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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Amy's CH attack diary

Amy's Profile

Thursday 09 October, 2008: 9:00pm - 11:22pm


This is the longest attack I've ever had since the onset of the headache when I was 18. I've already taken 2 deseril tablets plus 1 ergotamine that day so when the headache occured, I took 1 deseril, 1 ergotamine and 1 panafcort. The pain was unbearable, I sat in the tub under the shower for an hour to distract me from the pain. Afterwards, I went to bed and rubbed ice all over my left side where the headache normally is to distract me from the pain. At this very moment, I wanted to die. I felt like ripping my brain out of my head. The left side of my face was droopy, nostrils dripping and left eye was watery. The headache eventually slowly went away and left me exhausted. I felt like I ran a marathon as I was so tired. I fell asleep but it wasn't a pleasant one as I was afraid that the headache might wake me up.

Monday 06 October, 2008: 7pm - 8pm


By this stage, I started taking the deseril 3 times a day and tce (ergotamine) once a day after my attack on Friday. I was able to tolerate the pain but scared that I may have an attack during work hours the next day.

Friday 03 October, 2008: 3am - 4:05am


The headache occured after a night out with friends. I had alcohol so this may have triggered it. My last attack was in April 2008. I took one deseril and one TCE (ergotamine) tablet. I fell asleep after the attack as I was exhausted.