Showing all posts by "Irene"
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Posted in suicide headaches on 13 Jan, 2011 - 11:10 am
I just sent you a private msg heather . I have 3 year old twin girls, ella and Madison. The hard thing is that i dont have any support i do everything on my own, but ive gotton this far so will soldier on.
Irene
Posted in suicide headaches on 12 Jan, 2011 - 11:03 pm
I am starting to really understand why they are nicknamed suicide headaches. I finally got an appointment to a neuro who told me i had tension headaches because it is impossible for females to get cluster headaches. He gave me anti depressants and sent me on my way, i am really frustrated at the lack of understanding of the way this affects lives. I am trying to get through my diploma of nursing with two small children and although im determined to do it i am at breaking point. I feel sorry for my children because i have lost all patience and cannot get out there and play with them anymore because i am so drained physicaly and mentally. I just want some help.
Posted in good news! on 12 Jan, 2011 - 10:54 pm
I havnt been on here for a while but by day 7 they were back. Im really at my wits end.
Posted in Irene's Competition on 30 Oct, 2010 - 7:44 am
I have just entered a competition by sacrificing all of my clothes i need over 800 votes to win $ 10000. It would really help me right now. Please follow this link and press like under the link......your help would really be appreciated.
http://apps.facebook.com/forloveandmoney/entry.php?id=288&filter=wi
nners&page=1&perPage
And share the link with your friends
Posted in good news! on 30 Sep, 2010 - 7:34 am
I was starting to think there was no hope of ever having a headache free day, but 5 days ago there was a miracle. I woke up in the morning without a headache, but of course was waiting for it as for the past 3 and a half years i have had a constant throbbing head. I was waiting all day and it never came . This has happened for the last 5 days and i have had a headache or mabey two but not of the cluster kind, it was about a 1 and was relieved by a couple of panadol ha ha yes panadol. Funnily enough i stopped taking the sandomigran the day before as i felt all it was doing was causing massive weight gain ( I wouldnt have minded if they worked) and not helping with the headaches. So no meds and no headaches, mabey this is the light at the end of a very long dark tunnel.Im really hoping im in a long remission period, i think i deserve it after over 3 years in hell. Just like that they have stopped as quickly as they started and CH my nasty friend i dont miss you one bit.
Posted in Untitled on 01 Sep, 2010 - 1:36 pm
well thought i would give an update. I thought the meds were working but about a week ago a CH about 9 on the pain scale struck.Now i have gone back to the all day pain hough the intensity varies as the CH's come and go. Was given a injection of tramol with no effect on the pain, sure it knocked me out but i woke with the bugger still just as bad. I woke with the Ch at about 6am and didnt have complete relief until at least 7pm. With the major pain being broken into 2 bouts of about three hours with the shadows in between. 
back to the drawinsg board i guess. Any suggestions as to what works for you so that mabey i can go to the drs armed with some info .
Posted in Untitled on 07 Aug, 2010 - 8:47 am
Does anyone experience blurred vision on the side of the attack. I get it everytime without fail that warns me my headache is about to get a whole lot worse. It is like there is a film of something over my eye that i cant see through properly , its hard to explain its not over the entire eye more like a splodge.
That probably makes no sense, but does anyone experience any type of blurred vision i one eye.
Posted in Untitled on 07 Aug, 2010 - 8:39 am
I also have all day pain, a day hasnt gone by in 3 years that i have been pain free.
Posted in Left or right sided on 07 Aug, 2010 - 8:29 am
Right for me
Posted in What age did you get CH? on 07 Aug, 2010 - 8:27 am
I also started suffering at about this age if it is ch's he is very lucky he has been diagnosed so young as i suffered for 15 years before i was diagnosed.
Good luck
Posted in Untitled on 06 Aug, 2010 - 4:45 pm
Sorry Roger i have written the wrong thing i have been in the chronic stage for over three years now so waiting for that amount of time wasnt really a issue , at least there was light at the end of the tunnel (thankfully the sandomigran are beginning to kick in ).
Heather thankfully although i have headaches constantly the pain is rarely a 10 ( every couple of weeks) but more a 5-7 on the pain scale . I have been taking mercyndol constantly for years , it didn't work but i guess in my head it was worth trying something than doing nothing . It wasn't until i stopped taking pain meds for a couple of days that i realized it was the headache easing off not the medication working .I have now realised i nearly always get them at the same time everyday . I wake up with one, get one around lunch then again at about 7 pm.
Today though i am quite optimistic i woke with a headache but since that has lifted no more headaches. Lets hope they go completely, i forgot what it was like to be normal.
ITS FANTASTIC
Posted in Untitled on 05 Aug, 2010 - 10:45 am
thanks for all our support, it's great to know im not alone.My GP diagnosed me and has prescribed me sandomigran , i wasn't very hopeful as they didnt seem to be doing anything.
today though its now 10.40 and i can feel a slight ache coming on and hopefully it stays that way. I started taking them about a week and a half ago and was told it would take about 7 days to start working and 6 weeks for the full effect. If after that time i still have headaches i will be getting a referral to a specialist , are there any that you can recommend in the sydney area ?
Posted in IT'S ALL IN HER HEAD on 02 Aug, 2010 - 10:48 am
I feel like i am reading my own story here as i have also had them all my life . My mother is very understanding but my partner on the other and has no compassion for my condition , yes it is all in my head and was just addicted to pain meds . I am so glad that i finally have an answer and am hoping for some relief now that i know whats going on and can be treated for it . I have just started taking sandomigran but have yet to have a pain free day , if they dont work i will be demanding to see a neurologist . I can sympothise with you as i have 3 year old twins and have been in the acute stage for three years now .
Posted in Untitled on 02 Aug, 2010 - 10:34 am
Hi my names Irene and i have just joined this site , i am so grateful there is a site like this as i don't feel so alone now.
I have had severe headaches for as long as i can remember , they were always thought to be migraines. As i got older the patterns of my headaches started to appear , i always thought i had a problem with my neck as the pain radiates from my neck . I would have headaches for weeks at a time and then they would just stop(i always though my neck must have gone back into place ) and i wouldn't have a headaches for weeks then they would come back , this pattern went on for years.About 3 years ago my headaches became acute for months i was waiting for them to stops as usual , but months turned into years. I went to a doctor about a year into the constant headaches, I was given blood tests, CT scans, physio and beta blockers but nothing helped. This whole time i was constantly taking strong pain meds ,after i would take them the pain would subside after a while but i have come to realize it was not the pain meds working it was just the CH dying down. The pain never really goes away the severity just fluctuates from a roaring headache to a dull ache the severe pain coming on at least 4 timed a day. When the pain is really bad pain killers wont do anything. What led to my diagnosis was a severe headache a couple of weeks ago , the worst one i have ever experienced . I went to the dr begging for some relieve and he gave me nothing , sent me for all the same tests i have previously had. My mum was searching online to see what could help me when she came across CH's ,it all suddenly made sense i had all the symptoms . I went to another dr who confirmed this , i am now taking sandomigran and have been for about a week now they seem to be lessening the severity and frequency but i am still having headaches so will be going to the drs to see if my dosage needs to be changed.