Sign in

Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

To view a private diary, enter the member's membership number:


This needs to have been provided by the member, and can only be found on their Account settings page when they are logged into their account.


Public diarys ordered by most recently active - Click a member's name to view their Cluster Diary.

's CH attack diary

's Profile

Monday 25 December, 2017: 12:00am - 12:00am

1

Looks like the nerve blockers have worked in stopping the clusters. Yay!
Taking pregninsone steroids still. Skin terrible and not sleeping well.
Half Valium not working super well.

Slight twinges today but thinking that is more the Botox kicking in.

I might have finally found my solution. Fingers crossed.


Monday 25 December, 2017: 12:00am - 12:00am

1

Looks like the nerve blockers have worked in stopping the clusters. Yay!
Taking pregninsone steroids still. Skin terrible and not sleeping well.
Half Valium not working super well.

Slight twinges today but thinking that is more the Botox kicking in.

I might have finally found my solution. Fingers crossed.


Saturday 23 December, 2017: 12:00am - 12:00am

1

3 rd day no attacks after Botox on the 13th.
Botox took to long to kick in so pregnosone was used as a nerve blocker til it did.

Also taking steroids every day. For 10 days.

Botox will have hopefully worked and solved my cluster issues yay!


Saturday 23 December, 2017: 12:00am - 12:00am

1

3 rd day no attacks after Botox on the 13th.
Botox took to long to kick in so pregnosone was used as a nerve blocker til it did.

Also taking steroids every day. For 10 days.

Botox will have hopefully worked and solved my cluster issues yay!


Friday 15 December, 2017: 07:15pm - 08:35pm

5

2nd attack of the day.
First one was aborted by the spray with lasting only 15 min.

Tonight’s one is longer than normal and spray didn’t work. :(


Wednesday 13 December, 2017: 09:30am - 10:15am

4

Used spray, worked in shortening. Got nausea quite bad this time.


Wednesday 13 December, 2017: 09:30am - 10:15am

4

Used spray, worked in shortening. Got nausea quite bad this time.


Wednesday 13 December, 2017: 09:30am - 10:15am

4

Used spray, worked in shortening. Got nausea quite bad this time.


Tuesday 12 December, 2017: 07:45pm - 08:10pm

5

2 attacks today, one at 10 am and then one at above time. Used imagraine spray as an abortive. Hopefully this time it will work.


Monday 11 December, 2017: 09:50am - 10:55am

6

Very painful again
Trying not to use spray.
Taking 4 sandio per day.

Whole body sore,
Chiro not working.


Monday 11 December, 2017: 09:50am - 10:55am

6

Very painful again
Trying not to use spray.
Taking 4 sandio per day.

Whole body sore,
Chiro not working.


Monday 11 December, 2017: 09:50am - 10:55am

6

Very painful again
Trying not to use spray.
Taking 4 sandio per day.

Whole body sore,
Chiro not working.


Sunday 10 December, 2017: 10:20am - 11:25am

6

Worst attack so far
Onto 3 tablets sandio
Per day.


Sunday 10 December, 2017: 10:20am - 11:25am

6

Worst attack so far
Onto 3 tablets sandio
Per day.


Sunday 10 December, 2017: 10:20am - 11:25am

6

Worst attack so far
Onto 3 tablets sandio
Per day.


Thursday 07 December, 2017: 11:00am - 12:00am

3

They are back! 2nd day... very low pain.


Above period: 17 Attacks over 19 days.

-- Period of remission (56 weeks, 5 days) --


Saturday 12 November, 2016: 12:30am - 12:45am

4

Just had one start, in hope the spray kicks in quickly!

2nd one of today.


Friday 11 November, 2016: 12:00am - 12:00am

1

Just an entry, -
Had at least two attacks every day,
Taking 12 sandomigran a day, every three hours.

Had an appointment with a specialist for nerve blocking but I felt it was quite invasive, I worry about the doc as he has never worked with a cluster client before.
He did refer me to a Botox doctor and hopefully she can help.


Thursday 10 November, 2016: 07:30pm - 08:40pm

10

Second of the day,
first was at 3 am and I woke to terrible pain ran to use nasal spray. Gone within 39 min.

Evening attack I used my spray with no relief and last the usual hour, but was a def 10 ... had to be held to stop hitting myself ...


Sunday 06 November, 2016: 03:00pm - 04:00pm

10

4th attack of today,
1st one woke my up from my sleep at 3am. Then back to sleep to have another at 5:30 pm


Friday 04 November, 2016: 10:35pm - 11:40pm

8

Very angry about clusters still being so bad .... doing chiro and meds
Waffer doesn't seem to work at all, - maxalot
Lots of after shadows.


Tuesday 01 November, 2016: 09:55pm - 11:00pm

4


Above period: 6 Attacks over 11 days.

-- Period of remission (147 weeks, 1 days) --


Monday 06 January, 2014: 12:00pm - 12:00pm

1

Still on medication down to 4 tablets a day from 9.
Still getting shodows but no ch attacks


Saturday 28 December, 2013: 09:05am - 09:40am

4

Last three days I havnt been bothered to ful in my diary entries as I have been to tired to do anything. I am currently taking 10 sandomigran and 2 sprays a day for my attacks.
Last two days I had two attacks bother being stopped about 20 to 30 min in by the Nasel spray. Best invention yet!!! Xmas day I had one attack just after lunch. Last two days my attacks have woken my up at 9:03 am. These have been about a 6 to 7 pain level until spray kicks in.
Today the shadows have stuck around all day, I keep thinking another attack is about to come on when it then disappears and then back again in 5 to 10 min. My theory is that the meds have started to work "fingers crossed"


Monday 23 December, 2013: 12:55pm - 02:00pm

7

Today was slightly better, I had two attacked and both times I was lucky enough to use my Nasel spray on time. Which made my cluster shorter and not as painful as they have been in past days.

My 2nd attack was really unexpected it hit me out of no where, I had just arrived at the shops to start my Xmas shopping as I have been unable to do much over the last two weeks with my clusters. And BAM. Hits me in the middle of the shops. Luckily enough I took my imagram spray with me and headed straight to the car to start the attack. In which my partner drive me home in pain and feeling nauseated due to meds pain and spray.

If anyone wants to chat about what they are going through, it would be good to have an hear to chew on that is experiencing what I am going through.

As some people are working on my last nerve with certain comments.


Sunday 22 December, 2013: 12:25pm - 01:30pm

10

2nd day of the worst attacks I have ever had . Worst than any cycle of attacks that I have ever had in the past years. I am sleeping most nights and days at the moment. Only awaking to an attack...
Today's attack was a defiant 10, never have I thought about hurting my self but today was different, I just wanted the pain to stop.

I didn't get to use my spray quickly enough, as my doc said I can not use any more than 1 spray a day.

My 2nd attack arrived at 2:30pm I would rate it as a 5 due to using the spray and it lasted for 20 min.


Saturday 21 December, 2013: 12:55pm - 02:00pm

9

Today I had three attacks, all being a level 9 to a level 10. Lasting for an hour each time.
I have never had this many attacks in one day at this level of pain. By the
End of the third, I was leaning more into the level 10 of the pain rater.

I used the nasal spray and I am on 7 tablets of Sandomigran.


Above period: 4 Attacks over 8 days.

-- Period of remission (734 weeks, 5 days) --


Tuesday 30 November, 1999: -


An ad to help cover the costs of keeping this site up: