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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Yoshimi's CH attack diary

Yoshimi's Profile

Thursday 01 August, 2019: 08:30am - 09:00am

1

A twinge in the morning. But I think this bout is safely over.


Sunday 28 July, 2019: 09:00am - 09:30am

4

Woke up starting to feel it while snoozing in bed in the morning.

Didn't want to risk it so drank a Red Bull immediately. By 9:30 was feeling good.

*Note* First CH-free stretch. ~50 hours with no CH. I did take Loratadine, antihistamine medication, twice in this time. I read that CH can be histamine related, so I decided to try it. I wonder if that's helped.


Friday 26 July, 2019: 01:30am - 06:30am

7

Woke up starting to feel it.

I didn't want to drink another Red Bull for some reason. I thought I might be ok without it.

Strapped ice packs on the back of my neck and dabbed it on my head/face.

Headache went on for 5 hours and was v painful. I drank the Red Bull after 3.5 hours, it may have contributed to the resolution, hard to say.

#19. This was the nastiest headache of the batch.


Thursday 25 July, 2019: 09:30pm - 10:30pm

4

Started to feel it.

Drank a Red Bull and strapped ice packs on the back of my neck and side of head.

Managed to fall back asleep.


Thursday 25 July, 2019: 02:00am - 03:00am

4

Started to feel it.

Drank a Red Bull and strapped ice packs on the back of my neck and dabbed it on my head/face.

Didn't sleep much the whole night but managed to thwart a serious attack and also avoided ingesting pharmaceuticals.

First time trying Red Bull, I'm impressed!


Wednesday 24 July, 2019: 12:00am - 01:00am

6

1.5 hours after going to bed. Same same same.

Sumatriptan 50mg FDT fixed me up.


Monday 22 July, 2019: 10:30pm - 11:30pm

6

1.5 hours after going to bed. Same same same.

Sumatriptan 50mg FDT fixed me up.


Monday 22 July, 2019: 12:30am - 01:30am

6

Woke me up.

Same pain as usual.

Sumatriptan 50mg FDT fixed me up.

This is #14 of this cluster.


Sunday 21 July, 2019: 12:30am - 01:30am

6

Woke me up.

Same pain as usual.

Sumatriptan 50mg FDT fixed me up.


Saturday 20 July, 2019: 07:00am - 08:00am

6

Woke me up.

Same pain as usual.

Sumitriptan 50mg FDT fixed me up.

CH #12 of this episode.


Friday 19 July, 2019: 01:45am - 02:45am

6

Went to bed feeling a little shadowy.

Woke up with one.

Sumitriptan 50mg FDT made it ok.


Thursday 18 July, 2019: 02:00am - 03:00am

5

Woke me up, second time in the same night.

Same pain as usual.

I had run out of Sumitriptan.

Laid there with icepacks on my back, neck and head until I passed out from tiredness.


Thursday 18 July, 2019: 12:00am - 01:00am

5

Woke me up.

Same pain as usual.

I had run out of Sumitriptan. :( Laid there with icepacks on my back, head and neck.


Wednesday 17 July, 2019: 05:30pm - 06:00pm

5

Same pain as usual. Except, very short duration.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Wednesday 17 July, 2019: 09:00am - 10:00am

5

Woke up with it.

Same pain. Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, often reaching down to the lower back. All on the right side, nothing on the left.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Wednesday 17 July, 2019: 01:00am - 02:00am

5

Woke up with it.

Same pain.

Sumitriptan 50mg seemed to work so quickly, I was amazed.


Tuesday 16 July, 2019: 04:15pm - 05:00pm

5

Same as usual.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Tuesday 16 July, 2019: 05:45am - 06:45am

6

Woke up with it.

Same as usual.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Monday 15 July, 2019: 06:45pm - 07:45pm

6

Same as usual.

Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, often reaching down to the lower back. All on the right side, nothing on the left.

Sumitriptan 50mg is effective and prevents the pain from progressing.


Monday 15 July, 2019: 01:30am - 02:15am

6

Woke up with it.

Same story.

Sumitriptan 50mg fixed it.

It seems to work faster if I walk around my house, possibly to do with blood circulation and absorption of the medication.


Sunday 14 July, 2019: 09:30am - 10:30am

6

Yep. Here they are. Always behind the right eye and comes on so quickly. My right eye tearing up and congested right nostril. Pain radiating down the back of my neck, between the shoulder blades, down to the hip. All on the right side, nothing on the left.

Sumitriptan 50mg nipped it in the bud.


Thursday 11 July, 2019: 11:00am - 11:45am

2

Very mild but I recognise this distinct pain after a remission period of 27 months. (12 years of episodic CH)

Didn't have any medication on me. It went away after I went for a brisk walk.

I didn't consider this a CH at the time, but in retrospect this was a warning sign. I rarely get 'normal headaches'. It's all or nothing!

My neighbours are painting their house and I wonder if the fumes triggered me. Also some stress at work.


Above period: 22 Attacks over 22 days.

-- Period of remission (1,023 weeks, 2 days) --


Tuesday 30 November, 1999: -