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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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mr happy's CH attack diary

mr happy's Profile

Tuesday 09 September, 2014: 06:00pm - 07:00pm

4

Kind of lucky lately, shadows for about 6 months now and just the odd "why", time to start hitting the diary again. Living the dream


Above period: 2 Attacks over 1 days.

-- Period of remission (146 weeks, 5 days) --


Thursday 24 November, 2011: 06:15pm - 10:00pm

6

A month of night time hell, nearly every night, with shadows through the days.
Had a 1 or 2 day reprieve here and there, thinking my episodes were over for another year, WRONG.
Its been going on for nearly 5 weeks, so hopefully I only have a week or 3 to go.
I hate the attacks, I hate the anticipation of the attacks and I hate the shadows, all in all, I HATE THIS
PS Apart from being a cluster sufferer, life's good


Above period: 1 Attacks over -28 days.

-- Period of remission (4 weeks, 1 days) --


Wednesday 26 October, 2011: 09:00pm - 12:00pm

6

welcome back, i think i need to fly more


Tuesday 25 October, 2011: 05:00pm - 10:00pm

3

Odd, flew interstate and back today. Did working in a different time zone buggar up my body clock enough to effect the severity


Monday 24 October, 2011: 09:00pm - 11:00pm

8

Dammit


Sunday 23 October, 2011: 07:00pm - 09:00pm

5

survived in the lounge room, just... was touch and go as to having to curl up on the floor and wait


Saturday 22 October, 2011: 07:00pm - 09:00pm

6

Mass coffee and "V" did nothing, oh well


Friday 21 October, 2011: 06:00pm - 08:00pm

5

Mass coffee and 500ml "V" seemed to help ?


Wednesday 19 October, 2011: 06:00pm - 07:00pm

5

Well its been a great 8 months, almost long enough to forget this hell.
Been getting shadows for the past few days, but the ever optimist in me thought it would pass, IT DIDNT


Above period: 6 Attacks over 7 days.

-- Period of remission (34 weeks, 3 days) --


Sunday 20 February, 2011: 12:00pm - 12:00pm

0

HAPPY HAPPY JOY JOY
3 days like a normal person


Thursday 17 February, 2011: 07:00am - 08:00am

1

I can handle the shadows all day, so long as the party times don't hit.
In saying that, would love to for them to finish as well.
Here's hoping I wont be back till 2012


Wednesday 16 February, 2011: 07:00am - 08:00am

1

It's looking good here, long day of thinking the worst, great that the worst never happened


Tuesday 15 February, 2011: 04:00pm - 07:00pm

1

I hope I'm good for another year, TBA


Monday 14 February, 2011: 06:00pm - 07:00pm

3

I'm on a great streak


Sunday 13 February, 2011: 05:30pm - 07:00pm

3

Happy me


Saturday 12 February, 2011: 06:20pm - 08:00pm

7

Well this 1 pissed me off, I thought I was over a good easy 1 rated at a 3 earlier in the evening. Then I got smacked in the forehead 20 minutes later by a 4 x 2, passed out after about an hour, woke and put up with it till I passed out again. Woke at 5am the next day with shadows.


Saturday 12 February, 2011: 04:00pm - 06:00pm

3

Came early and surprised me, and not in a good way, apart from the fact that it was a good 1


Friday 11 February, 2011: 06:20pm - 07:00pm

2

Short n sweet, how goods that


Thursday 10 February, 2011: 06:00pm - 08:30pm

6

This screwed up some dinner plans


Wednesday 09 February, 2011: 06:15pm - 06:40pm

3

I LOVE 3's and a really quick 3's at that.
25 minutes was really quite pleasant, now this I can live with


Tuesday 08 February, 2011: 02:00pm - 03:00pm

5

Well today was a first, never had an attack at work before, Went down at my desk, sweats, small knife to the forehead , droopy eye and didn't want to play any more.
Have to say my work colleagues did really well, they know I suffer and gave me a pretty wide berth for a while. Thanks team


Monday 07 February, 2011: 06:00pm - 09:00pm

4

How good is this and how sad is this,
Happy as a pig that I'm getting 4's, it sucks but could be a lot worse


Sunday 06 February, 2011: 05:00pm - 08:00pm

4

I LOVE 4's


Saturday 05 February, 2011: 06:00pm - 08:00pm

6

OK I'm over the 6's, I want a 1 or a 2, but now that I have tempted fate I will get a 9, does anyone need to set the time on their watch, I'm like clockwork


Friday 04 February, 2011: 06:00pm - 08:00pm

6

A few nights with 6's seem's like a holiday, how cool. They are around, and I go down, but at least I can get back up, the consistent time frame is the worst, I start clock watching and can get it within 5 minutes of each other. Then I wonder if I'm just bringing them on by thinking about them ?


Thursday 03 February, 2011: 06:00pm - 08:00pm

6

Pilled myself up, didn't want a bad 1, didn't work though


Wednesday 02 February, 2011: 06:00pm - 08:00pm

6

Fairly easy, passed out quickly, thank F


Tuesday 01 February, 2011: 06:00pm - 09:00pm

8

So over these, the anticipation, the pain, the only good part is when it goes


Sunday 30 January, 2011: 05:00pm - 07:00pm

5

OK What a 2 days


Saturday 29 January, 2011: 10:00am - 07:00am

7

What a day


Friday 28 January, 2011: 04:00pm - 06:00pm

7

My own stupid fault this one, stopping at the pub and having 1 beer on the way home from work, seemed like a good idea at the time.
This time around has been a slow start, with generally low level attacks, I forgot what I'm probably in for, for a while. Today was a reminder I didn't need


Tuesday 25 January, 2011: 06:20pm - 07:00pm

5

Came and went surprisingly fast, how bloody goods that


Friday 21 January, 2011: 06:00pm - 07:00pm

3

Lasted for 3 days, enough to know your a CH champion


Thursday 20 January, 2011: 07:00pm - 07:40pm

3

This sucks,


Monday 17 January, 2011: 06:00pm - 08:00pm

4

Livable


Sunday 16 January, 2011: 05:00am - 06:00am

7

What a way to wake up, or was that, be woken up.
I knew before I opened my eyes it wasn't going to be good, sweats started about 1 second later, and had completed their job about 30 seconds after that, I was drenched.
Straight into the old foetal position, both hands over my right eye, trying to push my forehead into the back of my head.
This is my first morning attack, WOW, I hate the build up of a daytime one, the dread of knowing what's coming, but to be smack in the middle instantly was something else.
I passed out after an hour, (I'm lucky like that) and woke at noon


Sunday 02 January, 2011: 11:30am - 04:00am

4

Shit, shit, shit. Welcomed back the bastard things today, passed out cold in about 15 minutes flat. Up 3 hrs later totally knackered and drenched from sweating, feels like i just finished a 20km run


Above period: 28 Attacks over 47 days.

-- Period of remission (47 weeks, 0 days) --


Sunday 07 February, 2010: 20.30 - 21.45

7

2 Evenings CH free, got all excited that i was on the end of a cycle, Thought i was looking good for day 3, then it snuck up on me late. Bastard thing


Thursday 04 February, 2010: 17.30 - 18.00

3

Awesome, awesome night, got to stay up like a big kid. This cycle has been 6+ weeks, so im a hoping im on the turn, Fingers, toes, arms crossed. I know, i know, dont get my hope up to soon.


Wednesday 03 February, 2010: 17.30 - 19.00

6

Not to bad, passed out early and woke next day


Tuesday 02 February, 2010: 17.30 - 19.30

4

How bad are we when we celebrate a 4, got to stay up like a big kid and watch tv. Hopeing im on the end of my cycle. Did i mention im the eternal optimist.


Monday 01 February, 2010: 17,00 - 20.00

7

Buggar, just when i was hopeing they were on the way out, i get a 7-8, passed out after an hour or so and woke on and off all night.Finally shadow free at 3am ish and was stuck awake. Early start to the day is most likely going to bite me in the bum at my favorite time of the day TBA


Sunday 31 January, 2010: 17.30 - 19.00

5

great day apart from a bit of a beast attack, would really LOVE a Bourbon, but to hell with that, hurts 2 much 2 have any atm


Saturday 30 January, 2010: 17,00 - 18.00

5

All in all not bad, had shadows and the sweats from lunchtime onwards but i didnt have to "phone a friend" at the "best part of my day" (5 to 6pm)


Friday 29 January, 2010: 17.30 - 18.30

6

Strange, was chatting to an old mate on the phone when the shadows started, i know im being optermistic when i state that i just fought thru it and kept on chatting. it was difficult to keep going but i wasnt going to let it win, buggar me if i didnt kind of work my way around it, kept chatting and hitting me head and then realised that i had actually beaten 1, IF i get another tonight, im ringing him back lol


Thursday 28 January, 2010: 18.00 - 19.00

6

Thought i was having a good run with yesterday just a 3, paced and rolled till i passed out. The worst bloody thing is the anticipation, you know its comming and hopeing for the best, then i hits and its shit here we go again


Wednesday 27 January, 2010: 17.30 - 18.30

3

All in all a good day, shadows constant from lunchtime on but all good


Tuesday 26 January, 2010: 18.00 - 19.30

6

Great Aussie day here, till the usual time


Monday 25 January, 2010: 17.30 - 19.00

4

Day off work, dosent feel like a holiday


Friday 22 January, 2010: 18.30 - 20.30

7

Rocked and rolled till i passed out at about 7.30pm, woke next morning at 5am with a few shadows, lasted about 1/2 hr. All good


Thursday 21 January, 2010: 18.30 - 20.00

7

Rocked for a while till i passed out, not sure if the ice pack really works. Kids back from holidays


Wednesday 20 January, 2010: 17.30 - 19.30

6

Easy one again. kids still away.


Tuesday 19 January, 2010: 20.30 - 21.45

5

Easy one, late start. Kids away


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