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Cluster Headache Diaries

Cluster Headache Intensity Scale

  1. Slight twinge of the CH type of pain. Shadows.
  2. Normal headache type of intensity. Annoying, but life is still beautiful.
  3. Shadows are getting constant but can deal with it.
  4. Higher level of pain than normal headache. Interferes with normal life.
  5. Starting to get bad, want to be left alone to deal with it.
  6. Need to pace and move and drive your fist into your temple.
  7. Major non-stop pain, left feeling exhausted after it finally leaves.
  8. Immense paid, time to yell, bang head, rock, whatever works. Fear that it won't stop.
  9. The "Why me?" syndrome starts to set in.
  10. Screaming, head banging. Hospital trip. Depressed. Suicidal.

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Mardi's CH attack diary

Mardi's Profile

Friday 09 August, 2013: 07:10am - 07:50am


Alarm went off at 5.30am. So tired and kept hitting snooze! Stupid mistake. Woke at 7.06am with intense building pain. Already late for work. OMG here we go. Straight into super hot shower (some relief) hot water runs out. Intensity grows. Take immigran tablet, don't want to waste injections so early into cycle. Wow please go away.. Suck in air, more heat. Pain now spread to jaw, neck and pulsating from eye to back if head. This sux. Now I have to explain this to a new boss, he is just telling me to take day off. If I did that for every attack I'd never be at work. Gotta push on!!! Won't let this monster beat me but feeling pretty defeated right now

Friday 09 August, 2013: 04:30am - 04:45am


Woke at 4.30am with familiar pain, sat upright with heat bag for a while. Subsided fairly quickly..back to sleep, alarm goes off at 5.30am so should wake a break cycle before next 2 hour block

Thursday 08 August, 2013: 11:45pm - 12:05pm


Went to bed at 10pm and very tired. Woke at 11.45pm with pain slight but increasing in intensity and enough to keep me awake. Sprung out of bed to avoid it getting worse. 2 Neurofen and 3 Aspro clear. Heat bag.. Ok taper off after 10-15 mins. Back to sleep. Hope this is not going to go on all night.

Thursday 08 August, 2013: 05:00am - 05:30am


Took immigran tablet before going to bed as shadows were increasing in intensity, slept well but woke at 5am with pain. Clusters building slowly. Very tired today!!

Tuesday 06 August, 2013: 04:00pm - 10:00pm


First day back at work after 4 days off. Woke up well at 5.30am pain free. Day went well. Shadows and mild cluster like pain commenced 4pm, continued all night with occasional brief but scary flair ups. Big nervous about going to bed but can't put off forever

Monday 05 August, 2013: 07:00am - 07:30am


Had good day yesterday (Sunday) however woke this morning from deep sleep with familiar pain, can't stay in bed but very tired. Jumped up and started pacing. Sucked in fresh air, hot shower, starting to ease thank god. Can't go back to bed or the beast will come back. Stay up and drink coffee. Ok now but soooo tired.

Friday 02 August, 2013: 09:00am - 09:30am


Here we go again. Just had 2 year remission. First time ever and believed I might have grown out of these debilitating attacks. Not to be. Was feeling very happy and relaxed after big life event and getting ready to celebrate with few drinks. This is typical.. Often the beast emerges once the stress is gone!! Woke up after having a long deserved sleep in with intense pain and throbbing in right eye, identified with type of pain immediately. Overwhelming feeling of depression and dread. Was really pissed off!! And Lots of Why Me? Jumped out of bed (can't lye down), hot shower, suck in fresh air, coffee! Easing after 10 minutes. Oh crap, need to stock up on immigran. Refused to accept this was beginning of end. Might be one off attack. Can only dream! Don't want to talk about it