing!

My neighbours are painting their house and I wonder if the fumes triggered me. Also some stress at work.


Above period: 22 Attacks over 18 days.

-- Period of remission (117 weeks, 5 days) --


Saturday 15 April, 2017: 12:00am - 12:00am

9

Last one of 2 week batch was the nastiest.


Above period: 0 Attacks over 835 days.

-- Period of remission (907 weeks, 4 days) --


Tuesday 30 November, 1999: -


Tuesday 30 November, 1999: -


Tuesday 30 November, 1999: -