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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Public diarys ordered by most recently active - Click a member's name to view their Cluster Diary.

FIFI's CH attack diary

FIFI's Profile

Friday 18 September, 2009: 08.00 - 08.00


this was one of those growing CH that was just a nag

Friday 18 September, 2009: 04.45 - 05.10


I feel like I got off easy tonight.

Friday 18 September, 2009: 0.40 - 1.00


Easily resolved with ice pack

Thursday 17 September, 2009: 05.35 - 06.30


another ch that was there when I woke and meant I could not go back to sleep.some Ice some breathing some focusing some swearing and it finally lifted

Thursday 17 September, 2009: 04.15 - 04.50


This one would not go away and the ice pack did not seem to help

Thursday 17 September, 2009: 0.20 - 0.35


Suprisingly mild one

Wednesday 16 September, 2009: 07.00 - 08.50


this is one I still have now and I think it is just about over. I wish I could get some energy so I could have my life back.

Wednesday 16 September, 2009: 05.40 - 06.20


this one lasted a bit and had a few ice picks of 9 I started rocking and moaning but it did resolve.

Wednesday 16 September, 2009: 02.45 - 03.20


I am starting to not believe there is an end to these bloody things

Wednesday 16 September, 2009: 00.40 - 01.10


The ice seems to be a double edge sword, sometimes it hurts more to have an ice pack on.

Tuesday 15 September, 2009: 22/6/09 - current


This cluster has lasted for a long time and has changed a few times but is now settled in to the right side.

Tuesday 15 September, 2009: 03.50 - 04.15


again it hurts but I am in no illusion that they are just going to leave me.

Tuesday 15 September, 2009: 0.20 - 0.50


This one was not too bad I am now getting into the swing of knowing how long they will last and being able to hang on for that long.

Sunday 13 September, 2009: 07.45 - 08.10


I feel like this one was my fault for sleeping too late .I am so tired I want this to end it is impacting on all facets of my life.
Some common ground would be great.
Face wash ,ice pack and sometimes I gently put 1 finger on my head and use it as a sort of visualisation to "drain" the pain out of my head some people have called it bio feedback.

Sunday 13 September, 2009: 04.50 - 05.30


As we are all aware we speak too soon and the little bastard will punish us for it.I get up and wash the right side of my head then my eye over my cheek and finally my ear,I repeat if long suffering wife has asked if I have a headace and gone to the freezer to get a ice pack and wrap it for me and I sit cross legged and gently apply it to my ear and forhead and sometimes my eye. My wife is a registered nurse and she is always researching and is a great comfort to me.This is my longest ever cluster and it has moved from side to side at the begining I even had a bilateral 8 I just cried and said this is too cruel for words.

Sunday 13 September, 2009: 03.45 - 04.09


I was suprised at the long sleep I had I usually only get 1 or 2 hours. I think the morning cafergot has made a difference